Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Sarted gluten-free Diet And Behavior Worse!


ally123

Recommended Posts

ally123 Newbie

we just started the gluten free diet with our 7 year old boy who is ADHD to maybe help his behavior and stomach aches but his behavior is much worse. He is also doing some very odd things that he has never done before like screaming and crying about putting on his shirt because it "feels wierd" . We are only on day 2! Do we need to also cut out milk? Has any one ever seen this type of reaction??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

His reaction is a little concerning and would indicate to me that something else may be bothering him. Has he been allergy tested? We found that our son has a significant load of allergies so for us that was another piece of the puzzle. Have you stuck with simple unprocessed foods or have you switched over to alot of processed gluten-free repacement products or other products that you didn't use before? Evaluating that may give you some more clues to what's going on. Sometimes symptoms become more noticable to us or others even, when we have peeled back a layer so to speak and eliminated or lessened another symptom/problem.

CMG Rookie

My daughter had the same issue when we put her on a gluten free diet. We had concerns about ADHD, but put her on gluten-free diet for intestinal issues. Intestinal problems resolved fairly quickly; but her behavior got worse for several days. I would say that by about day 5 behavior was significantly better.

ally123 Newbie
My daughter had the same issue when we put her on a gluten free diet. We had concerns about ADHD, but put her on gluten-free diet for intestinal issues. Intestinal problems resolved fairly quickly; but her behavior got worse for several days. I would say that by about day 5 behavior was significantly better.

Thank you for your time in answering my posting it gives me the hope I needed at this time. He has only been gluten free for two days but I found out that at school he had half of a donut for his friends b-day so technically it's been one day, since we had to start over. Needless to say I have had a talk with his teacher about the diet and she is on board with helping us. The main behavoir issues are temper tanturms that last a while but then when they are over he is totally fine. Thank you again for your response.

swalker Newbie

Dairy is a similiar protein and should be eliminated too for treating ADHD.

His behaviour is worse because he's suffering from withdrawal and it will improve within a couple of days as it takes four days for a food to completely clear your system.

missy'smom Collaborator
He has only been gluten free for two days but I found out that at school he had half of a donut for his friends b-day so technically it's been one day, since we had to start over. Needless to say I have had a talk with his teacher about the diet and she is on board with helping us.

We have a small box that we put treats in and sent to school for the teacher to keep. Whenever someone brings treats or there is a party with things that Ds can't have he can dip into his treat box. Then he brings it home to re-fill. I had asked the teacher to let me know when the birthdays are so I could send in a cupcake but that's never happened and never will but Ds is ok with his treats and the teacher lets him have whatever and as much as he wants from the treat box-which has it's pluses and minuses. I do therefore limit how much stuff is in it at a time. It includes individually packaged snacks that have a long shelf life-some of which I don't buy to eat for snack at home, since they are expensive and not so healthy, so they are really a treat. I try to include one chocolate thing because there are usually chocolate non-gluten-free things-brownies etc. that are always brought in, and a couple healthier options like flavored unsweetened applesauce cups or natural freeze dried fruit pouches and something salty or not sweet. Enjoylife makes packs of 2 cookies-snickerdoodles and choc. chip that I sometimes include. Ian's makes cookie buttons that come in a box of 4 or 5 bags. Ds likes the Glutino "candy bars" as they call them. They are layers of wafers and chocolate-in between a cookie and a candy bar. They come about 5 per box as well. Envirokids bars are often included. There is one company that makes individually packaged rice krispy type treats too that come in a box of a certain number.

Some people, who have more cooperation from the school than I do, have a stash of cupcakes in a freezer at school.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,209
    • Most Online (within 30 mins)
      7,748

    gingerkane77
    Newest Member
    gingerkane77
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.