Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying Out Gluten Free


beanpot

Recommended Posts

beanpot Apprentice

Okay so after obsessively reading this forum for a week I've decided to post. I don't know if I have celiac or gluten intolerance but I've decided to try the diet to see if I feel better. I've been diagnosed with IBS C, and have tested negative on tTg tests in the past, MD didn't do the whole panel just the tTg. The C is not so much a frequency issue as small, hard to pass stools. I do everything right - fiber, water, exercise, nothing helps not even stool softeners or fiber (allergic to psyllium). I also have a history of anemia, less so now, and depression/anxiety. On allergy scratch tests I react to wheat, casein and too many other things!

I've gone on a wheat free diet before during hay fever season because it helps with nasal allergies. This past year my aunt went on a gluten free diet, and years ago my grandmother had Celiac disease and almost died of malnutrition before they figured out what it was.

I've been gluten-lite for about 5 days, and while the bloating and gas is reduced, I still have stubborn constipation. Has anyone had experience with chronic, stubborn constipation? And how do you get enough fiber on this diet?

Sorry for TMI!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

You are going to have to go completely gluten-free to know if the diet will clear up your C. It could also be another food you are sensitive to that's adding to the problem. Many of us found after going gluten-free that other items popped us that bothered us. I've never had a problem with C until now. If I eat too many alternate grains I really get backed up.

I would say tighten up your diet and keep a food/symptom journal to pinpoint all your problem foods.

purple Community Regular

Here is a fiber link:

Open Original Shared Link

beanpot Apprentice

Amaranth sounds great! Thanks to you both!

SBisglutenfree Rookie

I've only been gluten free for a week and a half. I'm having problems with C too. I did notice that I have a stomach ache after eating corn (tortillas). It's happened twice now in the last few days and very bloated after eating broccoli (I guess that goes with the territory), but the fiber from the broccoli isn't helping with the C either. I like the idea of the food journal. You may not just be gluten sensitive, it could be other foods also.

I'm glad you asked this question; I'm looking foward to the responses.

S.

Jennifer S Newbie
Okay so after obsessively reading this forum for a week I've decided to post. I don't know if I have celiac or gluten intolerance but I've decided to try the diet to see if I feel better. I've been diagnosed with IBS C, and have tested negative on tTg tests in the past, MD didn't do the whole panel just the tTg. The C is not so much a frequency issue as small, hard to pass stools. I do everything right - fiber, water, exercise, nothing helps not even stool softeners or fiber (allergic to psyllium). I also have a history of anemia, less so now, and depression/anxiety. On allergy scratch tests I react to wheat, casein and too many other things!

I've gone on a wheat free diet before during hay fever season because it helps with nasal allergies. This past year my aunt went on a gluten free diet, and years ago my grandmother had Celiac disease and almost died of malnutrition before they figured out what it was.

I've been gluten-lite for about 5 days, and while the bloating and gas is reduced, I still have stubborn constipation. Has anyone had experience with chronic, stubborn constipation? And how do you get enough fiber on this diet?

Sorry for TMI!

I am also another new community member, and also have had a recent diagnosis of IBS!!! In addition, the celiac blood test was negative, and the doc didn't even take a darn biopsy when he could've. So I just went gluten free, very strict, and am feeling much better after almost two months now. My IBS was the opposite of yours, diarrhea not constipation, with gastritis. I have found that it's not just which foods I eat (gluten or not) but also which foods I eat with what. Specifically, I eat meat with cooked veggies, or starches with cooked veggies, and fruit on an empty stomach, by itself. It has helped enormously, and let me isolate certain foods easier to check my reaction to them. Bloating, gas, cramping is all reduced. Stress still kicks it up though. Also, a dietician reccommended Flaxseed Meal as a good source of gluten free fiber. I am trying that next.

purple Community Regular
I am also another new community member, and also have had a recent diagnosis of IBS!!! In addition, the celiac blood test was negative, and the doc didn't even take a darn biopsy when he could've. So I just went gluten free, very strict, and am feeling much better after almost two months now. My IBS was the opposite of yours, diarrhea not constipation, with gastritis. I have found that it's not just which foods I eat (gluten or not) but also which foods I eat with what. Specifically, I eat meat with cooked veggies, or starches with cooked veggies, and fruit on an empty stomach, by itself. It has helped enormously, and let me isolate certain foods easier to check my reaction to them. Bloating, gas, cramping is all reduced. Stress still kicks it up though. Also, a dietician reccommended Flaxseed Meal as a good source of gluten free fiber. I am trying that next.

