Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iga Testing Anyone Had It Done?

glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast
glutenfreegirl
Posted

Hi there

I am hoping to get some opinions from this board

My NP/ND suggested a bowel test through a lab in the states that she feels is very compitent at picking up IGa proteins in your BM's I had my blood work celiac testing come back negative which she was not surprised as she feels there are many false negatives unless you are a bad case of celiac she said it will not pick up gluten issues..

Then i had an IGG blood test run and it too came back no issues with gluten foods and I am sure there is a problem so when I went to this new ND she ran a organ test on all grains at my request and you guessed it all stressers on my organ points,,,finally I am not crazy so that is when she suggested this poop analasys shall we call it :unsure:

because she said they can detect if the gluten protein is in your intestinla wall even though it is not being picked up via blood work...

Has anyone heard of this test? would you recomend it? or have you had it done with good/bad results?

thanks in advance for any advice it is very appreciated

Hugs to all

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

That sounds like Enterolab testing. Many here have had it done and found it to be a good tool in the diagnosis process. It is not considered to be diagnostic of celiac by most physicans. It can however tell you if you are making antibodies and can also be done for soy, casien, egg and yeast. I didn't use it to see about gluten but I did do testing 5 years after my celiac diagnosis to look for other intolerances and get my gene panel done.

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author
That sounds like Enterolab testing. Many here have had it done and found it to be a good tool in the diagnosis process. It is not considered to be diagnostic of celiac by most physicans. It can however tell you if you are making antibodies and can also be done for soy, casien, egg and yeast. I didn't use it to see about gluten but I did do testing 5 years after my celiac diagnosis to look for other intolerances and get my gene panel done.

Hi yes that is the name she gave me....

what would this test tell me exactilly sorry I am new to all of this and a little confused ;)

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author
Hi yes that is the name she gave me....

what would this test tell me exactilly sorry I am new to all of this and a little confused ;)

went through all this testing over the last 6months or so was told all was good so continued on gluten and continue to have other symptoms that keep leadingme back to gluten low b12, no calcium, iron, dark circles under eys, sore joints,UTI;s adrenaline rushes, dehydration I cannot seem to rid and out of now where oh and the newest one flutuating BP after all of this I am back looking for more answers I know it is somethig I am missing and I beleive it might be this....phew I am glad i have a place like this to find answers..

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi yes that is the name she gave me....

what would this test tell me exactilly sorry I am new to all of this and a little confused ;)

The test would tell you whether you are making antibodies to gluten. If you are making antibodies to a substance that is because your body considers it to be toxic to you.

Don't worry about being a bit confused, celiac is a confusing disorder with a myriad of symptoms. You have a very wise practioner to want to use all avenues of diagnostic testing available.

ravenwoodglass Mentor
ravenwoodglass
Posted
went through all this testing over the last 6months or so was told all was good so continued on gluten and continue to have other symptoms that keep leadingme back to gluten low b12, no calcium, iron, dark circles under eys, sore joints,UTI;s adrenaline rushes, dehydration I cannot seem to rid and out of now where oh and the newest one flutuating BP after all of this I am back looking for more answers I know it is somethig I am missing and I beleive it might be this....phew I am glad i have a place like this to find answers..

I am glad you found us also. You do sound very much like you could be one of us. I hope you have some answers and start healing soon.

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author
I am glad you found us also. You do sound very much like you could be one of us. I hope you have some answers and start healing soon.

Thank you Ravenwoodglass

your words are very comforting I go for my entrolab testing sat and am very excited to see what the results will be....hopefull another piece to this great journey I am on to the best health I can have....it feels great

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    2. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    3. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    4. trents
      - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the...
    5. RMJ
      - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      Is it gluten?

      By trents · Posted

      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      nothing has changed

      By RMJ · Posted

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.