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47 And 3+ Weeks Ago It All Went Crazy

GB2000

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GB2000 Newbie
GB2000
Posted

Can this just hit you all at once. I thought I could eat anything and Easter day it all went bad. I have been sick since and even in emergency. Tomorrow I go to the gastroligists. sorry about spelling. I cut out all gluten yesterday after the worse day on the toilet. After finding this site Thanks to Elizabeth Hasselback (GMA)I realized I have had this rash around the neck area and even wash tested (negative) for allergies. Bone pain and weird body pains have been the norm. what do I ask my doctor? thanks

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Storm Apprentice
Storm
Posted

Sorry to hear you have been ill...

I would be up front and ask your doctor if it could be celiacs disease!

Been very open with them, my doctor asked if my bowel movements were regular, what colour the stools were etc

Strange I know, but she said it was part of the diagnosis. I was completely open and upfront with all my symptoms and was finally correctly diagnosed after many many months of illness, pain and substantial weight loss...

Good luck, I hope it goes well.. please let us know what the outcome is

GottaSki Mentor
GottaSki
Posted

Celiac has a variety of symptoms...not all are the commonly know ones...best to see a GI that "wants a possible celiac case"...these words came from the primary doc that diagnosed me after many years of mis/undiagnosed problems.

Welcome!

flourgirl Apprentice
flourgirl
Posted

I've had health problems all of my life. 2 years ago I fell apart. My doctor was looking for cancer! I truly thought I was dying. When I was scheduled for colonoscopy, it was decided last minute to do an endoscopy at the same time. Thank God! Finally I had a diagnosis, which I had never heard of, and a new road to travel. While I am doing so much better I still have a ways to go. Have discovered recently that I also have Sjogrens, Fibromyalgia and Raynauds....all auto-immune disorders. Good luck with your visit. Request endoscopy if your doctor doesn't. Keep in mind that a negative result is not always actually negative. Once you've had your tests, even if you don't get a positive diagnosis, you can try the gluten free diet anyway and see if it helps. It certainly couldn't hurt. By the way...I'm 50 :)

msmini14 Enthusiast
msmini14
Posted

I didnt get digestive problems until I was 25 years old. My aunt didnt have problems until she was 16. I am not sure what triggers this. I had food poisoning and was never the same after that.

But I had all the other signs growing up, depression, mood swings, irritability, etc.

Only thing you can do is talk to your doctor and ask him to test you. I wish the best of luck to you and hope you feel better soon.

GB2000 Newbie
GB2000
Posted
  • Author

Finally a doctor that makes sense. Says Viral and after we fix this we retest for Celiac. Thank for all your support. Also says you can have it and a stomach issue sets it free. makes more sense now.

SGWhiskers Collaborator
SGWhiskers
Posted

Although looking back, there were mild symptoms for 10+ years, my "mystery illness" went from normal to crisis over the course of a weekend. It hit hard enough that I went to the urgent care/ER and probably should have gone to the hospital.

Good luck.

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mattathayde Apprentice
mattathayde
Posted
I didnt get digestive problems until I was 25 years old. My aunt didnt have problems until she was 16. I am not sure what triggers this. I had food poisoning and was never the same after that.

But I had all the other signs growing up, depression, mood swings, irritability, etc.

Only thing you can do is talk to your doctor and ask him to test you. I wish the best of luck to you and hope you feel better soon.

hmmm you know i had food poisoning around 14 and i guess my gi issues got worse after that (but i did have some issues before that). other than some GI issues i didnt have any symptoms really other than a bit of being tired, around senior year of highschool i started to gain weight ad then freshman year of college i got more brain fog and slightly depressed.

but ya the symptoms can come on over time or all of a sudden, a stressful event could have triggered more to happen and also i wouldnt be surprised if a stressful event could bring it on all together if you have the genetics for it since it is basically an autoimmune disease that is triggered by something

-matt

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      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
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