Its best to buy whole flax seed and grind them as you use them. I bought a coffee grinder to grind them up and it works great. I try to put a spoonful or 2, ground, in everything I make if I can remember...bread, cookies, muffins, casseroles, waffles, pizza crust, cakes, etc.

If eating whole flax seed, be sure to chew each one. I keep them in the freezer and a few in a shaker jar to sprinkle on green salads. I call them "BUGS" :lol:

found a good link:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

For those looking for more fiber, besides amaranth, there's Kasha (roasted buckwheat), teff, and of course coconut. Ordinary green pea soup is actually pretty high in fiber too.

Aside from the fiber, many find supplementing magnesium very helpful. It is nature's stool softener.

beanpot Apprentice

Thanks for all these great suggestions!

I will start a food journal today. It has been one week, I am trying to go strictly gluten free for 2 months, until the end of May and then re-assess. The only thing I'm not paying major attention to right now is cross-contamination. So far, my digestion feels better, and my allergies are a lot better. That's worth the trouble right there!

I've found that doctors are super-reluctant to do a biopsy for celiac. I had major stomach pain in my 20's, and they ruled out everything but celiac because they didn't want to do an invasive test even with my family history. The doctor said it was just stress. It may have been.

And for that past 10 years, my GP just keeps doing the celiac blood tests even with the possibility of false negatives, and listens to me complain about the same symptoms year after year. I don't want to constantly be taking laxatives. Fiber doesn't seem to work. And I am not taking other things that I should, like calcium, because I don't want to worsen the C.

Thanks for letting me complain!

ang1e0251 Contributor

I've only been gluten free for a week and a half. I'm having problems with C too. I did notice that I have a stomach ache after eating corn (tortillas). It's happened twice now in the last few days and very bloated after eating broccoli (I guess that goes with the territory), but the fiber from the broccoli isn't helping with the C either. I like the idea of the food journal. You may not just be gluten sensitive, it could be other foods also.

Your tortillas could be made in a shared facility. I have started to gradually have problems with the ones I eat. One day the store was out and I had to buy Mission and no problems. I need just to buy those now or others more carefully made.

As the other poster pointed out, magnesium is very helpful with C. Also honey can gently help.

SLB5757 Enthusiast
Thanks for all these great suggestions!

I will start a food journal today. It has been one week, I am trying to go strictly gluten free for 2 months, until the end of May and then re-assess. The only thing I'm not paying major attention to right now is cross-contamination. So far, my digestion feels better, and my allergies are a lot better. That's worth the trouble right there!

I've found that doctors are super-reluctant to do a biopsy for celiac. I had major stomach pain in my 20's, and they ruled out everything but celiac because they didn't want to do an invasive test even with my family history. The doctor said it was just stress. It may have been.

And for that past 10 years, my GP just keeps doing the celiac blood tests even with the possibility of false negatives, and listens to me complain about the same symptoms year after year. I don't want to constantly be taking laxatives. Fiber doesn't seem to work. And I am not taking other things that I should, like calcium, because I don't want to worsen the C.

Thanks for letting me complain!

This just sounds like my story. I am diagnosed with IBS - C, and am starting very soon on a Wheat-Free diet. I have Allergy tests showing a wheat allergy and have been told to eliminate Wheat from my diet. I am at a point where I am ready to try. Nothing is worth the stomach pain/cramping...etc. I wish you all the best and hope you find a cure for your troubles very soon :)

beanpot Apprentice

I am feeling better on this diet. (TMI alert - Had first normal BM in 3 years!) Eczema in ears is gone too, and no bloating. An unexpected benefit is that before, if I didn't work out on a particular day I would get a depressed mood. I haven't worked out in 2 weeks due to a very painful sprained chest muscle, and I have not been depressed! I am hoping that I'll soon be able to wean myself down even further off zoloft, which has been extremely difficult in the past due to withdrawal side effects.

I tried this diet many years ago and it was very hard to find gluten-free food, now it is much easier. Also I like the way it forces you to eat healthy - lots of fruits and vegetables and lean protein.

I don't feel the need at this point for a doctor's diagnosis.

Good luck to everyone!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    3. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,347
    • Most Online (within 30 mins)
      7,748

    Emhope1107
    Newest Member
    Emhope1107
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.