Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post-nasal Drip/ Congestion As Symptom?


RoseRobin

Recommended Posts

RoseRobin Rookie

Hello,

this is my first time posting. My 16 year old son has been suffering from chronic/ continuous post-nasal drip, congestion,and mucous in his throat for over two years. He has had two rounds of allergy testing (negative) and GERD testing (negative). He sees a chiropractor regularly. Thinking his symptoms might be related to dairy, he cut that out of his diet, except for occasional cheese. Somehow we came across the idea of gluten intolerance/celiac, so he has gone for blood tests but we have not yet gotten the results. Since the tests, he has made a stringent effort to eliminate gluten from his diet --not just the obvious sources, but also "hidden" sources, such as coloring and flavoring (we've been searching online and e-mailing food companies to inquire about glutne in their products). However, after two weeks, he still feels no different---still endless post-nasal drip, mucous, congestion.

Are these common symptoms, or even occasional symptoms, of gluten intolerance/ celiac? If so, how long might he have to wait in order to see any improvement in his condition now that he is doing his best to eliminate gluten? How can we know if there's some "hidden" source we are missing? I have downloaded a number of lists from the internet indicating such sources, I read all the food labels, and we are trying to be as careful as possible, but so far, no success. Any thoughts or insight would be appreciated. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samcarter Contributor
Hello,

this is my first time posting. My 16 year old son has been suffering from chronic/ continuous post-nasal drip, congestion,and mucous in his throat for over two years. He has had two rounds of allergy testing (negative) and GERD testing (negative). He sees a chiropractor regularly. Thinking his symptoms might be related to dairy, he cut that out of his diet, except for occasional cheese. Somehow we came across the idea of gluten intolerance/celiac, so he has gone for blood tests but we have not yet gotten the results. Since the tests, he has made a stringent effort to eliminate gluten from his diet --not just the obvious sources, but also "hidden" sources, such as coloring and flavoring (we've been searching online and e-mailing food companies to inquire about glutne in their products). However, after two weeks, he still feels no different---still endless post-nasal drip, mucous, congestion.

Are these common symptoms, or even occasional symptoms, of gluten intolerance/ celiac? If so, how long might he have to wait in order to see any improvement in his condition now that he is doing his best to eliminate gluten? How can we know if there's some "hidden" source we are missing? I have downloaded a number of lists from the internet indicating such sources, I read all the food labels, and we are trying to be as careful as possible, but so far, no success. Any thoughts or insight would be appreciated. Thanks.

Even occasional dairy can exacerbate mucous production, as I have found. Also, you need to make sure any soy cheese or substitute dairy foods do not have casein in them--the protein in dairy. A lot of soy cheese pizzas, for instance, have casein in the soy "cheese". I have just given up all fake cheese substitutes, except for homemade ones.

Regarding hidden gluten, I know that Kroger brand foods, if you have the UPC code, you can call the company and they will tell you if there is gluten in the seasonings or additives. They may not be able to tell exactly what is in it, but they can tell you yes or no on the gluten issue. Most companies will do this. You may also want to check shampoo for tocopherol (Vitamin E) which is often derived from wheat. Sometimes the company will tell you if it's derived from wheat or soy.

As for how long it will take for the gluten free diet to help, that varies from individual to individual. Some feel better right away, some take months or up to a year to feel better. I hope your son finds some relief soon!

Mother of Jibril Enthusiast

Has your son ever tried taking antihistamines? I'm taking 10mg of generic Zyrtec (cetirizine) each day to prevent hives and hopefully lessen my monthy anaphylactic reactions <_< It also helps with the stuffy, runny nose! I didn't notice it until I had to stop taking antihistamines for a week (for more allergy testing) and the nasal symptoms came back. Ugh. It feels like having a minor cold ALL the time. The congestion was even interfering with my sleep. Now that I'm back on the antihistamines, problem solved :)

Diet might be playing a role. As other people noted, dairy is a common mucus-producing food. But... it shouldn't hurt anything to try an antihistamine too. Allergy testing is not an exact science.

samcarter Contributor
Has your son ever tried taking antihistamines? I'm taking 10mg of generic Zyrtec (cetirizine) each day to prevent hives and hopefully lessen my monthy anaphylactic reactions <_< It also helps with the stuffy, runny nose! I didn't notice it until I had to stop taking antihistamines for a week (for more allergy testing) and the nasal symptoms came back. Ugh. It feels like having a minor cold ALL the time. The congestion was even interfering with my sleep. Now that I'm back on the antihistamines, problem solved :)

Diet might be playing a role. As other people noted, dairy is a common mucus-producing food. But... it shouldn't hurt anything to try an antihistamine too. Allergy testing is not an exact science.

Does Zyrtec work better than Claritin? I've been taking generic Claritin for years now for my allergies, but recently it doesn't seem to be working. I've been pondering trying Zytrec.

