Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do We Have Compromised Immune Systems?


foodiegurl

Recommended Posts

foodiegurl Collaborator

For example, when "they" say people with compromised immune systems should get the flu shot...does that include us?

I always decline the flu shot, as I prefer the least amount of anything unnatural going into my body as possible, especially meds. But will I have to get it now, if my immune system is compromised?

Just curious,

Thanks!!

Anne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

The flu shot has been subject to much debate here in the past. You can do a search for the full discussion(s).

It was recommended for me and I had no ill effects from the shot. Although, people with egg allergies or sensitivities, should not take the shot as suggested.

GFLisa Newbie

I don't get it, but that's because I am allergic to eggs. However, my kids don't get it either. I don't believe it is necessary and I do not want junk injected into their bodies. I do selectively and delay vaccinations for them.

foodiegurl Collaborator

I guess I should reword this, I was just using the flu shot as an example. i just mean, that by having celiac, does it mean that we generally have weaker immune systems to fight things off? Or if we stick to the gluten-free way of life, we are just like every other regular person?

psawyer Proficient

The autoimmune nature of celiac disease means the the immune system is acting outside expected patterns.

I would not necessarily say that it indicates a weakened immune system. You might argue that it indicates an over-active immune system.

Lisa16 Collaborator

Our city water supply got contaminated with e coli. a few years ago. The contamination was mild (if there is such a thing) and tended to affect people in the category you are talking about (elderly, small children and people with compromised immunity). A warning was issues fairly late.

Even so, not many people got sick enough to go into the hospital. At the time I was undiagnosed, but I got sick as a dog (before the warning). I always thought it was because my system was compromised. But I was undiagnosed at the time. Maybe that makes a difference?

tarnalberry Community Regular

technically, active autoimmune conditions put you in the category of "at risk". because your immune system is acting abnormally, and predominantly too busy attacking your own body to be bothered fighting off infectious diseases. but, celiac disease is the only autoimmune disease that we can "cure", in so far as stopping the autoimmune reaction - by remaining strictly gluten free. if you remain strictly gluten free, you're technically not in the higher risk population, because your immune system is functioning normally again.

of course, there are big assumptions there that celiac was caught early enough that it didn't cause any long term changes to immune system functioning or other organ systems....

it's not a black and white sort of thing, and you have to kind of gauge it for yourself. I get the flu shot because I also have asthma, and I am VERY prone to respiratory infections. but that puts me in the "high risk" group for it's own reason. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2boysmama Apprentice

The way I look at it, FWIW, isn't that my immune system is weakened - but rather highly sensitive. So I keep things like immunizations to a minimum because of all the garbage in them. I don't immunize my youngest, and none of us gets the flu shot. I prefer my immune system be allowed to do the job it's supposed to do - fight off illness, rather than trying to manipulate it. I believe that's what weakens it.

celiac-mommy Collaborator

Also, FWIW, we all get the flu shot mainly because I work in a hospital, God knows what I bring home :huh: I have found, however, that I had a very sickly little son before his diagnosis, and since going gluten-free, he hardly even gets the sniffles. My dd has an immune system like a rock and always has.

mushroom Proficient

I know that my immune system was severely dysfunctional when eating gluten, with constant respiratory infecctions among other things. Since gluten free I have also been free of infection. I have always had the flu shot because I have COPD, and now this year I just got it again (our flu seeason is coming on) because I am taking Humira for my PsA, which suppresses the immune system. My rheumy said it does not make it more likely that I will catch something, but that if I do catch something it will be harder to knock it back :(

p.s. Sorry about double post after editing for errors)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.