Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerance


JacobsMom

Recommended Posts

JacobsMom Contributor

Happy Easter everyone....

How many of you out there have to avoid dairy also??? Jacob has been gluten-free for about 3 weeks now and I can tell that he 99% better...I mean he is acting great and I can already tell he has put some weight on...We will find out on the 19th of April how much :D BUT his tummy is still swelling by the end of the day and he still says his tummy hurts and now I am wondering if the dairy could be causing it. I may try to take him off of milk products and try...The only thing that we are going to have a fight over is YOGURT....This kids eats tons of it everyday!!!

Any suggestions will be appreciated.

Thanks

Brandi


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

If he's not sensitive to soy, you can get soy yogurt that's pretty good.

KaitiUSA Enthusiast

I was lactose intolerant on and off my whole life until a few months after going gluten free. Lactose intolerance can come with celiac because of the villi damaged in your intestines. After I started getting better the lactose problem went away and now I have no problem with it.

lotusgem Rookie

Hi Brandi.

You asked if any of us need to avoid dairy products too, and I'm in that group, although I must stay away from them not because of lactose intolerance, but because I am allergic to casein. Perhaps you already know this, but lactose intolerance is an inablility to digest the sugar, lactose, because the person lacks the enzymes that would perform that function. In my case, my body has an inappropriate allergic response to what it views as a foreign protein, casein. My symptoms include eczema and respiratory problems that lead to sinus and ear infections. From your description of your son's symptoms though, it sounds like his problem could be with the lactose. His tummy hurts because he is likely having trouble digesting the dairy. In contrast, I can digest it no problemo, but I will pay a heavy price, so I am totally dairy free as well as needing to be gluten free. The lactose intolerant are more fortunate than those that are allergic to casein because there are many dairy substitutes available that are lactose free, but that maddeningly, still contain casein. I've also tried soy yogurt bought from a health food store. It didn't taste bad...doesn't have that nice sour tang that the real thing does though. Ultimately, though, I stopped buying it because I had too many containers that should have still been good that had mold on the top. Also, if your son goes through a lot of the stuff, you will find, sorry to say, that it is quite a bit more expensive. Best to both of you.

Paula

lainie Newbie

My daughter has been on her gluten free diet for about 3.5 weeks and her belly still gets swollen too. I too am concerned. I spoke with the GI doctor who did the biopsy on my daughter this week. He said that it is probably normal for her belly to still be swollen. He asked if she was having regualr bowel movements (which she is) and said that he is not concerned about the distended abdomen at this point. It may take some time for it to go down due to the damage that was done. So, I am optimistic that it is not another intolerance.

Carriefaith Enthusiast

I have to avoid dairy like gluten, any amount of dairy makes me sick. It's common in celiac's, for many lactose intolerence goes away with time, but for others it's permanent.

snoopylian Apprentice

Yes, I believe the dairy is causing the problem. The enzyme for digesting lactose is formed on the tip of the villi in your intestine. Since celiacs villi are atrophy, damaged, blunted, etc. they lack the enzyme. From what others have told me and what I've read, there is a strong possibility this can rectify itself in time - the longest I've heard so far is a year.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,397
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.