Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Normal...

katerinoula18

Recommended Posts

katerinoula18 Newbie
katerinoula18
Posted

Hello everyone!

So I am a self-diagnosed Celiac. I did go for blood-tests but i was gluten-light for at least 2 weeks and hadn't eaten gluten for 4 days before the test. They came out borderline between negative and positive, but my doctor diagnosed me anyways because the gluten-free diet made MAJOR positive changes to my life within just a few days. And i refuse to start eating gluten again just to do the biopsy. I have the worse symptoms and I dont want to start sleeping 16 hours per day, with abdominal pain, dizinness etc.

So I went gluten-free one week ago and the first days I was eating many times a day but little every time. Carrots, hummus, fruits, other veggies, a bit of tuna, hard-boiled eggs. And by day 4 I was feeling MUCH better and my stomach was super flat again, no pain and I wasn't napping in the afternoon anymore (although I still feel a bit tired). On that day 4 I had activia yoghurt thinking it was gluten free, but gluten was hidden in the natural flavors. I was very mad and my symptoms started after 15minutes of eating a tablespoon. My day 5 went pretty well also, my tummy was a bit bloated probably due to the inflamation from the yoghurt but i survived.

Now my problem is that this weekend (day 6 and 7) I had small little things throughout the day but a slightly bigger supper with baked potato and rice and chicken breast. I didnt get glutened (because the symptoms werent that bad) but i still feel some pain in my tummy and it is a bit swollen (the meal I ate wasnt big enough to make me bloat, but it was more than usual). Is this normal? Can I be sensitive to every food in the beginning of this diet? SHould I be worried:S...I just need reassuring... Maybe I should just continue eating simple fruits veggies for a good 6 weeks and then introduce heavier things??

-katerina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi

Some find it easier to digest small amounts of food, grazing through out the day instead of eating three meals a day. Since you are new to the gluten-free diet you may have ups & downs which is natural for many.

Also your body is going through a big adjustment &again it will be ups & downs. For some they feel better quickly & others it has taken up to two years to feel better.

Are you taking vits & Mins, enzymes & probiotics? This will help in the healing process...you will also need to add fiber at some point....

hth mamaw

FarmCat Newbie
FarmCat
Posted
Hi

Some find it easier to digest small amounts of food, grazing through out the day instead of eating three meals a day. Since you are new to the gluten-free diet you may have ups & downs which is natural for many.

Also your body is going through a big adjustment &again it will be ups & downs. For some they feel better quickly & others it has taken up to two years to feel better.

Are you taking vits & Mins, enzymes & probiotics? This will help in the healing process...you will also need to add fiber at some point....

hth mamaw

I am wondering about your cooking utensils. It sounds like for your first few days you were eating things that didn't require much cooking--and then you fixed a nice, big dinner. Was it the first time you used those pans since going gluten-free? Were they teflon? Any scratches in teflon will hold gluten. Maybe you did eat a trace of it.

katerinoula18 Newbie
katerinoula18
Posted
  • Author

Thank you for the responses!

To answer a few questions...I'm taking magnesium, iron, and probiotics. I also take the the non-flavor no sugar added metamucil for fiber. All that seems to be working out quite well...

And as for the pans, the chicken, potato (awesome!!!) dinner was made in the oven. The pan is quite new, no scratches in it, but you are right, I'm sure there had been pasta in there before. But then again, isn't the dishwasher hot water and soap enough to wash everything away?

As for the 2 past days, I went back to eating many fruits, veggies (including beans which didnt affect me), cottage cheese, eggs, tuna and chicken breast spread throughout the day and im feeling SO much better. It seems like my body is taking a lot of time to process the food also because I'm not even hungry enough to eat a full plate in one sitting. I'll continue like this I guess...hoping I'll feel better one day.

FarmCat Newbie
FarmCat
Posted
Thank you for the responses!

And as for the pans, the chicken, potato (awesome!!!) dinner was made in the oven. The pan is quite new, no scratches in it, but you are right, I'm sure there had been pasta in there before. But then again, isn't the dishwasher hot water and soap enough to wash everything away?

I'm pretty new to all this myself, but the advice I have seen on this forum is to get rid of any non-stick cookware, because it does scratch and you can't wash the gluten out of it.

Did you use a cutting board? That hangs onto gluten, too; you need a new one.

I'm glad you're doing better. I've been gluten-free for a couple of weeks now and am trying to weed out what ELSE I'm reacting to. I have already been soy and legume free for a long time; now gluten-free, too. But there's still something else---

Good luck to both of us!

heatherjane Contributor
heatherjane
Posted

watch out! Raw chicken sometimes can be processed with broth and the pesky "natural flavors"!

katerinoula18 Newbie
katerinoula18
Posted
  • Author

ugh im starting to think i cant eat anything anymore:(

im gettting more and more scared of nightshades. had a tomato and slightly bloated. (not a bad glutening reactiong though. just slight bloat)

soon i wont be able to eat anything anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,944
    • Most Online (within 30 mins)
      7,748
    Lori Beller
    Newest Member
    Lori Beller
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.