Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Deficiency


elonwy

Recommended Posts

elonwy Enthusiast

So I've been feeling kinda blah lately, tired a lot, cranky, gained some weight out of no where, having some trouble with C and some random muscle pains. The doctor did a full blood panel, including checking my thyroid, and for good measure threw in a vitamin D check. Turns out I am severely vitamin D deficient, which basically explains all of that. She also said that Celiacs tend to not absord D well, for whatever reason. She has me on 2,000 IU a day until I start feeling better.

So if you're feeling kinda icky, and there is no good reason why, might be worth checking out with your doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Thanks for the tip. It sound like me. I take D but probably not nearly enough. I'll have him run all my levels next time in.

eringopaint Newbie

When I saw my Dr last summer I was telling her about the daily bone pain I was dealing with. Terrible pain within the bones of mostly my upper body and pelvis, concentrated in my collar bone and ribs. She said it sounded like Osteomalacia so checked my Vitamin D level and it was very deficient. Due to malabsorption.

I started taking vitamin D supplements but it wasn't until I got all the traces of gluten out of my diet and my intestines started to return to some kind of normal that I felt a difference.

I am now due for a blood test to see where it is now.

Definitely get your Vitamin D level checked.

Bosque Rookie

My doctor checked me for Vit. D and mine was low too. He is giving me 50000IU of D once per week for 12 weeks and then check it again. If you have Celiac's and your D is really low, the 2000 IU may not be enough as we (Celiac's) have issues absorbing.

mushroom Proficient

My D level has been low normal for ages. Finally talked my PCP into a prescription, but it was onlly 50,000iu once a month. My rheumatologist and another of my docs (who believes low vitamin D is behind lots of stuff) said that is just a maintenance dose, you have to fill the tank up first and then keep it topped up. Rheumatologist prescribed once a week for four weeks, my other doc said once a week for three months. I will have my level checked next month. Check your folate levels too! since these are also often low in celiacs. Mine was way below the line and dropping and, together, and in combination with the methotrexate I took for a year, these gave me macrocytosis, about which there is another thread running here, meaning my blood cells were too large, and therefore I did not have enough of them, which is probably accounting for my increased breathlessness which I attributed to my COPD which I've had since I quit smoking. Gosh, it's hard to keep up with this stuff :lol: , especially when you have to do the work of your docs. If I had no medical background it would be almost impossible.

chatycady Explorer
So I've been feeling kinda blah lately, tired a lot, cranky, gained some weight out of no where, having some trouble with C and some random muscle pains. The doctor did a full blood panel, including checking my thyroid, and for good measure threw in a vitamin D check. Turns out I am severely vitamin D deficient, which basically explains all of that. She also said that Celiacs tend to not absord D well, for whatever reason. She has me on 2,000 IU a day until I start feeling better.

So if you're feeling kinda icky, and there is no good reason why, might be worth checking out with your doctor.

I would probably also ask for a bone scan too. Just to be sure you don't need more calcium etc.

NicoleAJ Enthusiast

I was also vitamin D deficient last year, and my doctor recommended the 50,000iu prescription as well, but then I spoke to my gyno, and she said that there have been mixed reviews about what those levels of vit D can do if you get pregnant while you're on them. I've been taking decent levels of vit D and calcium daily but not doing the super doses since we're going to TTC soon. I've been feeling MUCH better since bulking up on my vitamin D.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,797
    • Most Online (within 30 mins)
      7,748

    Norma athey
    Newest Member
    Norma athey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I am not sure about that brand specifically, but this article may be helpful:  
    • Scott Adams
      First, I’m so sorry you’re dealing with this—constant bloating and gas can be incredibly frustrating, especially when you’ve been so diligent with your gluten-free diet. Since nothing obvious has changed in your routine, a few possibilities come to mind: 1) Cross-contamination or hidden gluten (have you introduced new brands, eaten out more, or tried processed GF foods with questionable ingredients?), 2) New food intolerances (dairy, FODMAPs, or even GF grains like corn/rice can sometimes cause issues over time), 3) Gut dysbiosis (an imbalance in gut bacteria, possibly triggered by stress, antibiotics, or diet shifts), or 4) Non-celiac triggers (like SIBO or fructose malabsorption). You may also want to take choline supplements, as this helps some people. It might help to keep a detailed food/symptom log and try an elimination diet (e.g., cutting dairy or high-FODMAP foods temporarily). Probiotics or digestive enzymes could also offer relief while you investigate.
    • Scott Adams
      Finding gluten-free and oat-free bars that aren’t overly sugary can be tricky, but there are some great options out there! For your little adventurers, consider GoMacro Kids bars (many are GF/oat-free and lower in sugar), 88 Acres Seed Bars (sweetened lightly with fruit), or The Good Crisp Company’s protein bars (grain-free and not too sweet). For homemade ideas, try simple nut/seed bars with dates, almond butter, and chia—no baking needed! Packaged snacks like Chomps meat sticks, Simple Mills almond flour crackers, or seaweed snacks also work well for hikes. If they like savory, roasted chickpeas or lupini beans are protein-packed and easy to carry. Hope this helps—happy trails!
    • Scott Adams
      Using anti-inflammatories for symptom management after inadvertent gluten exposure can be a helpful short-term strategy, particularly for reducing discomfort like inflammation, pain, or swelling. However, it shouldn’t replace strict adherence to a gluten-free diet as the primary treatment for conditions like celiac disease or gluten sensitivity. While NSAIDs (e.g., ibuprofen) or natural anti-inflammatories (e.g., turmeric) may provide relief, they don’t address the underlying immune response or intestinal damage caused by gluten. Additionally, long-term or frequent use of NSAIDs carries risks, such as gastrointestinal irritation. It’s best to consult a healthcare provider to tailor an individualized plan, which may include digestive enzymes, hydration, rest, and probiotics alongside anti-inflammatories when needed. This article, and the comments below it, may be helpful:    
    • Russ H
      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
×
×
  • Create New...