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Bothered By Article


Roda

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Roda Rising Star

I stumbled across this website researching gluten intolerance, celiac disease and seasonal allergies. I take a more scientific approach to things, but I don't discount natural healing either. I was a bit disturbed by the information in this article about celiac however.

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"Can Gluten Intolerance, Wheat, and Celiac Disease Benefit from BIE?

Yes, wheat, and other gluten foods can be tested. You can be desensitized to these with BIE and enjoy wheat or gluten based foods in your diet again without ill effects! Even people with celiac disease can find allergy relief with BIE and enjoy foods containing glutens."


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still tiredofdoctors Rookie

oooooohhhhhh -- BAD article!

I don't discount natural medicine, either -- in fact, in addition to a massive complex of antibiotics for Lyme & other tick-borne diseases, I am taking a rather full "cocktail" of natural supplements, as well.

These folks, however, seem to have discounted the fact that Celiac Disease is just that -- a DISEASE -- and namely an autoimmune disease. I have yet to read any valid scientific studies that indicate that once you have sero-converted to "Celiac" from "sensitive", there is any realistic chance of "desensitization". Actually, I haven't read any convincing studies to indicate that even gluten sensitive individuals have much chance of desensitization.

Hopefully, people who are drawn to their advertisement will invest in thorough research and decide against that option.

mimommy Contributor

This is exactly what it looks like--a marketing ploy. I know, because I was employed in the field by a doctor who had invented an implant that he claimed would cure everything from foot pain to TMJ. The terminology is the red flag..."Cutting edge"!? The CEO/person at the top of the company or group making those claims about being able to "enjoy" gluten w/out ill effects should be prepared to be sued in the future. I think that although most of us are educated enough to see through that kind of false and unethical advertising, unfortunately some (many) are lured in. When it comes to our health, the consequences of taking risks based on unproven claims can be devastating and very costly. Do those people responsible for that even have any idea what celiac disease is? Probably not, as they are likely a bunch of marketing, PR, and sales people who never recieved any medical training whatsoever (outside of the doctor {if there is one} trademarking the brand). Again, I know, because I have been there--my only medical training was some beginner med. terminololgy and and adult ed. training in med. office asst.

Anyway--buyer beware!! It is your health, not their pocket books that matter!

caek-is-a-lie Explorer

I agree. It sounds like they treat Celiac like a classic allergy, which you can be desensitized to. But that just doesn't work for autoimmune disorders.

I once met a naturopath (not my Dr.) that said I should really focus not on controlling my narcolepsy symptoms, but on the hope that I could actually make them go away for good. I just laughed and thought "lady, if you could cure narcolepsy, you'd with the friggin' Nobel Prize." I believe I have permanent brain damage from my gluten intolerance and nothing short of stem cell research is going to fix that. Period. I may be able to keep the symptoms at bay by avoiding gluten, but ... cure? pffft.

Jestgar Rising Star

It looks like an ad, not an article.

Roda Rising Star
It looks like an ad, not an article.

If you navigate theis person's website it really gets more disturbing. It is unfortunate that people can believe this bunk especially when they are at their most vulnerable. Thank goodness for places like this that can help educate and inform.

Takala Enthusiast

And the purveyor is supposed to be a Registered Nurse (from Canada.)

Link:

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Training and Credentials

Graduated with a Nursing Diploma (RN) from the Royal Alexandra Hospital School of Nursing in Edmonton, Alberta, 1977.

Graduated with a Registered Holistic Allergist (RhA) diploma in 2006 from The Institute of Natural Health Technologies in Oakville, Ontario.

Outrageous. Does she still have a license ?


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    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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