Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Primary Care Visit Yesterday.


quietmorning01

Recommended Posts

quietmorning01 Explorer

I saw my PC yesterday as a follow up for the 'bleeding duodenum ulcer" the GI doc said wasn't there. I told her that my upper GI biopsy came back positive, but the blood work came out negative. She said, "That doesn't mean anything, you can still have Celiac disease with negative blood work - have you cut out the gluten, and if so, what happened?" I told her I've been trying to cut it out, and feel worlds better when I am successful. I told her my stomach isn't in knots, the pain is gone, and my . .. eh hem. . .waste evacuation is more normal. . . still loose, but not nearly as much so. I told her that if there isn't any gluten in my meal, I don't sneeze and my sinuses don't shut completely up all the way through my meal and for the rest of the night. I can breathe again!! Who knew!!?? OMGoodness, I've had sinus - horrible horrible sinuses since . .. like . .. all my life!

She wants me to continue the gluten free diet. I told her that I'm going to do a 'food test' in a month for gluten, lactose, fats, corn and rice. She said that would be a good idea. The fats would be because I don't have a gall bladder, and that may be the reason while I'm still having issues at dinner. Pork chops: ouch.

I see my GI on Tuesday. I don't know how that's going to go. Not sure if he's of the same mind set with the testing.

I was able to rule out Candida and Diabetes while I was at the PD office, though. She had already tested me for diabetes, said that was clear. . .heh. . . I really like her, she's very thorough. She said the biopsy from my upper GI would have shown Candida if it were there. She said that's a routine test.

So. . .this is where I'm at. I ordered some books on getting gluten free - should be here Monday. I'm anxious to get my kitchen converted.

Last night I had some Planters Spanish Peanuts. We checked the label, nothing there. . . but boy. . .immediately flipped my stomach out. Then my lips and the inside of my mouth started itching like crazy. . .my usual precurser to a severe allergic reaction if I do what I did to make my lips itch again. I so hope I'm not allergic to peanuts. **crosses fingers** - does treatement for a gluten intolerance/allergy cause hyper sensitivity to other foods suddenly?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SGWhiskers Collaborator

I'm glad your appt with your PCP went well. It sounds like you have a good one.

Celiacs do tend to have more food allergies than the average Joe. Going gluten free does not trigger food allergies/sensitivities, but many of us find that the gluten symptoms were masking the symptoms of other allergies. So when the gluten is removed, we are better able to notice our reactions to other foods.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.