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Tsh 3rd Generation?

Crystal Brown

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Crystal Brown Rookie
Crystal Brown
Posted

My Mom had the Celiac blood panel. Or so I thought. When looking at her results, the only thing on the piece of paper is:

TSH 3rd Generation 11305

Diagnoses: 1 degree - 244.9 degrees = Hypothyroidism

.... That's it.

Now, I did do a search within this forum and on Google, however I am wondering if doctors use different terminology and just lump it under one name?

Or did the doctor forget half the tests?

Any advice would be greatly appreciated, as usual :)

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

LOL!!!!!!!!! I thought it didn't look right :)

Oh happy days! The doctor wrote on a piece of paper, check thyroid in 3 months. <---- that was it.

Great, I'm going to have a field day trying to get my Mom to have the right tests. The one "Celiac" blood test cost her $197.50.. I just say this because she makes a big hooplah about how much it cost.. She was wondering, being that her insurance doesn't cover the blood tests, are there any suggestions for her not having to pay "an arm and a leg" for the additional tests?

Any suggestions would be greatly appreciated :D

Thank you!

happygirl Collaborator
happygirl
Posted

Trying the diet without testing is free.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Trying the diet without testing is free.

Good point. I have a feeling it will be even harder to convince her to do that. She doesn't have the classic symptoms, therefore she sees no reason to investigate this whole "Celiac" business. She does her best to support me, but doesn't want to incur the expense to find out if she has it. My Dad is the same way. She swears he gave it to me and he swears that he didn't. I don't really care who "gave" it to me, I just want to make sure they are as healthy as possible. Based off of some of their symptoms (classic or not), I think they should at least check.. if anything, just to prove me wrong. :/

But they're adults and can fend for themselves.

I have to give my Mom credit though. She did try. It's not her fault the doctor forgot the other tests.

:P

curiousgeorge Rookie
curiousgeorge
Posted

It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

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Mother of Jibril Enthusiast
Mother of Jibril
Posted
Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

It's definitely too much... even without insurance, it should cost about $50 to check your TSH.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author

Thank you for the information. :)

I will definitely look into this with my Mom. If there is a discrepancy with the amount she paid, then I would hope they would be willing to give her the right tests equal to the cost of what she has already paid for.

There's still hope yet!

Just to clarify, I don't want her or my Dad just to get tested for the fun of it. She has a lot of peripheral neuropathy issues, intermittent C (which she swears is just because she eats too much dairy), arthritis and now she has developed some sort of rash on her cheeks. I don't necessarily think the rash is DH, but I have noticed that it shows up more depending on what she is eating.

Dad, on the other hand, has (I'm just gonna list his, lol):

Acid reflux

D

C

Gas/bloating

Arthritis

Thrombocythemia - he takes medication for this

Prostate Cancer - surgery

Basil Cell Carcinoma - surgery

Hernia - surgery

Scoliosis - surgery

Hemorrhoids

Diverticulitis - dx back in the early 90's

Those are just the things I can remember off the top of my head. His sister also has gluten-intolerance and is a self-diagnosed Celiac.

Anyway, they both support me, but don't want to spend the big bucks to get tested. They have a PPO and it has a high deductible, hence all this hesitation to pursue further testing. This is great information about the test being cheaper than what my Mom paid, hopefully this will be an incentive to have her get the right tests - insurance permitting (and cooperating).

curiousgeorge Rookie
curiousgeorge
Posted

I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Well, she had the tests done about 5 months ago.. So, I'm hoping they would have all come back. We put a call in to the doctor to find out if maybe she forgot to send all of the test results. At the time of the Celiac panel she also had her cholesterol checked and a couple other routine blood tests. She said that they filled 6 viles of blood. I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Thank you again, all this is really helping :)

Mother of Jibril Enthusiast
Mother of Jibril
Posted
I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

curiousgeorge Rookie
curiousgeorge
Posted

I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

It is quite possible that I had everything under the sun tested.. So, maybe she actually had the right amount. I'll have to find the results for my panel.. now I'm curious :)

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

The doctor mailed her a piece of paper that said:

"slightly low thyroid level, check in three months"

That was it. No other follow-up or further information was provided.

Yeah, I would say anything over 10 viles and you just sort of stop caring.. haha :P

curiousgeorge Rookie
curiousgeorge
Posted

Egads, she needs to follow up on the thryoid stuff. Its not something that should just be followed. I'm sure she feels HORRID.

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