Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Labeling

Sarah J.

Recommended Posts

Sarah J. Newbie
Sarah J.
Posted

All,

It is so difficult for a celiac to live in the USA!! I come from Australia, and there the labeling laws mean that you know INSTANTLY if a product contains gluten. They can't just say "natural flavorings" or "dextrose", they have to label what the ingredient is derived from.

Therefore, if a label does not say the words "wheat", "oats", "rye", "barley", "malt" or "gluten", you can be 100% positive that the item is gluten free. No more looking up products online, no more calls to the manufacturers, no more uncertainty - like being normal. Ahh I miss it!

Even with the new laws here, from my understanding, it seems that only wheat will be labeled. That is no good whatsoever if the other gluten sources are not labeled.

Best of luck over here!

Sarah.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Even NZ needs to learn from Oz. I was in the market yesterday (a private one, not one of the big chains) where I have never purchased ham. I looked at their packaged sliced ham, and the ingredients included "thickener". The butcher happened to be stocking the counter and I asked what the thickener was. He asked if I were a celiac and then said, "Well, I wouldn't eat that." So WTH?? I thought at least wheat here had to be labelled. Now they are just calling it "thickener".!!!!! He did steer me in the direction of some gluten free sauces so there is some awareness, but this is not good enough.

nutralady2001 Newbie
nutralady2001
Posted

Also here to be labelled gluten-free the product must contain <5 ppm gluten (although I'm a zero gluten girl)

Not sure of the ratio in the USA but think it's <200 ppm

psawyer Proficient
psawyer
Posted
Not sure of the ratio in the USA but think it's <200 ppm

In the USA, this is still under discussion, but it looks like <20 ppm is where it will end up. The unfortunate thing for consumers is that, as long as this is unclear, many manufacturers are reluctant to put "gluten-free" on a label--some who used to have it have removed it. In the meantime, there is no regulatory definition of "gluten-free" in the USA.

In Canada, there are strict rules. They are so strict that many products that are, in fact, gluten-free can not legally be labeled as such.

mushroom Proficient
mushroom
Posted
Also here to be labelled gluten-free the product must contain <5 ppm gluten (although I'm a zero gluten girl)

Not sure of the ratio in the USA but think it's <200 ppm

No, no, at the moment I think it is 20, but that may change.

nutralady2001 Newbie
nutralady2001
Posted

Oh OK thanks for that............ have seen a couple of numbers tossed around and was a little confused

Lisa Mentor
Lisa
Posted

This might help you with some questions:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lainey461 Rookie
lainey461
Posted

size="3"]Hello all! I am new to this, and I was wondering if there is a list of ingredients, that don't actually say, gluten, wheat, rye, or barley, that we should watch out for? I was doing pretty good with just eating the basics, broiled chicken, potatoes, and rice. Yesterday I had some barbecue sauce on the chicken for dinner, and had an episode during the night. So I was wondering if there is a list?

Thank you for any help you can provide!

Kind Regards, Elaine

Lisa Mentor
Lisa
Posted
size="3"]Hello all! I am new to this, and I was wondering if there is a list of ingredients, that don't actually say, gluten, wheat, rye, or barley, that we should watch out for? I was doing pretty good with just eating the basics, broiled chicken, potatoes, and rice. Yesterday I had some barbecue sauce on the chicken for dinner, and had an episode during the night. So I was wondering if there is a list?

Thank you for any help you can provide!

Kind Regards, Elaine

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

lainey461 Rookie
lainey461
Posted

Thank you so much! Another quick question if I may? I have read many posts about gluten free shampoos, lotions, make up, does the gluten actually penetrate the skin, and cause harm? Thanks so much!

mushroom Proficient
mushroom
Posted
Thank you so much! Another quick question if I may? I have read many posts about gluten free shampoos, lotions, make up, does the gluten actually penetrate the skin, and cause harm? Thanks so much!

As you seem to have seen, this has been a topic of hot debate. Some don't bother about gluten in things unless it is likely to get in their mouths (chap stick, lipstick, etc.); others get topical reactions (DH) from gluten containing products, some do think it can be absorbed through the skin. I am a fence sitter on this one. I choose to avoid those that contain gluten because better safe than sorry. And I think of the medications that are delivered through the skin and I don't know enough about the sizes of molecules that can pass through the dermis, and stuff like that. Besides, if you get it on your hands you could easily forget to wash your hands after applying (e.g.) lotion, and if it were hand lotion that would kinda defeat the purpose.

lainey461 Rookie
lainey461
Posted

Thank you for your reply! So in other words, it's best to stay away from any gluten containing products, till you see how you react? I was reading the dog food, and treats, all have wheat listed as the first ingredient! Start wearing plastic gloves, or do a lot of hand washing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Guinness, can you drink it?

      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger...
    2. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      7

      Related issues

      I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune...
    3. Donna Moxley
      - Donna Moxley commented on Scott Adams's article in Latest Research
      2

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      I was not a well child and on my own would stop eating certain foods when a stomachache occurred. As I got older, I began more and more anemic and ended up unable to hold food down at all. Once an endoscopy occurred, doctor said I had an obstruction in my stomach but nothing said about Celiac Disease. Dr. did stomach bypass surgery, removed a 1/3 of my...
    4. Scott Adams
      0

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    5. cristiana
      - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this. I am not a medical person but it seemed like the extra pressure...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,277
    • Most Online (within 30 mins)
      7,748
    Michellesmitty
    Newest Member
    Michellesmitty
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger celiac disease issues.  
    • Scott Adams
      Related issues

      By Scott Adams · Posted

      I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune disorder, not a parasite infection. Regarding your Celiac disease, the reaction you describe, while real to you, does not necessarily confirm a diagnosis; a delayed reaction is common with various digestive issues, and a definitive diagnosis typically requires specific blood tests and an intestinal biopsy, not just a provider's acceptance of symptoms. Furthermore, your mention of approaching mayors seems to misunderstand the role of local government versus federal policy; the deduction for gluten-free food is a federal tax law, and a mayor has no jurisdiction to implement widespread Celiac screening, which is a medical and public health decision far beyond a municipal leader's purview. It sounds like you are navigating a difficult health journey, but I would strongly advise consulting with qualified medical specialists and registered dietitians over relying on unverified online cleansing programs.
    • cristiana
      Rectal pain

      By cristiana · Posted

      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Related issues

      By Mari · Posted

      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.