To the OP, if your son is taking an antihistamine, it's worth it to maybe try a different one to see if it works better.

Mother of Jibril Enthusiast
Does Zyrtec work better than Claritin? I've been taking generic Claritin for years now for my allergies, but recently it doesn't seem to be working. I've been pondering trying Zytrec.

To the OP, if your son is taking an antihistamine, it's worth it to maybe try a different one to see if it works better.

I was told that Zyrtec and Claritin are equally effective (and shouldn't cause drowsiness), but every individual is different... so if the first one doesn't give you relief try another one. I've also read that it's pretty common for antihistamines to lose their effectiveness if you take them for long periods of time. A slightly different medication (like Zyrtec instead of Claritin) can fool your body's defenses.

Another interesting thing I recently learned is that there are different types of histamine, called H1, H2, H3, and H4. H1 is associated with hives, asthma, and rhinitis... H2 is associated with symptoms in your gastrointestinal system. Zyrtec and Claritin are both H1 blockers. Some medications (like Pepcid) that are used for heartburn are also H2 blockers. I'm undergoing some testing right now to see if I have an ususual number of mast cells in my abdomen... which would explain a lot :huh:

Open Original Shared Link

gfb1 Rookie
Hello,

this is my first time posting. My 16 year old son has been suffering from chronic/ continuous post-nasal drip, congestion,and mucous in his throat for over two years. He has had two rounds of allergy testing (negative) and GERD testing (negative). He sees a chiropractor regularly. Thinking his symptoms might be related to dairy, he cut that out of his diet, except for occasional cheese. Somehow we came across the idea of gluten intolerance/celiac, so he has gone for blood tests but we have not yet gotten the results.

this is an interesting question at several levels. a larger percentage of celiacs are IGA-low/deficient compared to the population at large. IGA was originally discovered in mucosal tissues... and may, in an 'aseops fable'-kind-of-way, be responsible for an increase in eye/ear/throat issues.

there is little if no consistent evidence for this; but, is certainly a reasonable, testable hypothesis.

as for the diff between benadryl/claritin/zyrtec -- much has to do with personal preference. claritin/zyrtec (due to their structure) can be provided in 12-24 hr doses; whereas, benadryl (which many folks find to be more effective) is only available otc in 4 hr doses.

curiously many hospitals are using prescribed doses of benadryl to help patients sleep at night (as opposed to other, more addictive, substances!)

RoseRobin Rookie
Has your son ever tried taking antihistamines? I'm taking 10mg of generic Zyrtec (cetirizine) each day to prevent hives and hopefully lessen my monthy anaphylactic reactions <_< It also helps with the stuffy, runny nose! I didn't notice it until I had to stop taking antihistamines for a week (for more allergy testing) and the nasal symptoms came back. Ugh. It feels like having a minor cold ALL the time. The congestion was even interfering with my sleep. Now that I'm back on the antihistamines, problem solved :)

Diet might be playing a role. As other people noted, dairy is a common mucus-producing food. But... it shouldn't hurt anything to try an antihistamine too. Allergy testing is not an exact science.

Yes, he tried antihistamines and also steroidal nasal sprays with no relief.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samcarter Contributor
Yes, he tried antihistamines and also steroidal nasal sprays with no relief.

Since his diet is not completely dairy free, as he eats cheese occasionally, I would first work to make sure is diet is completely dairy free. Read labels for "casein" and "whey" (both from milk). Give his body a few weeks to make sure the dairy clears out of his body, and keep an eye on his symptoms.

If he doesn't see any relief, then eliminate gluten. The reason I don't recommend eliminating both at the same time is you'll be less sure about which is the culprit, or if it's both.

When he was tested for allergies, was it a simple scratch test, or a blood test, or did they inject the allergens under his skin? When i was tested for my allergies, they claimed I didn't react to cats after doing the scratch test, but when they injected them, it showed a stronger reaction. Sometimes an allergy that can't be detected with a low=level test can be causing problems.

RoseRobin Rookie
Since his diet is not completely dairy free, as he eats cheese occasionally, I would first work to make sure is diet is completely dairy free. Read labels for "casein" and "whey" (both from milk). Give his body a few weeks to make sure the dairy clears out of his body, and keep an eye on his symptoms.

If he doesn't see any relief, then eliminate gluten. The reason I don't recommend eliminating both at the same time is you'll be less sure about which is the culprit, or if it's both.

When he was tested for allergies, was it a simple scratch test, or a blood test, or did they inject the allergens under his skin? When i was tested for my allergies, they claimed I didn't react to cats after doing the scratch test, but when they injected them, it showed a stronger reaction. Sometimes an allergy that can't be detected with a low=level test can be causing problems.

It was the skin prick tests; he also had "delayed" blood tests for dairy, wheat, and egg (all negative). How would I get the doctors to administer an injection allergy test?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.