Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Not Feeling Better


tlm3

Recommended Posts

tlm3 Newbie

Hello,

I have been diagonsed since August 2008...however not really as strict as should have been until recently (about a month or so). I suffer from anxiety...the kind where i am worried all the time about disease and dying ( i can laugh at myself because every ache in my body I tune into and think I am dying Godforbid of an illness.) My otehr symptoms are weight gain (since being diagnosed about 10 punds) sinus infections ( polyps), still very gassy, muscle cramps, and sometimes fatique and recurring yeast infections. I also can't remeber the last time a slept the whole emtire night straight through. My question is ... DOes this sound normal for someone with Celiac? Or should i go yet again back to the dr and have more tests done.

BTW, I have MFTHR gene mutation and take viatmn Metanx for it, and I am Viatmn D defciciant ( recently started a cal, mag, d, viatmn. I also take xanex on an as needed basis. PLease help and let me know that I am not alone and these are normal celiac symptoms... thanks i n advance

The weight gain is really upsetting me... I am eating very healthy and work out regualry and having trouble losing. :( PLease help


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I've had unexplained weight gain for several years. It got worse the past few years...I'm 40-50 pounds overweight...yet I have always eaten a healthy diet (just went gluten-free 14 days ago) and exercise ALOT and am very active every day (early morning to about 3-4pm when I bloat and run out of steam). I am hopeful that removing gluten will eventually heal my digestive system and at least stop the weight gain and relieve my other symptoms.

I also have had trouble sleeping for years...more than a few times I thought I had depression...but after very careful examination over the past year I KNOW that I got depressed from being so sick, not got sick from being depressed. I had mentioned this theory to docs over the years, but they either didn't have enough time to try to find out the cause or were dismissive with a ya right - you eat right and get lots of exercise look that showed how much they disbelieved me.

ang1e0251 Contributor

Some of those symptoms can be celiac disease related. I've recently been reading about magnesium deficiencies and increased my intake dramatically. It's improved my sleeping a lot. It is also supposed to help anxiety. This link can show you some interesting info about it.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.