Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Used Steroids While Dealing With Celiac?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Just wondering besides the normal affects of the roids did you encounter anythign specific to having celiac disease and using?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TrillumHunter Enthusiast

The tiny 'nads, uncontrollable rage and possible jail time aren't enough?

Guy, come on, I can see you are unhappy but this is a bad idea.

flourgirl Apprentice

Several years ago I was given Prednisone because I was having a terrible time with tendonitis in multiple places. At the time I had no idea what Celiac was...much less that I had it. I had a severe allergic reaction and thought I was going to die! I don't know if my reaction had anything to do with Celiac....or if it was totally unrelated....I only know that I can't have anything even closely related...and I shy away from anything at all unless it's absolutely necessary and there is no other choice.

Why is it that you are thinking about such monstrous stuff, may I ask?

chasbari Apprentice
The tiny 'nads, uncontrollable rage and possible jail time aren't enough?

Guy, come on, I can see you are unhappy but this is a bad idea.

LOL... Good answer. Personally, a number of years ago before my diagnosis, my ENT took me off all forms of steroids that my GP had been treating my respiratory ailments with as he said it was screwing up my immune system big time. Turns out he was pretty much right on as I continued to deteriorate with rheumatoid arthritis and other autoimmune problems. He also took me off all antibiotics as they were triggers for all sorts of bad reactions as well. I have been finding that I have been getting much strength back as I have stuck with paleo and begun supplementing with D3, calcium and magnesium. 4 months ago I could barely get out of a chair. Monday I did pretty heavy squats pre exhaust with heavy negative leg extensions and yesterday, just for the heck of it I tried to do some parallel dips (I have not been able to handle even negatives because of the pain and weakness in the sternum and shoulders) and found I could not only do a neg but also do a real honest to goodness dip. My body is able to tolerate work outs better every week as I heal up and am able to start getting some nutrients back into my body. Steroids are bad news for all sorts of reasons in regard to the gut and digestion, yeast overpopulation and autoimmunity. I would steer clear and use your response to exercise as a guide to finding the correct diet to allow you to heal and get stronger.. all, of course, IMHO.

Generic Apprentice

I was given steroids when I accidentally ate half a wheat pizza. Long story short, the waitress brought me the wrong pizza. I was told before hand that it was a new recipe and tasted way better. Boy did it ever! LOL. Any way the Dr. gave me 3 days worth of steroids. It prevented me from having a severe reaction. On the 4th day I had a little bit of a reaction of D but nothing like I would normally. Usually I would have ended up in the ER with severe dehydration.

They work, but I wouldn't recommend them as a long term solution.

nikki-uk Enthusiast

I think the OP meant Anabolic steroids as opposed to Corticosteroids (Prednisilone)

chasbari Apprentice
I think the OP meant Anabolic steroids as opposed to Corticosteroids (Prednisilone)

I think so as well. If the corticosteroids are bad for you the anabolics will be even worse. I used to have to talk young trainees out of trying to take the easy way out because the side effects of them were so bad. Hard to reason with seemingly indestructible youth at times, especially when they see a friend get all the apparent results with the same or even less effort. If it is something that you can talk to your medical team about incorporating for whatever reasons you might find legitimate ..then again, you only can determine how useful medical advice has been thus far. I am finding that, as I learn to regulate and manage my celiac (and by extension my RA and Sjogrens) I am getting my strength back. I used to train to create as much natural mass as I reasonably could without drug intervention. I am finding that my body prioritizes healing over strength. If I am having a good spell with diet and overall gut healing, I respond well to workouts. If my diet is compromised and I get glutened I get weak very quickly. The body sends the resources to where it is needed most and I still am not getting all the nutrients from my food. Is seeking out results that are beyond your present health status a way of bailing? I don't. I miss what I can't have but I am learning to seek that which I can have a positive influence upon. It took time for me to get there. I hope you figure out what is right in this regard. I personally would not touch the 'Roids.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.