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Blood Test Results, Please Help!

Lovemy4babies

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Lovemy4babies Rookie
Lovemy4babies
Posted

Doctor left me a note with receptionist saying normal for celiacs. She is sending me the results in the mail, but told me 2 tests were high.

Esr, or sed rate, was 31...

Iga was 122, which she said they look for low for celiacs.

Any significance?

He is gluten free today. We all are. And my son has not had ONE tantrum or melt down all day. Last time he had gluten was around 430 yesterday. He had a MAJOR meltdown yesterday for HOURS. Then today, nothing. He has been perfect.

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Lovemy4babies Rookie
Lovemy4babies
Posted
  • Author
Doctor left me a note with receptionist saying normal for celiacs. She is sending me the results in the mail, but told me 2 tests were high.

Esr, or sed rate, was 31...

Iga was 122, which she said they look for low for celiacs.

Any significance?

He is gluten free today. We all are. And my son has not had ONE tantrum or melt down all day. Last time he had gluten was around 430 yesterday. He had a MAJOR meltdown yesterday for HOURS. Then today, nothing. He has been perfect.

Someone tell me i am justified in feeling freaked. Maybe I cant read. Everything I read said IGA is high in celiacs? Am I reading wrong? His is 122, which would be much higher then the normal? Even Esr or sed rate is right? Help!

leadmeastray88 Contributor
leadmeastray88
Posted
Someone tell me i am justified in feeling freaked. Maybe I cant read. Everything I read said IGA is high in celiacs? Am I reading wrong? His is 122, which would be much higher then the normal? Even Esr or sed rate is right? Help!

It's okay to be freaked out, thats what we're here for :)

Unfortunately we can't tell whether the results are high or not because we need the "normal ranges" from the specific lab that did the bloodwork.

And yes, you are right in saying that IgA levels are normally elevated for seropositive Celiacs. I would wait and see what exactly the mailed lab results say to get the ranges. I've never seen the Esr or sed rate tests before...didn't know those were specific/sensitive for Celiac. I noticed that they did miss a couple of tests, like the tTG and the IgG one.

Lovemy4babies Rookie
Lovemy4babies
Posted
  • Author
It's okay to be freaked out, thats what we're here for :)

Unfortunately we can't tell whether the results are high or not because we need the "normal ranges" from the specific lab that did the bloodwork.

And yes, you are right in saying that IgA levels are normally elevated for seropositive Celiacs. I would wait and see what exactly the mailed lab results say to get the ranges. I've never seen the Esr or sed rate tests before...didn't know those were specific/sensitive for Celiac. I noticed that they did miss a couple of tests, like the tTG and the IgG one.

nak. she said under 75 is normal for iga. i googled high esr rate and everything that comes up is people asking people, even on this site, if they had been checked for celiacs.

Lovemy4babies Rookie
Lovemy4babies
Posted
  • Author

nursing at keyboard again.

here is what an esr is....

The ESR is an easy, inexpensive, nonspecific test that has been used for many years to help diagnose conditions associated with acute and chronic inflammation, including infections, cancers, and autoimmune diseases.

isnt celiac autoimmune?

bear6954 Apprentice
bear6954
Posted

Yes it is an auto immune disease that attacks the small intestine causing damage and inflammation.

leadmeastray88 Contributor
leadmeastray88
Posted
nak. she said under 75 is normal for iga. i googled high esr rate and everything that comes up is people asking people, even on this site, if they had been checked for celiacs.

In that case, then his IgA levels are elevated and he should get an endoscopy to confirm. However he MUST be eating gluten in order for this to be accurate. You have an appointment with a GI shortly am I right?

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Lovemy4babies Rookie
Lovemy4babies
Posted
  • Author
In that case, then his IgA levels are elevated and he should get an endoscopy to confirm. However he MUST be eating gluten in order for this to be accurate. You have an appointment with a GI shortly am I right?

May 21st. I am trying no gluten for a week. that gives me a little over 3 weeks on gluten, and that is just until his GI appointment. That isnt the biopsy, that is to decide if they are GOINg to do the biopsy, so I have at least a month. I want to see if it makes a difference, and think that can help out the doctor if he was off gluten for a week and I see changes. We shall see.

ang1e0251 Contributor
ang1e0251
Posted

When you get your test results, post them here. If they really are positive for celiac disease, you could call ahead to your GI and show them the test and ask them to move the biopsy up to your app't date. They might not go for it but you never know, they could say yes. It's not that common for small children to test blood positive. They might take that and the positive dietary response as enough indicators to warrant the test without talking and setting a later date for it. They shouldn't make him keep suffering.

CDFAMILY Rookie
CDFAMILY
Posted

Hi Lovemy4babies,

I just wanted to let you know that the IgA test may be the Total IgA test. If it is, yes they do look for a low result which would then render all other IgA tests as useless and then the doctor orders the Gliadin IgG, EMA IgG and TtG IgG test. If the IgA test you have mentioned is the Total IgA of 120 then that would be a normal range and all IgA tests are valid.

Here is some information on Selective Total IgA

Open Original Shared Link

SIgA deficiency occurs 10 to 15 times more commonly among people with celiac disease compared to the general population [19]. Patients with SIgA deficiency will lack IgA antibodies including endomysial antibody, tTG and IgA AGA. To detect celiac disease in patients with SIgA deficiency an IgG antibody, typically IgG AGA, needs to be performed together with total IgA level. Alternatively, one may screen with IgG anti- EMA or IgG anti-tTG, though these are not widely available. Typically the patient with celiac disease and SIgA deficiency will have a positive IgG AGA and absent total IgA level. This combination should prompt a biopsy, whereas an isolated positive IgG AGA would usually not.

I would also stay on a gluten diet if you are looking for a biopsy. I have read too many times of people going gluten free for a few weeks and then having a negative biopsy...then they always wonder. If the biopsy is not important then I would go gluten free and not look back.

On both my daughters sed rate, the range is 0-20 Negative. >20 positive. So a sed rate of 31 is slightly high but not to an extreme so you do know there is something going on and there is inflammation.

I hope you get answers soon as it is always so difficult to wait and worry.

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