Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Body Type?


r0ckah0l1c

Recommended Posts

r0ckah0l1c Apprentice

I have heard many times that there is a body type for people who a are gluten intolerant, but I have only seen images of males used. Do women experience it too? What is the distinct body type? I have always thought that it was the lack of butt mixed with the bloated gut because I have seen it mentioned but I want to know what causes it? What can be done to fix it if it truly is gluten related? Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JeriWB Newbie

I am new to this, but I understand those of western European descent are more subject to this than those of different heritage. If this information is correct, that means a wide variety of body types could potentially be affected, of course. I would think this also depends on how long someone is sick before he or she gets nutrition to actually stay in the body and build it up. I started out thin and then became thinner before I went gluten-free. Now I am back up (or close to it) where I started.

r0ckah0l1c Apprentice

Hm...I have found the opposite to be true, I have lost about 10 lbs in the 5 months that I have been gluten free and have had no development of feet or tush padding. I have seen women who reported the bloaty bell goes away, but I have not found that to be true even though I never eat gluten no matter how badly I want to unless I am unaware of it being present.

Generic Apprentice

I was rail thin (anorexic looking). I didn't have the wasted buttocks syndrome or the bloated belly thing. I was sick for 13 years before diagnosis.

r0ckah0l1c Apprentice

Has anybody else here had a problem with muscle development? It took me over 3 years of weight training to get the slightest bit of definition in my arms and I was going to the gym 4 days a week for an hour and a half. My arms are still rail thin, regardless of my weight

msmini14 Enthusiast

Are you eating enough protien? How many calories do you consume a day? If you are working out 4x a week you need to eat in order to build muscle.

When I was sick I lost a bunch of weight. I am 5' 7 and dropped to 114lbs before I was diagnosed. I am back to my normal weight now plus some lol. I get the bloated belly too, I dont know what causes it but I cant stand it.

kdonov2 Contributor

i have been very underweight my entire life. i have a BMI of 15 but I'm short so i don't look quite so emaciated. i do however, get a ridiculous bloated belly after eating certain foods, sometimes even from non-glutenous foods. usually by the morning the swelling has gone down and my stomach is flat again. i also have never been able to build up much muscle. i notice a difference in terms of strength, but visible definition is unnoticeable.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

well, I'm built like a football player, so I don't fit into any of your types.

lovegrov Collaborator

Body type/blood type is useless BS.

richard

Leiana Rookie
Has anybody else here had a problem with muscle development? It took me over 3 years of weight training to get the slightest bit of definition in my arms and I was going to the gym 4 days a week for an hour and a half. My arms are still rail thin, regardless of my weight

yeah muscles are gone and rail thin too. need to gain about 50 lbs. do you mean that we will always look like this.....a skelaton, never to put back on muscle mass????? i hope this is not true. there has to be something out there to help with this. :unsure::angry:

LadyBugLuv Rookie

growing up I could eat for a family of 5 and you could still see my ribs... haha.

those days are gone. it caught up w/ me.

but most of my weight is in my gut, and I do have the bloated belly (though it goes away with gluten free... so great to have my pants/skirts fit again! :)... )

and I've always complained because I have no fanny. it's wide and flat...most women complain their's is too big... I wish mine had a little more padding. haha.

angieInCA Apprentice
Body type/blood type is useless BS.

richard

I agree.

I was always very "healthy" looking even as a child. Meaning I always had about 5 lbs extra weight. I could eat anything I wanted and never gained past my "normal" weight. The only "Celiac Look" I had was a pouchy tummy. No mater what I did it never went away. But I had all the curves to hide it, big breasts, rounded hips and butt and great leg and arm definition. It wasn't until my 40 that I started to gain unhealthy weight. IT crept up slowly and then stayed put. 50 lbs later I was not a poster child for celiac disease so it really made it harder for me to get a DR. to take me seriously. I had 2 GI's take one look at me and say "You can't have celiac disease, you aren't skinny" :rolleyes:

BTW, I was one of those people that didn't know that constant "D" wasn't normal for most people. :lol:

Ms. Skinny Chic Explorer
I am new to this, but I understand those of western European descent are more subject to this than those of different heritage. If this information is correct, that means a wide variety of body types could potentially be affected, of course. I would think this also depends on how long someone is sick before he or she gets nutrition to actually stay in the body and build it up. I started out thin and then became thinner before I went gluten-free. Now I am back up (or close to it) where I started.

You and I are about the same in thinness issues

I think it is bad for people who go undiagnosed for 10 years are more.

Your body really is nutrionallly starved and damaged from the shaved down villi in your intestines...

I am very thin, but I am trying my best to eat healthy and deal with the pain.

I went undiagnosed for a lifetime it seems.. I am in my 30's now.

My family always assumed it was only a allergy.

The more I ate carbohydrates to increase my weight, the more my intestines became damaged.

Ms. Skinny Chic Explorer
I have heard many times that there is a body type for people who a are gluten intolerant, but I have only seen images of males used. Do women experience it too? What is the distinct body type? I have always thought that it was the lack of butt mixed with the bloated gut because I have seen it mentioned but I want to know what causes it? What can be done to fix it if it truly is gluten related? Thank you.

There is a classic celiac body type

http://www.pigur.co.il/imgceliac/celiac.webp ( they tend to be extemely thin...skinny arms and legs and a bloated belly)

People can be extremely thin and extremly healthy..

They have something in common... everyone is really sick.

Jestgar Rising Star
There is a classic celiac body type

http://www.pigur.co.il/imgceliac/celiac.webp ( they tend to be extemely thin...skinny arms and legs and a bloated belly)

People can be extremely thin and extremly healthy..

They have something in common... everyone is really sick.

I think that's more of the classic malnutrition body type. Looks a lot like pics of starving children in poorer countries.

Ms. Skinny Chic Explorer
I think that's more of the classic malnutrition body type. Looks a lot like pics of starving children in poorer countries.

It is the celiac body type.

That is a illustration from a celiac site..

You develop malnutrition, when your intestines are damaged and cannot absorb any nutrients.

I develpoped malnutrition from celiac disease.

I was eating 5 meals a day pre- diagnosis...., I developed nutritional defiences, anemia..( my body didn't absorb vitamins and minerals either. I was admitted to the emergency room many times..

My body suffered from low potassium, pernicous anemia ( b12), iron anemia and so much more...

I never looked like the illustration completely either.

I don't look the same either, as I looked before now...

I think it will improve with time....

Every celiac sufferer has different circumstances & degrees of damage to their intestines. The bodies look different.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.