Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help!


ptkds

Recommended Posts

ptkds Community Regular

I have made a new blog page so that maybe I can get some help in a diagnosis. I have been dealing with some problems and no doctors can seem to figure it out. Please feel free to check it out, pass the address along, anything to spread the word! I need help!

Please go to my profile page to find the link!

Thanks!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Well, I checked out your blog, but I messed up my comment there, so I'll say it here.

Have you thought about finding a good naturopath or nutritionist to help guide you through an elimination diet?

It's possible that some of your issues are caused by other foods. If nothing else, a monitored elimination diet will teach you more about your body and its relationship to food.

ptkds Community Regular

My problems are not caused by foods. There is something serious going on. Certain labs are off, but they just can't figure out what exactly is going on.

Thanks,

ang1e0251 Contributor

What makes you say that your problems are not definitively food related? Is it because you have already done an elimination diet?

Those symptoms sure sound like they could be intolerances, especially since dr's have said they can find no big indicators.

Maybe you don't believe the food is a problem. If it isn't food than doing an elimination diet shouldn't make you any worse or better. Why not give it a try? Couldn't hurt, might help.

My daughter used to "lose" important things from time to time; school books, homework, etc. She would spiral into a panic. I would help her look for it while she followed me around screamiing, "it can't be there, I already looked ...... I never put it there!!" When I finally found the item, she would calm down, look chagrined and apologize. I told her, "when you can't find something, looking in the same place over and over won't find it for you. You have to look in places you haven't searched before even if it seems like you'd never find it there."

I would say the same to you, looking for answers in the same places over and over (dr's) without any satifactory results will be no help to you. It's time to look in the places your sure it could never be. Look for the answer to your health every where you can. You made a good start by posting it here. But I caution you, don't blow off the ideas that come your way. Nothing has helped you so far so maybe a strange suggestion could help.

rinne Apprentice

I'm sorry you are feeling so badly.

I am not a doctor but in my limited experience your description does sound like heart problems. Is it possible that any of the medication you are on may affect the heart?

My father, a very active 70 year old, started to have problems like you are describing and he went to the hospital, he refused to leave until they fixed it, turns out he needed a quadruple bi-pass and two days later they did the surgery. I am not suggesting this strategy for you, :) but I am saying if you know there is a problem then you may have to force them to pay attention to you.

The internet is a risky place to be looking for a diagnosis and our minds are powerful, in my opinion we need to be careful about the kinds of messages we give ourselves. I would encourage you to focus on gratitude for the moment you have now with your beautiful children and husband and to lean in every thought towards wellness .....as in I will live, I will live, I will live.

As for diet, this is a Celiac site and food is the solution for many of us here. I know you do not think that this is food related and it may not be but some foods can heal, others foods are neutral and some do harm. White sugar is a poison that robs our body of nutrition inorder to digest it, aspartame is toxic to some and if you drink diet drinks that could be contributing to your illness. Seriously.

What is your diet like?

I hope you find some answers soon and live a long and joyful life. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,998
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.