Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Does My Blood Work Mean?

MyHandful

Recommended Posts

MyHandful Newbie
MyHandful
Posted

I am currently going to a rheumatologist for some heath problems. He has been running all kinds of blood tests on me to see if he can figure out what is wrong with me. He ran a Celiac Disease Ab Eval on me. I got a call from a nurse saying I tested postive for the IGA class reticulin antibody. She said it didn't mean I had Celiac for sure, but that it was probable and told me the doctor wanted me to go on a gluten free diet immediately. I started doing research on the Internet and found that I should not be going gluten free until after we had ruled out celiac disease. I called back to get a referral to the GI specialist and the nurse said the doctor wanted to talk to me first. Now I am wanting to see if I can get into to see the doctor before my next appointment in June.

I have been trying to research what my results mean and I just don't see how the rheumatologist can say that I probably have celiac. The one test I tested postive for looks like an outdated test to me. And the most important tests were negative. And yet he wants me to go completely gluten free immediately??? What????

Here are my results:

Celiac Disease Ab Eval

GLIGA 12.2 H U/mL 0.0 - 10.0

GLIGG 1.5 U/mL 0.0 - 10.0

RETICA Neg Titer Neg: <1:20

RETICG Neg Titer Neg: <1:20

TRGLUTA 3 U/mL Neg: 0-3, Weak Positive 4-10, Positve > 10

ENDIGA Neg Negative

The only one I tested positive for was the first one - Gliadin Abs,IgA.

What does this mean? Am I even gluten sensitive? I am going to visit a GI doctor, but I am sure it will take a few months to get in.

Thanks!

Kim

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wendstress Rookie
wendstress
Posted

Can you share some of your symptoms?

MyHandful Newbie
MyHandful
Posted
  • Author

Sure. The reason I went to the doctor was because I was having pain all over my body like joint and muscle pain. I have IBS so I have diarhea sometimes, but definitely not all the time. I have abdominal cramps all the time that hardly ever go away and I feel bloated. I am completely exhausted all the time. I use to run and I can't run anymore mainly because it's too tiring for my body. The doctor originally thought maybe some type of arthritis or fibromyalgia. I think he just did the celiac tests to cover all possibilities. I am just wondering what the test I tested positive for means, if anything.

Nancym Enthusiast
Nancym
Posted

Not sure about all those tests but I believe IGG means you're having a response to gluten. It may not be Celiac disease but you're creating autobodies to it. Many of us are in that boat and just find we're a hell of a lot healthier without gluten in the diet.

MyHandful Newbie
MyHandful
Posted
  • Author
Not sure about all those tests but I believe IGG means you're having a response to gluten. It may not be Celiac disease but you're creating autobodies to it. Many of us are in that boat and just find we're a hell of a lot healthier without gluten in the diet.

It was the IGA I tested postive for. The IGG was negative. What does the IGA class mean?

ravenwoodglass Mentor
ravenwoodglass
Posted
Sure. The reason I went to the doctor was because I was having pain all over my body like joint and muscle pain. I have IBS so I have diarhea sometimes, but definitely not all the time. I have abdominal cramps all the time that hardly ever go away and I feel bloated. I am completely exhausted all the time. I use to run and I can't run anymore mainly because it's too tiring for my body. The doctor originally thought maybe some type of arthritis or fibromyalgia. I think he just did the celiac tests to cover all possibilities. I am just wondering what the test I tested positive for means, if anything.

The postive test combined with all your other issues makes it likely that you are indeed one of us. I wish my rheumy had been as inteligent as yours. My hands would sure look a lot nicer. The good news is that if you do have celiac there is a good chance that your arthritis and your other issues will resolve or go into remission. The choice of whether to stay on gluten and get into a GI doctor or to go gluten free is up to you. You do need to be aware though that even with negative biopsy you will still need to do the diet for a while strictly to be sure. Sometimes our bodies tell us what tests can not.

ang1e0251 Contributor
ang1e0251
Posted

If your dr puts you off, take your test results to your PCP and ask for his help to see a GI. The sooner you can be diagnosed, the sooner you can start the diet and feel relief. None of us can say for sure your symtoms are from celiac disease or gluten intolerance but they sure sound like they might be.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MyHandful Newbie
MyHandful
Posted
  • Author

The rheumatologist referred me to the GI doctor, so I have an appointment set up for April 29th. I am anxious to go and find out what is going on with me!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748
    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.