Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Used Steroids While Dealing With Celiac?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Just wondering besides the normal affects of the roids did you encounter anythign specific to having celiac disease and using?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TrillumHunter Enthusiast

The tiny 'nads, uncontrollable rage and possible jail time aren't enough?

Guy, come on, I can see you are unhappy but this is a bad idea.

flourgirl Apprentice

Several years ago I was given Prednisone because I was having a terrible time with tendonitis in multiple places. At the time I had no idea what Celiac was...much less that I had it. I had a severe allergic reaction and thought I was going to die! I don't know if my reaction had anything to do with Celiac....or if it was totally unrelated....I only know that I can't have anything even closely related...and I shy away from anything at all unless it's absolutely necessary and there is no other choice.

Why is it that you are thinking about such monstrous stuff, may I ask?

chasbari Apprentice
The tiny 'nads, uncontrollable rage and possible jail time aren't enough?

Guy, come on, I can see you are unhappy but this is a bad idea.

LOL... Good answer. Personally, a number of years ago before my diagnosis, my ENT took me off all forms of steroids that my GP had been treating my respiratory ailments with as he said it was screwing up my immune system big time. Turns out he was pretty much right on as I continued to deteriorate with rheumatoid arthritis and other autoimmune problems. He also took me off all antibiotics as they were triggers for all sorts of bad reactions as well. I have been finding that I have been getting much strength back as I have stuck with paleo and begun supplementing with D3, calcium and magnesium. 4 months ago I could barely get out of a chair. Monday I did pretty heavy squats pre exhaust with heavy negative leg extensions and yesterday, just for the heck of it I tried to do some parallel dips (I have not been able to handle even negatives because of the pain and weakness in the sternum and shoulders) and found I could not only do a neg but also do a real honest to goodness dip. My body is able to tolerate work outs better every week as I heal up and am able to start getting some nutrients back into my body. Steroids are bad news for all sorts of reasons in regard to the gut and digestion, yeast overpopulation and autoimmunity. I would steer clear and use your response to exercise as a guide to finding the correct diet to allow you to heal and get stronger.. all, of course, IMHO.

Generic Apprentice

I was given steroids when I accidentally ate half a wheat pizza. Long story short, the waitress brought me the wrong pizza. I was told before hand that it was a new recipe and tasted way better. Boy did it ever! LOL. Any way the Dr. gave me 3 days worth of steroids. It prevented me from having a severe reaction. On the 4th day I had a little bit of a reaction of D but nothing like I would normally. Usually I would have ended up in the ER with severe dehydration.

They work, but I wouldn't recommend them as a long term solution.

nikki-uk Enthusiast

I think the OP meant Anabolic steroids as opposed to Corticosteroids (Prednisilone)

chasbari Apprentice
I think the OP meant Anabolic steroids as opposed to Corticosteroids (Prednisilone)

I think so as well. If the corticosteroids are bad for you the anabolics will be even worse. I used to have to talk young trainees out of trying to take the easy way out because the side effects of them were so bad. Hard to reason with seemingly indestructible youth at times, especially when they see a friend get all the apparent results with the same or even less effort. If it is something that you can talk to your medical team about incorporating for whatever reasons you might find legitimate ..then again, you only can determine how useful medical advice has been thus far. I am finding that, as I learn to regulate and manage my celiac (and by extension my RA and Sjogrens) I am getting my strength back. I used to train to create as much natural mass as I reasonably could without drug intervention. I am finding that my body prioritizes healing over strength. If I am having a good spell with diet and overall gut healing, I respond well to workouts. If my diet is compromised and I get glutened I get weak very quickly. The body sends the resources to where it is needed most and I still am not getting all the nutrients from my food. Is seeking out results that are beyond your present health status a way of bailing? I don't. I miss what I can't have but I am learning to seek that which I can have a positive influence upon. It took time for me to get there. I hope you figure out what is right in this regard. I personally would not touch the 'Roids.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.