Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Wish I Knew Then What I Know Now

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

I can't believe how ignorant i was years ago before i developed all my problems. Seriously, I truly believe everything that happened to me couldve been prevented if i just took the right steps. instead of allowing my body to fully recover from a Giardia infection i jumped right back in to eating dairy, wheat, alcohol etc and my body couldnt handle it, so it collapsed. if i new about antiparasitic formulas i wouldve taken them on my river trip and wouldve never gotten ill. i beat myself up over this on a daily basis and have been for 7 years. i have fantasies of going back in time and writing a letter to myself with all of this information. i just cant get past it and after all this time still have difficult accepting my condition and just cant move forward..i feel it everywhere I go and every situation im in so i get no satisfaction out of life anymore. Only time i briefly escape is when i get some alcohol in me, but i shouldnt even be drinking

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


curlyfries Contributor
curlyfries
Posted

Looks like you're spending an awful lot of energy on shoulda, woulda, couldas. Energy that would be put to better use trying to live your life to the fullest. Because tomorrow you will waste your time regretting what you didn't do today.

I know it's difficult when you have multiple intolerances and still don't have all your issues figured out. And it's OK to get down about it from time to time. We've all been there. But then you pull yourself up, brush yourself off, and keep trying. You know you shouldn't be drinking, but you do it anyway. You know that's not going to make you feel better in the long run. If you want your life to get better, you've got to act like it........DO something about it besides pout. Sorry that sounds harsh but if you keep this up, years from now you will regret that you didn't try harder today.

Quit beating yourself up and fight for yourself...not against yourself. I have to wonder if it's more than your health that has you down.

What would you do if you got a letter from yourself from the future, telling you to get off your arse and start living and quit ruining the future that you could have???

jasonD2 Experienced
jasonD2
Posted
  • Author

i know you're right- and to be honest there are other things that have me down in the dumps. main thing is my social life...can't find a good woman and my dietary restrictions have also turned me into a bit of a recluse

curlyfries Contributor
curlyfries
Posted

Sounds like you don't like yourself much, so you can't expect anyone else to be attracted to you. First order of business is to accept yourself as you are and figure out how you're going to work around your food issues. Try to find activities you can get involved in that don't revolve around food. There's more to you and more to life than what you eat......or don't eat :P

Crystal Brown Rookie
Crystal Brown
Posted

Curlyfries, is definitely right.. The pity parties are okay, occasionally, but you have to know when to pull yourself up and out. I went through the recluse stage too - it is friggin hard to socialize!! You know what though? You just have to figure out what will work best for you in a social setting. I know, it's the whole - well I don't wanna have to put that much thought into it and I don't wanna.... The question you have to ask yourself is, how long do you wanna be a recluse? Unless the UPS sends your soul mate to your house, it looks like you're gonna have to get out and about :)

May I ask what your age range is?

Also, what are some of your core concerns about the social scene?

You will have days where you're going to feel like a complete poop, but you have to know that underneath you're solid gold and worth the fight.

one more mile Contributor
one more mile
Posted

I need pity parties sometimes also, today get down and roll in the mud for a while If I really need to, but only for a day and a half. Then I take a long shower and get on with life.

I needed to get as sick as I got to be willing to commit to healing my self. Many of the people that saw me suffer for years are now looking at their diet also. It feels good that my suffering is helping others.

Could you be an Alcoholic? Only you can answer that but a desire to drink when it harms you is a symptom.

If you have questions email me at Seekerk@msn.com.

One more mile

PS my 88 year old grandmother is now working on cutting back gluten. She now realizes that it is the two pieces of toast in the morning that give her gass.

flourgirl Apprentice
flourgirl
Posted

I have to put my 2 cents in too. You mention wanting to find a "good woman". You will not find her in the bottle. You will not find the life you desire there either. That little bottle will suck your very life and soul out of you, and then rip your body to shreds. A woman who is just the kind who could help you to build that fulfilling, wonderful life will not be the kind to compete with that bottle, or stand by watching you be destroyed. The choice is yours. Harsh reality...but I know what I'm talking about. It's time for your wake up call....and it can only come from you. Make your choices and go for it! I wish you luck and a happy journey

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,621
    • Most Online (within 30 mins)
      7,748
    kalderdice
    Newest Member
    kalderdice
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free."
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.