Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tsh 3rd Generation?

Crystal Brown

Recommended Posts

Crystal Brown Rookie
Crystal Brown
Posted

My Mom had the Celiac blood panel. Or so I thought. When looking at her results, the only thing on the piece of paper is:

TSH 3rd Generation 11305

Diagnoses: 1 degree - 244.9 degrees = Hypothyroidism

.... That's it.

Now, I did do a search within this forum and on Google, however I am wondering if doctors use different terminology and just lump it under one name?

Or did the doctor forget half the tests?

Any advice would be greatly appreciated, as usual :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

LOL!!!!!!!!! I thought it didn't look right :)

Oh happy days! The doctor wrote on a piece of paper, check thyroid in 3 months. <---- that was it.

Great, I'm going to have a field day trying to get my Mom to have the right tests. The one "Celiac" blood test cost her $197.50.. I just say this because she makes a big hooplah about how much it cost.. She was wondering, being that her insurance doesn't cover the blood tests, are there any suggestions for her not having to pay "an arm and a leg" for the additional tests?

Any suggestions would be greatly appreciated :D

Thank you!

happygirl Collaborator
happygirl
Posted

Trying the diet without testing is free.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Trying the diet without testing is free.

Good point. I have a feeling it will be even harder to convince her to do that. She doesn't have the classic symptoms, therefore she sees no reason to investigate this whole "Celiac" business. She does her best to support me, but doesn't want to incur the expense to find out if she has it. My Dad is the same way. She swears he gave it to me and he swears that he didn't. I don't really care who "gave" it to me, I just want to make sure they are as healthy as possible. Based off of some of their symptoms (classic or not), I think they should at least check.. if anything, just to prove me wrong. :/

But they're adults and can fend for themselves.

I have to give my Mom credit though. She did try. It's not her fault the doctor forgot the other tests.

:P

curiousgeorge Rookie
curiousgeorge
Posted

It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted
Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

It's definitely too much... even without insurance, it should cost about $50 to check your TSH.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author

Thank you for the information. :)

I will definitely look into this with my Mom. If there is a discrepancy with the amount she paid, then I would hope they would be willing to give her the right tests equal to the cost of what she has already paid for.

There's still hope yet!

Just to clarify, I don't want her or my Dad just to get tested for the fun of it. She has a lot of peripheral neuropathy issues, intermittent C (which she swears is just because she eats too much dairy), arthritis and now she has developed some sort of rash on her cheeks. I don't necessarily think the rash is DH, but I have noticed that it shows up more depending on what she is eating.

Dad, on the other hand, has (I'm just gonna list his, lol):

Acid reflux

D

C

Gas/bloating

Arthritis

Thrombocythemia - he takes medication for this

Prostate Cancer - surgery

Basil Cell Carcinoma - surgery

Hernia - surgery

Scoliosis - surgery

Hemorrhoids

Diverticulitis - dx back in the early 90's

Those are just the things I can remember off the top of my head. His sister also has gluten-intolerance and is a self-diagnosed Celiac.

Anyway, they both support me, but don't want to spend the big bucks to get tested. They have a PPO and it has a high deductible, hence all this hesitation to pursue further testing. This is great information about the test being cheaper than what my Mom paid, hopefully this will be an incentive to have her get the right tests - insurance permitting (and cooperating).

curiousgeorge Rookie
curiousgeorge
Posted

I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Well, she had the tests done about 5 months ago.. So, I'm hoping they would have all come back. We put a call in to the doctor to find out if maybe she forgot to send all of the test results. At the time of the Celiac panel she also had her cholesterol checked and a couple other routine blood tests. She said that they filled 6 viles of blood. I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Thank you again, all this is really helping :)

Mother of Jibril Enthusiast
Mother of Jibril
Posted
I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

curiousgeorge Rookie
curiousgeorge
Posted

I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

It is quite possible that I had everything under the sun tested.. So, maybe she actually had the right amount. I'll have to find the results for my panel.. now I'm curious :)

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

The doctor mailed her a piece of paper that said:

"slightly low thyroid level, check in three months"

That was it. No other follow-up or further information was provided.

Yeah, I would say anything over 10 viles and you just sort of stop caring.. haha :P

curiousgeorge Rookie
curiousgeorge
Posted

Egads, she needs to follow up on the thryoid stuff. Its not something that should just be followed. I'm sure she feels HORRID.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.