whitelacegal 0 Posted March 24, 2005 Report This Post (To report rule violations to admin) Share Posted March 24, 2005 Why is it that the doctors dont want to try me on dapsone, i had Celiac confirmed by biopsy and continue to get sores( blisters) on my back often, i ask the doc to try me on this but he said he dont know enough about dapsone ( MY MD), what do i have to do to get them to try this??? Link to post Share on other sites
KaitiUSA 9 Posted March 24, 2005 Report This Post (To report rule violations to admin) Share Posted March 24, 2005 Have you had a biopsy done on the blisters to see if it is DH? Some doctors I think require that even if you have been diagnosed with celiac disease. I don't know why he would do that though I mean it sounds likeDH so much to me and you are a celiac to me its a nobrainer. Have you had a second opinion? And does your doctor know alot about celiac? Kaiti Positive bloodwork Gluten-free since January 2004 Arkansas Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future" "One Nation, Under God" Feel free to email me anytime....jkbrodbent@yahoo.com Link to post Share on other sites
judy05 0 Posted March 25, 2005 Report This Post (To report rule violations to admin) Share Posted March 25, 2005 Hi, Dapsone has a lot of side effects. Docs don't like to prescribe it because of that. If they do it is only for a very limited time. The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller Judy- Gluten Intolerant Link to post Share on other sites
lovegrov 151 Posted March 25, 2005 Report This Post (To report rule violations to admin) Share Posted March 25, 2005 Dapsone CAN have side effects but the most serious ones are extremely rare and are easy to monitor. They are also reversible. I took dapsone for more than 20 years and my father took it for 30 years with no appreciable side effects. Going gluten-free is better, mind you, but I didn't know the celiac disease connection until I got real sick. I see no reason for a doctor to refuse to prescribe dapsone until the diet takes effect. richard Link to post Share on other sites
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