Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying Out Gluten Free


beanpot

Recommended Posts

beanpot Apprentice

Okay so after obsessively reading this forum for a week I've decided to post. I don't know if I have celiac or gluten intolerance but I've decided to try the diet to see if I feel better. I've been diagnosed with IBS C, and have tested negative on tTg tests in the past, MD didn't do the whole panel just the tTg. The C is not so much a frequency issue as small, hard to pass stools. I do everything right - fiber, water, exercise, nothing helps not even stool softeners or fiber (allergic to psyllium). I also have a history of anemia, less so now, and depression/anxiety. On allergy scratch tests I react to wheat, casein and too many other things!

I've gone on a wheat free diet before during hay fever season because it helps with nasal allergies. This past year my aunt went on a gluten free diet, and years ago my grandmother had Celiac disease and almost died of malnutrition before they figured out what it was.

I've been gluten-lite for about 5 days, and while the bloating and gas is reduced, I still have stubborn constipation. Has anyone had experience with chronic, stubborn constipation? And how do you get enough fiber on this diet?

Sorry for TMI!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

You are going to have to go completely gluten-free to know if the diet will clear up your C. It could also be another food you are sensitive to that's adding to the problem. Many of us found after going gluten-free that other items popped us that bothered us. I've never had a problem with C until now. If I eat too many alternate grains I really get backed up.

I would say tighten up your diet and keep a food/symptom journal to pinpoint all your problem foods.

purple Community Regular

Here is a fiber link:

Open Original Shared Link

beanpot Apprentice

Amaranth sounds great! Thanks to you both!

SBisglutenfree Rookie

I've only been gluten free for a week and a half. I'm having problems with C too. I did notice that I have a stomach ache after eating corn (tortillas). It's happened twice now in the last few days and very bloated after eating broccoli (I guess that goes with the territory), but the fiber from the broccoli isn't helping with the C either. I like the idea of the food journal. You may not just be gluten sensitive, it could be other foods also.

I'm glad you asked this question; I'm looking foward to the responses.

S.

Jennifer S Newbie
Okay so after obsessively reading this forum for a week I've decided to post. I don't know if I have celiac or gluten intolerance but I've decided to try the diet to see if I feel better. I've been diagnosed with IBS C, and have tested negative on tTg tests in the past, MD didn't do the whole panel just the tTg. The C is not so much a frequency issue as small, hard to pass stools. I do everything right - fiber, water, exercise, nothing helps not even stool softeners or fiber (allergic to psyllium). I also have a history of anemia, less so now, and depression/anxiety. On allergy scratch tests I react to wheat, casein and too many other things!

I've gone on a wheat free diet before during hay fever season because it helps with nasal allergies. This past year my aunt went on a gluten free diet, and years ago my grandmother had Celiac disease and almost died of malnutrition before they figured out what it was.

I've been gluten-lite for about 5 days, and while the bloating and gas is reduced, I still have stubborn constipation. Has anyone had experience with chronic, stubborn constipation? And how do you get enough fiber on this diet?

Sorry for TMI!

I am also another new community member, and also have had a recent diagnosis of IBS!!! In addition, the celiac blood test was negative, and the doc didn't even take a darn biopsy when he could've. So I just went gluten free, very strict, and am feeling much better after almost two months now. My IBS was the opposite of yours, diarrhea not constipation, with gastritis. I have found that it's not just which foods I eat (gluten or not) but also which foods I eat with what. Specifically, I eat meat with cooked veggies, or starches with cooked veggies, and fruit on an empty stomach, by itself. It has helped enormously, and let me isolate certain foods easier to check my reaction to them. Bloating, gas, cramping is all reduced. Stress still kicks it up though. Also, a dietician reccommended Flaxseed Meal as a good source of gluten free fiber. I am trying that next.

purple Community Regular
I am also another new community member, and also have had a recent diagnosis of IBS!!! In addition, the celiac blood test was negative, and the doc didn't even take a darn biopsy when he could've. So I just went gluten free, very strict, and am feeling much better after almost two months now. My IBS was the opposite of yours, diarrhea not constipation, with gastritis. I have found that it's not just which foods I eat (gluten or not) but also which foods I eat with what. Specifically, I eat meat with cooked veggies, or starches with cooked veggies, and fruit on an empty stomach, by itself. It has helped enormously, and let me isolate certain foods easier to check my reaction to them. Bloating, gas, cramping is all reduced. Stress still kicks it up though. Also, a dietician reccommended Flaxseed Meal as a good source of gluten free fiber. I am trying that next.

