Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Typical Symptom?

suorkaterna

Recommended Posts

suorkaterna Newbie
suorkaterna
Posted

Hey there everyone, I'm new here. Here's my story.

About a month ago I was down with the flu. After it was over I felt weird for a couple days and then all hell broke loose. I was in the bathroom every five minutes with diahria, my stomach doing lots of fun things with gas. I thought I was still having the flu. So all i ate...was crackers and gatorade. It didn't go away. Finally a friend suggested I might have Celiac. She has it and has heard me complain about bowel issues before. I didn't think it was possible because it came on so fast. I looked in my Gluten Free for Dummies book and read that Celiac can trigger serious symptoms quickly after an illness(like the flu). So i stopped eating the crackers and all wheat/gluten and I got better. I havn't eaten much wheat since, just a few slip ups here and there with mild reactions. Usually the slip ups are things like Malt Balls, soy sauce in dressing.

But this weekend i did a NO-NO. I'm a cook and I had made a new kind of pancake for my guests but there was nobody there to test it for me...yeah, I tried it...and then, I ate the whole pancake. The rest of the day I felt groggy , had a headache, blurry vision and when i went home I went to bed and slept untill the next day. The next day I felt like my "flu" was back. It's two days now and I'm still in and out of the bathroom and sleeping too much.

Is this a typical reaction to gluten for someone who's been off it for a while? I find it hard to beleive one frick'n pancake has taken me out of comission for three days.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Swpocket Rookie
Swpocket
Posted

I think for everyone its different. For me, even the slightest trace of gluten, will leave me sick for a week to even two. I recently stopped eating gluten 2 months ago and I'm still sick from some traces of it from a used butter knife...so it is very possible for it to make you sick.

I'm new to this lifestyle so I don't know very much, but I hope it helps

ravenwoodglass Mentor
ravenwoodglass
Posted

The first thing you need to do is to get to the doctor for a celiac panel. You need to do this before becoming gluten free. While blood tests are notorious for false negatives it is worth your while to get them. The reactions you speak of do sound like gluten reactions and after testing is done then no matter what the results you can go gluten free and then challenge again if you have doubt.

suorkaterna Newbie
suorkaterna
Posted
  • Author

I think it's a little too late to get tested. I refuse to eat gluten, esspecially after this last incident. I know that all the tests require you to be eating it before the test and even then, the tests are not conclusive. Also there's no medication for it so...I might as well just stay far far away from the stuff. I can do that, especially now that I feel the impact gluten has on me. I'm on day three now and it's finally beginning to slow, more gas and less diahria. I think that's "better". It scares the crap out of me that if just one pancake can throw me out of whack like this, what has it been doing to my body for the past 29 years!?! Wheat has been a staple of my diet, esspecially after I went veg. I ate Seitan all the time. No wonder I spent the better part of my 20's sleeping.

Anyhow, does anybody else have stories of how their slip ups effected them?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.