Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lab Results - Please Help


KarenFe

Recommended Posts

KarenFe Contributor

Please help me figure out what my lab results mean. The nurse I have been talking too seems out of her element and recommended I call the Semper Fit number or the Diabetes number for help on what my diet should be. I'm dealing with the military system and this is how things go. She also told me I have celiacs because some test said my results were "active." From what I gather, a determination of true celiacs can only be made by some GI testing.

My IgG is 38 and my IgA is above 100.

Today I got my food allergy results and I am in the low range (0.00 - 0.35) of having a food allergy to:

soy

bean

egg white

egg yolk

peanut

pecan

walnut

cashew

almonds

wheat

milk

If I'm in the "low" range, does this mean I can have them sometimes?

What confuses me too is that if I have a "low" allergy to wheat, then why would celiacs be a big possibility.

I'm so confused and can't wait to get out of this confusion and panic state I'm in.

Thanks for your thoughts,

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

It's hard to know without the specific tests they did. Hopefully, they did the complete celiac panel. If you could get the actual results to the tests, that would be very helpful. But, if your doctors are saying celiac because of your blood work, they are probably right. There's not much incidence of false positives. You should still get a copy of your blood work.

As far as the allergy vs. celiac, they are two completely different things. BUT, you can have celiac, AND be allergic to wheat. (Which is what it appears to be in your case.) However, just because you have one doesn't mean you have the other.

KarenFe Contributor

Thank you! I appreciate the answers to my most basic questions. I know answering newbie questions can become redundant to those of you who have been here a while and i appreciate your time in answering. :)

I think I get it. An allergy to wheat has nothing to do with the possibility that gluten could be destroying my intestines. As for having a low allergy, does that mean I can sometimes have milk and sometimes have eggs, etc? My girls have low allergies to almonds but I let them have some on occasion in low quantities. Peanuts, walnuts, and pecans are a different story for them.

Thanks!

Karen

lizard00 Enthusiast
Thank you! I appreciate the answers to my most basic questions. I know answering newbie questions can become redundant to those of you who have been here a while and i appreciate your time in answering. :)

No problem ;) That's why I stay around here. I had the very same questions and many of the people that are still here helped me out, and I am happy to pass on anything that I know.

I think I get it. An allergy to wheat has nothing to do with the possibility that gluten could be destroying my intestines. As for having a low allergy, does that mean I can sometimes have milk and sometimes have eggs, etc? My girls have low allergies to almonds but I let them have some on occasion in low quantities. Peanuts, walnuts, and pecans are a different story for them.

I am mildly allergic to egg whites, so I rarely eat eggs. However, I can eat them in something if they are down on the list of ingredients. I eat eggs occasionally, but my personal thought is that my body is allergic to them, and if I eat them too often, then my immune system is constantly on alert and being overworked. I probably shouldn't eat them at all, but once or twice a year I really want eggs and bacon. :ph34r:

ravenwoodglass Mentor

Welcome, you found a great place to learn what you need to. It can be hard at first but you will get the hang of it.

As far as the allergies go you may see a resolution of some of the allergies once you have been gluten free for a while. I was diagnosed with the aid of an allergist who did skin testing before putting me on the elimation diet. I showed at least mild reactions to everything but one tested for out of the ninety- nine. My allergist said my immune system was in hyperdrive, kind of obvious I guess from all the autoimmune stuff I had going on. Out of the 98 positives within 6 months only 3 real allergies remained. Can't say the same will be true for you.

I would be cautious with adding your allergins back in. Do them one at a time so if you do react it will be easier to tell what you are reacting to.

If you have celiac and you are active duty and not a spouse make sure your command knows as they can not safely feed you in the field. They don't yet make gluten free MREs.

KarenFe Contributor
If you have celiac and you are active duty and not a spouse make sure your command knows as they can not safely feed you in the field. They don't yet make gluten free MREs.

Oh, no. I am the spouse. My husband is the Marine.

