Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastro Dr.

sdore

By sdore
in Doctors

Recommended Posts

sdore Enthusiast
sdore
Posted

I was diagnosed by my family doctor. He just told me to go on the gluten-free diet.

Should I seek a GI doctor too or just stick with my family dr.?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Did he do tests on you? If so which ones?

A family doctor can diagnose you.

sdore Enthusiast
sdore
Posted
  • Author

He did a blood test. See, I had my gall bladder out December 2003. I still remained sick when eating. So finally a year later after complaining he did the following: (This is what I know)

A upper GI

A blood test to see if I have some bad bacteria somewhere

And a blood test to see if I cannot tolerate gluten

I week later he said I cannot tolerate gluten. I asked if I needed a biopsy because what I have read states you should. He said that the blood test I took stated I was (I think) a 17 and the borderline for celiac disease is 11. So I was way over thus not needing a biopsy, but he said he would order one for me if I wanted one.

Does this make any sense? Should I ask what the names of these tests were?

celiac3270 Collaborator
celiac3270
Posted

The bloodtest would probably be a TtG IgA, but you can ask to make sure. In that case, a 17 would be definite.

KaitiUSA Enthusiast
KaitiUSA
Posted

Yeah ask to make sure what test it was.

I only had a blood test done because mine was high as well. I did not bother with a biopsy

  • 2 weeks later...
Rikki Tikki Explorer
Rikki Tikki
Posted

I agree. I don't think the biopsy is necessary. I am not sure why they even do it if the numbers are positive. the only think I can think of is that they make more money? I hope that's not the case, it's just a thought.

Carriefaith Enthusiast
Carriefaith
Posted
the only think I can think of is that they make more money? I hope that's not the case, it's just a thought.

The gluten-free diet is a big change for some people and I guess the biopsy just confirms the diagnosis so that people don't question their diagnosis. Some people need the intestinal proof!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sdore Enthusiast
sdore
Posted
  • Author

Should I stick with my family Dr. or see a specialist?

Carriefaith Enthusiast
Carriefaith
Posted

I was referred to a GI specialist by my family doctor. My GI doc did the blood test and the biopsy. To my knowledge, the only thing that the GI specialist can do that the family doctor can't do is a biopsy. If you want a biopsy go to a GI specialist.

ianm Apprentice
ianm
Posted

It's a good sign that your family doctor even has a clue about celiac and gluten-free diets, most doctors don't. Let us know more about what your doctor has to say and we'll be able to tell if he is any good. We've been to so many and some of us have good ones. Unfortunatley I happened to have found all of the idiot ones. Keep reading this website and you will learn probably more than you ever wanted to know.

sdore Enthusiast
sdore
Posted
  • Author

My doctor is good (I think).

He more or less told me to stay away from gluten and that possiblty after a year I could have some once in awhile.

He also told me to get the book Glutenfree Living by Betty Haggman.

Rikki Tikki Explorer
Rikki Tikki
Posted

Oh sidore

You can't eat gluten even after a year. If anything it will make you more sick because your body is not used to it.

I am glad we have each other or statements like that will just make people sick :(

ianm Apprentice
ianm
Posted

Well thats one wrong answer from your doctor :angry: . If you are gluten intolerant that means NO gluten ever again :( . I'm hoping by once in a while he means an accidental ingestion of gluten which is unfortunatley unavoidable.

sdore Enthusiast
sdore
Posted
  • Author

me too. I will let you know whan I see him again this month.

celiac3270 Collaborator
celiac3270
Posted

Oh no! You can never eat gluten again. After one year, your intestines will be healed--and so if you ate gluten, you'd knock yourself back to square one very quickly.

celiac3270 Collaborator
celiac3270
Posted

Whoops...I opened this thread about 20 min. ago and walked away so I didn't see the other replies come in--looked like I posted a little late ;)

sdore Enthusiast
sdore
Posted
  • Author

thanks for the support!

I myself don't ever want to eat gluten again due to the fact that I have by accident and have gotten very ill.

KaitiUSA Enthusiast
KaitiUSA
Posted

Definitely no gluten again. The doctor needs to be informed a bit about celiac disease because your doctor doesn't seem to have a clue. As celiac3270 said, your intestines will be healed but eating gluten will set you back to square one quickly. The more you are off of gluten the more you become sensitive to it as well.Your body will not like it if you try to put gluten back in it.

It's good you are noticing the reaction you have to gluten. Good luck if you have any questions just ask :D

celiac3270 Collaborator
celiac3270
Posted
thanks for the support!

I myself don't ever want to eat gluten again due to the fact that I have by accident and have gotten very ill.

Good! :) Very few regular drs. will know a lot about celiac disease, so trust your knowledge over what he says.....or verify what he says with a message board or GI...

  • 2 weeks later...
mommy2james Newbie
mommy2james
Posted

My son who is 9 now was diagnosed in Oct of 2004 by his diabetic doctor and then we had the biopsy per his wishes.Yes James is celiac and hasjuvenile diabetic.We are still learning and we see 3 doc's,his tummy doc his diabetic doc and his pediatrician who has no idea about diabetes nor celiac so I welcome all the other doctors input.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.