Its best to buy whole flax seed and grind them as you use them. I bought a coffee grinder to grind them up and it works great. I try to put a spoonful or 2, ground, in everything I make if I can remember...bread, cookies, muffins, casseroles, waffles, pizza crust, cakes, etc.

If eating whole flax seed, be sure to chew each one. I keep them in the freezer and a few in a shaker jar to sprinkle on green salads. I call them "BUGS" :lol:

found a good link:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

For those looking for more fiber, besides amaranth, there's Kasha (roasted buckwheat), teff, and of course coconut. Ordinary green pea soup is actually pretty high in fiber too.

Aside from the fiber, many find supplementing magnesium very helpful. It is nature's stool softener.

beanpot Apprentice

Thanks for all these great suggestions!

I will start a food journal today. It has been one week, I am trying to go strictly gluten free for 2 months, until the end of May and then re-assess. The only thing I'm not paying major attention to right now is cross-contamination. So far, my digestion feels better, and my allergies are a lot better. That's worth the trouble right there!

I've found that doctors are super-reluctant to do a biopsy for celiac. I had major stomach pain in my 20's, and they ruled out everything but celiac because they didn't want to do an invasive test even with my family history. The doctor said it was just stress. It may have been.

And for that past 10 years, my GP just keeps doing the celiac blood tests even with the possibility of false negatives, and listens to me complain about the same symptoms year after year. I don't want to constantly be taking laxatives. Fiber doesn't seem to work. And I am not taking other things that I should, like calcium, because I don't want to worsen the C.

Thanks for letting me complain!

ang1e0251 Contributor

I've only been gluten free for a week and a half. I'm having problems with C too. I did notice that I have a stomach ache after eating corn (tortillas). It's happened twice now in the last few days and very bloated after eating broccoli (I guess that goes with the territory), but the fiber from the broccoli isn't helping with the C either. I like the idea of the food journal. You may not just be gluten sensitive, it could be other foods also.

Your tortillas could be made in a shared facility. I have started to gradually have problems with the ones I eat. One day the store was out and I had to buy Mission and no problems. I need just to buy those now or others more carefully made.

As the other poster pointed out, magnesium is very helpful with C. Also honey can gently help.

SLB5757 Enthusiast
Thanks for all these great suggestions!

I will start a food journal today. It has been one week, I am trying to go strictly gluten free for 2 months, until the end of May and then re-assess. The only thing I'm not paying major attention to right now is cross-contamination. So far, my digestion feels better, and my allergies are a lot better. That's worth the trouble right there!

I've found that doctors are super-reluctant to do a biopsy for celiac. I had major stomach pain in my 20's, and they ruled out everything but celiac because they didn't want to do an invasive test even with my family history. The doctor said it was just stress. It may have been.

And for that past 10 years, my GP just keeps doing the celiac blood tests even with the possibility of false negatives, and listens to me complain about the same symptoms year after year. I don't want to constantly be taking laxatives. Fiber doesn't seem to work. And I am not taking other things that I should, like calcium, because I don't want to worsen the C.

Thanks for letting me complain!

This just sounds like my story. I am diagnosed with IBS - C, and am starting very soon on a Wheat-Free diet. I have Allergy tests showing a wheat allergy and have been told to eliminate Wheat from my diet. I am at a point where I am ready to try. Nothing is worth the stomach pain/cramping...etc. I wish you all the best and hope you find a cure for your troubles very soon :)

beanpot Apprentice

I am feeling better on this diet. (TMI alert - Had first normal BM in 3 years!) Eczema in ears is gone too, and no bloating. An unexpected benefit is that before, if I didn't work out on a particular day I would get a depressed mood. I haven't worked out in 2 weeks due to a very painful sprained chest muscle, and I have not been depressed! I am hoping that I'll soon be able to wean myself down even further off zoloft, which has been extremely difficult in the past due to withdrawal side effects.

I tried this diet many years ago and it was very hard to find gluten-free food, now it is much easier. Also I like the way it forces you to eat healthy - lots of fruits and vegetables and lean protein.

I don't feel the need at this point for a doctor's diagnosis.

Good luck to everyone!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748

    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.