Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Sick


Megan H

Recommended Posts

Megan H Newbie

Hi There,

I am 29 years old I have been sick my whole life... catching every cold, flu etc. and suffering from illnesses such as chronic sinusitis and chronic migraines. When I was diagnosed with Celiac I was told that my immune system was compromised because of the celiac. I have been on a fairly strict gluten free diet for the last 5 years... but I am still sick all the time! I get EVERYTHING coming and going! Colds, flues etc. I am ALWAYS sick! My question is does Celiac and other auto immune diseases effect your immune system and make you more suseptable to viruses etc.

Anyone else have the same experiences?

Thanks,

Megan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



024Mandy Newbie
Hi There,

I am 29 years old I have been sick my whole life... catching every cold, flu etc. and suffering from illnesses such as chronic sinusitis and chronic migraines. When I was diagnosed with Celiac I was told that my immune system was compromised because of the celiac. I have been on a fairly strict gluten free diet for the last 5 years... but I am still sick all the time! I get EVERYTHING coming and going! Colds, flues etc. I am ALWAYS sick! My question is does Celiac and other auto immune diseases effect your immune system and make you more suseptable to viruses etc.

Anyone else have the same experiences?

Thanks,

Megan

I'm 19 I am sick all the time aswell. I get a cold about every 2 months, sometimes more often. Did you know that if you are diagnosed with celiac you are a candidate for the flu shot? you will get it for free! ( at least you do in canda)

Mandy

elonwy Enthusiast

I have the same thing, chronic sinusitis and tonsilitus, catch every cold, etc. I got allergy testing done, and it turns out I'm highly allergic to dust mites, cockroaches and juniper pollen. My colds and sinusitis were being caused by my nose being constantly inflamed, the same with my throat and tonsils.

I'm now on a new allergy med called zyzal and am getting allergy shots and haven't had a cold or a bout of bad sinusitis in months. It might be worth talking to your ENT about whether or not its being caused by/ exacerabated by allergies. Its completely changed my life.

YoloGx Rookie

I used to be sick constantly but don't any longer unless I get CC'd. I had to go off all trace glutens to turn my health around--not just part of the time off gluten. I have had to be a detective sleuth to get rid of all the gluten and still find additional sources even in building materials (I help renovate old houses). But it is definitely worth it to me to be healthy overall and actually not get the colds and flues everyone else is getting. I used to always have them at least 3 or 4 times longer than anyone else.

Another major help has been for me to take co-enzyme B complex every day (on an empty stomach) as well as vitamin D (cod liver oil) and vitamins C and E and minerals with my meals.

Plus for me its important to avoid all sugar and other things I am allergic or sensitive to. I find when I really am under it if I eat more of a cave man diet I do much better faster. Thus no grains and usually no dairy. Instead I focus on eating a lot of vegetables with some squash and a little boiled chicken.

In addition I have found exercise, saunas, deep breathing, yoga all help immensely. Its not a one time thing, its a way of life.

I am also a strong believer in herbs. Occasionally I try some that help clean out my lymphs and liver, like echinacea or cleavers for the lymphs and dandelion root or milk thistle for the liver. I find Yellow dock or Oregon Grape Root are good to take now and then as a general good thing for intestinal health (I dont take these last two if I am having D however, since they are mildly laxative--they encourage peristalsis by helping the release of bile).

I have found that Marshmallow Root and Slippery Elm help hugely to take down inflammation in the intestines and heal the villi, thus helping get rid of this whole problem at the root. In old Europe they gave these herbs to people who had "wasting disease"., i.e., celiac.

Hope this helps!

Bea

wild fisher Rookie
Hi There,

I am 29 years old I have been sick my whole life... catching every cold, flu etc. and suffering from illnesses such as chronic sinusitis and chronic migraines. When I was diagnosed with Celiac I was told that my immune system was compromised because of the celiac. I have been on a fairly strict gluten free diet for the last 5 years... but I am still sick all the time! I get EVERYTHING coming and going! Colds, flues etc. I am ALWAYS sick! My question is does Celiac and other auto immune diseases effect your immune system and make you more suseptable to viruses etc.

Anyone else have the same experiences?

Thanks,

Megan

I don't usually get colds or the flu but I feel sick almost every other week. Mostly i feel nausiated and real tired. No i'm not PG :) I wish i had the energy i used to have.

ravenwoodglass Mentor
I used to be sick constantly but don't any longer unless I get CC'd. I had to go off all trace glutens to turn my health around--not just part of the time off gluten. I have had to be a detective sleuth to get rid of all the gluten and still find additional sources even in building materials (I help renovate old houses). But it is definitely worth it to me to be healthy overall and actually not get the colds and flues everyone else is getting. I used to always have them at least 3 or 4 times longer than anyone else.

Bea

This is me too. Anytime I did catch something it would also always progress to pneumonia or broncitis. Others would be sick for a week I would be sick for 2 months. I think my body was so busy attacking me with the antibody reaction it was dealing with from the celiac that it had little chance to deal with the 'bugs' that go around. My allergist called it 'my immune system on hyperdrive'. I haven't caught a cold or flu now in a very long time. I literally can't remember when. I do make it a practice to wash my hands immediately when I get home from somewhere and that may help also.

N.Justine Newbie

Untreated celiac and gluten intolerance are autoimmune disorders and thus can weaken your immune system -- making you more susceptible to colds and other illnesses.

Please check in with your medical practitioner to make sure your immune system is up to snuff and that your vitamin and mineral panels are too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie
This is me too. Anytime I did catch something it would also always progress to pneumonia or broncitis. Others would be sick for a week I would be sick for 2 months. I think my body was so busy attacking me with the antibody reaction it was dealing with from the celiac that it had little chance to deal with the 'bugs' that go around. My allergist called it 'my immune system on hyperdrive'. I haven't caught a cold or flu now in a very long time. I literally can't remember when. I do make it a practice to wash my hands immediately when I get home from somewhere and that may help also.

Washing the hands often is a great idea. I do it to avoid gluten ingestion from being out and about. I can see it would be helpful to avoid bugs too.

ang1e0251 Contributor
I don't usually get colds or the flu but I feel sick almost every other week. Mostly i feel nausiated and real tired. No i'm not PG :) I wish i had the energy i used to have.

This sounds more like CC than compromised immune system. What is your diet like?

  • 8 years later...
Arnoldsi Newbie

I suffered from severe chronic migraines with my fibromyalgia, as well as severe sinus infections and a worsening of my overall pain threshold, but since I've kept a strict organic diet they have been almost non-existent.

Most of the time I only get them after I eat something I shouldn't have. Corn, soy, and wheat are the worst (as well as all animal products since this is what they are fed, plus injected with antibiotics and growth hormones). I can get away with non-organic fruits and veggies otherwise, but everything else I have to be very careful with.

GMO corn actually has insecticide INSIDE of it, and GMO wheat is sprayed liberally with Roundup (the stuff that's killing off the honey bees). Also, don't be fooled by "Non-GMO" labels. that is NOT the same thing as organic. Farmers will tell you that there is very little difference between the chemicals they use for GMO crops and Non-GMO crops.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.