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Unexplained Ongoing Vomitting-need Advice

cookingmama

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cookingmama Newbie
cookingmama
Posted

Hello- I am new to this site so thank you for your patience with me-I wil try to keep it brief.

I need help for my son. He is 14, has autism and has been Gluten-free Casein-free for 9 yrs and off soy and corn as well for 6 yrs. He has ongoing battles with candida. Until now, he has not been diagnosed celiac . . .

the new issue is this: he began vomitting in Oct and it is still happening. it started as once a week, has been as frequent as 2-3 times a week and as "infrequent" as every 3 weeks.

He had an upper endoscopy when it started that showed acid inflammation in stomach and s.i. and "blunt villi"--indicative of celiac but he's been gluten fre for 9 years !

I have kept a food, behavior, etc log and cannot find a pattern.

the dr wanted to do Prevacid and rescope but I feel like that isn't addressing the root problem-

I've heard of other celiacs needing to be off other grains-not just gluten

Any suggestions or direction would be appreciated.

I just want him to feel better~ thanks!

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mellajane Explorer
mellajane
Posted
Hello- I am new to this site so thank you for your patience with me-I wil try to keep it brief.

I need help for my son. He is 14, has autism and has been Gluten-free Casein-free for 9 yrs and off soy and corn as well for 6 yrs. He has ongoing battles with candida. Until now, he has not been diagnosed celiac . . .

the new issue is this: he began vomitting in Oct and it is still happening. it started as once a week, has been as frequent as 2-3 times a week and as "infrequent" as every 3 weeks.

He had an upper endoscopy when it started that showed acid inflammation in stomach and s.i. and "blunt villi"--indicative of celiac but he's been gluten fre for 9 years !

I have kept a food, behavior, etc log and cannot find a pattern.

the dr wanted to do Prevacid and rescope but I feel like that isn't addressing the root problem-

I've heard of other celiacs needing to be off other grains-not just gluten

Any suggestions or direction would be appreciated.

I just want him to feel better~ thanks!

If he has not been tested for gastropersis have him tested. They will do gastric emptying scan. He can do it without the bread they do a liquid and solid test. Knowing is all it takes. Ive been sick for years off gluten and found out later the damage of being misdiagnosed so many years caused gastropersois look it up on internet and research.

Mtndog Collaborator
Mtndog
Posted

What are his other symptoms? I used to vomit when I ate gluten accidentally after going gluten-free. Trying to think. There are a lot of things that can cause vomiting. If he has blunt villi I'm assuming that means damage which would make him definitely celiac.

I would also ask the doctor about refractory sprue. I don't know what else could cause villi damage besides celiac. Hopefully others can help here. Either way, I hope you find out soon and your son gets better!

River* Contributor
River*
Posted

One of my family members use to throw up a lot before diagnosed with Addison's disease.

Alternatively, he could be being exposed to flour in the air after baking has ended somewhere out of his home. Or cross contamination some how..do you have both gluten free and gluten items in the kitchen, type of dish soap or shampoo he uses. It's pretty easy to get shampoo in your mouth when you wash your hair... I just have a feeling that this kid is still getting gluten in him from something... Are any of the foods he eats ran on the same lines as other cereal grains? What toothpast is he using, has he switched his toothbrush after he was ever glutened?

What type of floss?

Has he had all his vitamins checked?

georgie Enthusiast
georgie
Posted

I was going to say check for Addisons Disease as well. Addisons can be fatal if not treated - so do not ignore symptoms like this. As it is a rare disease many Drs do not know the signs of Addisons. This site has a lot of good info. Not everyone gets the tan as a symptom.

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climbmtwhitney Apprentice
climbmtwhitney
Posted

Hi Cooking Mama,

Couple of thoughts.....my son (5 yrs) does this. He is also Gluten-free Casein-free. It was really bad last fall/winter. It usually happened in the early am, like 3 to 5 am. No fever ever. It was so bad at one point that we began testing his blood sugar. Then after a very scary blood sugar reading (very high) he was admitted to the children's hospital for every test know to man checking for type 1 diabetes. All negative. The specialists think it was a fluke. So we left it at that. Another month of on/off vomiting and his nutritionist said it might be a parasite. But, before we actually did the testing for that, he stopped having his "episodes". I think we struggled with this for about 2 to 3 months, ending in December. He did vomit once last week--same thing. It was 4 am and no fever. He was again fine by around 8 am. Hmmmm. But, this is the only time since last December. So, we're still not totally sure what this is. Interesting, his sister has done this in the past too. She was 7 I think. She vomited 1x/week for 5 weeks, no fever, then it too disappeared.

My other thought is exactly what the other poster said--check for gastroparesis. Is your son thin? Does he get full too quickly? I, too, suffered with gastroparesis before diagnosis last August. It would range in severity from nearly constant (a 9 month period when I lost 20 pounds & a size 2 was hanging off me. I'm 5'10".) to a few days a month.) Gastroparesis is when there is either damage to the muscles that control the expansion of your stomach -or- damage to the nerves that control the muscle expansion in your stomach. So, your stomach doesn't expand when you eat. It stays about the size of your fist, so it's very easy to get nauseous and vomit when eating. It's not all that common, so it's not the first thing doctors look for. The gastric emptying test is simple, it just takes a few hours.

I hope you figure it out soon. It's so hard to see your kids suffer. Best of luck!

Jillian

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