Child's Test Results...

[Irishlass]

My 10yo was tested 3 years ago for celiac. The tests were negative, but she improved afterwards on a gluten-free diet. Some other members of our family have been diagnosed celiac with positive tests since then and we've decided to get dd retested, and our other children tested as well. We've put her back on gluten to retest. It's been 3 weeks now and she feels horrid.

I wanted to get y'all's opinion on the test results from her 1st round of testing. The IgA is def negative- but the IgG and tTg, while negative, still look high to me- remember these are from when she was 7. It's interesting that she was also very neutropenic, and the dr had us come back every 2 weeks to check those levels. After being off gluten a month, her neutropenia was resolved. I just read the other day that celiac can have such an effect on the immune system.

In any case, here are her test results from 3 years ago:

Antigliadin Abs, IgA Result: 1 Limits: 0-4 Positive: >4 Negative Result

Antigliadin Abs, IgG Result: 6 Limits: 0-9 Positive: >9 Negative Result

tTg IgA Result: 1 Limits: 0-3 Weak Positive: 4-10 Positive: >10 Negative Result

tTg IgG Result: 1 Limits: 0-5 Weak Positive: 6-9 Positive: >9 Negative Result

Endomysial Antibody IgA Immunoglobulin A, Qn, Serum Result: 132 Limits: 32-305 Positive>305 Negative Result

Anyone have any insight? Much appreciated!!!!!!

[ravenwoodglass]

I think what is more telling than any blood test could be is her reaction to adding gluten back in. Hopefully when you are done with testing her she will go back to gluten free.

[Irishlass]

I think what is more telling than any blood test could be is her reaction to adding gluten back in. Hopefully when you are done with testing her she will go back to gluten free.

Oh, that's a definite, even if we don't get a positive test- all of her symptoms have returned except joint pain, and I expect that soon. Her symptoms are even worse this time around. They are: headaches, fluid in her ears (so bad she can't hear anything), tightness in her chest breathing (having to use asthma inhaler), stomach discomfort, occasional vomiting. keratosis pilaris rash back with a vengeance (she had it from birth and had completely cleared off of gluten), frequent waking at night. I'm sure I'm missing something, but I can't think of what it is.

[ravenwoodglass]

Oh, that's a definite, even if we don't get a positive test- all of her symptoms have returned except joint pain, and I expect that soon. Her symptoms are even worse this time around. They are: headaches, fluid in her ears (so bad she can't hear anything), tightness in her chest breathing (having to use asthma inhaler), stomach discomfort, occasional vomiting. keratosis pilaris rash back with a vengeance (she had it from birth and had completely cleared off of gluten), frequent waking at night. I'm sure I'm missing something, but I can't think of what it is.

Have you contacted her doctor and told them how severe her reaction is? You should do so if you haven't as some doctors will stop the challenge and diagnose her. I hate to think of her suffering so for 3 months is she doesn't have to.