Thanks again everyone! I will be eliminating all the allergens too. I really appreciate the comments and support. :)

curiousgeorge Rookie

What kind of allergy testing was that? IgG or RAST?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KarenFe Contributor
What kind of allergy testing was that? IgG or RAST?

I don't know. What would the difference between the two tests mean?

curiousgeorge Rookie

RAST measures IgE, the same that skin prick testing measures. It is usually used to back up positive skin prick testing

I was just curious.

nora-n Rookie

I had IgG testing (private) to more than 100 foodstuffs.

IgG is kinda in between allergy and intolerance and autoimmunity, don't know how to explain it.

I children they use IgE testing for true allergies, and in adults they use RAST.

IgE is immediate allergy, IgG for foodstuffs is delayed allergy they say.

( I had high IgG for yeast and then there was less for kiwi and molluscs and the lowest level for green beans and something else, don't remember. I eat greeen beans sometimes, maybe a couple of times a year, but I do not notice much adverse.)

Celiac tests are usually IgA type tests, and the names can be antigliadin, EMA and tisue transglutaminase. Total IgA must be measured too, to see if you make enough IgA for the tests to be valid.

nora

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      TTG IgA and IGA elevated mildy

    2. - HilaryM posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      New onset constant gas

    3. - knitty kitty replied to Bindi's topic in Super Sensitive People
      43

      Refractory or super sensitive?

    4. - lizzie42 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Gluten free and oat free bars not sugary?

    5. - knitty kitty replied to MagsM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Inflammation and Menier’s disease link?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,769
    • Most Online (within 30 mins)
      7,748

    Francie Bailey
    Newest Member
    Francie Bailey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • thejayland10
      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening  thank you for attaching this, could this happen randomly even after being gluten-free for so long ? my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening 
    • HilaryM
      Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel like I have zero control over this. Any ideas? Thank you!
    • knitty kitty
      @Levi, How are you doing?  Sorry I missed your posts.   How's your thyroid?  Did your Vitamin D stabilize?  Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D.  Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form.  Also, Thiamine is needed to active Vitamin D.   Hypothyroidism can be caused by Thiamine deficiency.  The thyroid is an organ that uses lots of thiamine.  sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured.  We need more Thiamine when we're physically active.  We need more Thiamine when we're emotionally stressed or worried.  Our brain uses the more Thiamine just thinking than our muscles do while running a marathon.  Thiamine is extremely important in fighting infections.  Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms.   Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing.  Damaged villi need thiamine to grow back.   Be sure to take a magnesium supplement, too.  Thiamine and magnesium make life sustaining enzymes together.  You also need magnesium to keep calcium in the bones.  The thyroid regulates calcium.  A wonky thyroid can lead to reduced bone density.   Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste
    • lizzie42
      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
    • knitty kitty
      Oh, @MagsM, Sorry you had that happen with Niacin.  500mg is the maximum amount of Niacin one should take.  Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time.  All the B vitamins work together in concert.  Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol.  Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori?  An infection by H. Pylori can be tested for by your doctor.  H. Pylori can cause low tTg IgA results, too.   I would hold off on the microbiome test for now.  Your microbiome is going to change when you go gluten free.  Your microbiome will change when you start taking Thiamine.  Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones.  Thiamine in the form Benfothiamine promotes intestinal healing, too.  Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome.  This is the best diet to heal and recover, IMO.   If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results.  Same thing will happen if you take B vitamin shots.  The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins.  There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex.  All the B vitamins work together in concert.  Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together.  Do not buy supplements containing Thiamine Mononitrate because it is not biologically active.  It is very hard for the body to utilize.  Most of it (70%) passes out unused.    Yes, my Meniere's disease has not returned.  I was deficient in Vitamin D.  I took high doses of Vitamin D 3 to correct the deficiency quickly.  I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine.  TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily.  TTFD helps the Vagus nerve function.  The Vagus nerve regulates the ears and balance, and also the digestive system.  I like Allithiamine by Ecological Formulas.  I also like Thiamax by Objective Nutrients.  You should have improvements within a hour with TTFD.  TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg).   I hope this helps give you some direction to take on your journey!
×
×
  • Create New...