Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerance Vs. Casein?


David

Recommended Posts

David Explorer

Hi All:

I am hoping you guys can give me some guidance. I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

there aren't any dairy products that contain casein and *no* lactose. the best way to test is to take something low lactose - cheese or yogurt, for instance - and eat it with lactaid (over the counter lactase enzyme), and see how you do (that's testing for casein, as you're using the enzyme to digest the lactose). then have some milk (something HIGH in lactose) without the enzyme, and see how you do.

David Explorer
there aren't any dairy products that contain casein and *no* lactose. the best way to test is to take something low lactose - cheese or yogurt, for instance - and eat it with lactaid (over the counter lactase enzyme), and see how you do (that's testing for casein, as you're using the enzyme to digest the lactose). then have some milk (something HIGH in lactose) without the enzyme, and see how you do.

That is an excellent suggestion!!! Thank you so very much for all of your help. For some reason, I was able to research and understand a lot about celiac disease (thanks to this forum, of course), but lactose and casein confuse me.

I think I just need to narrow it down between one or the other, then start researching whatever allergy I have

Bee-Jr Newbie

David, hi,

It sounds like what you need is an "elimination diet." Elimination diets are used exactly for the purpose you're describing - isolating food intolerances and allergies. These diets are also called "anti-inflammatory diets" too; the two are very similar.

I may have this wrong, but my understanding of the lactose/casein thing is as follows: (1) If you react to lactose (because it's a sugar), the reaction is because of an intolerance, and results mainly in digestive disturbances, but (2) if you react to casein (because it's a protein) the reaction can actually be because of an allergy, and can result in manifestations on your skin (such as hives) or in the respiratory system (such as anaphylaxis). What I had read is that only proteins can cause true allergic reactions; other substances cause intolerances. An antihistamine like Benadryl can help with an allergy but not an intolerance.

In a nutshell, though, to go through an elimination diet, you'd start by removing the following (these are the most common allergens): wheat (of course), dairy, soy, peanuts, corn, eggs, sugar, artificial sweeteners, nightshades (tomatoes, potatoes, peppers except for black pepper), sugar, and citrus fruits. This part of the diet should last at least a couple of weeks. Then, once every few days, you add back ONE FOOD AT A TIME and see how you react.

There are tons of sites on the Internet that will give you more thorough information about this, if you should decide to try it. I did it myself, and it has helped me take off 63 pounds. It has changed my life, and pulled me back from the edge of what I really believe was an impending health catastrophe. I also learned of my gluten and lactose intolerance and a peanut allergy this way. I'd had no idea that I was sensitive to any foods before, just couldn't understand why my health was so terrible and I absolutely could not lose weight. It's been a miracle for me.

Good luck.

Janie

David Explorer

Janie:

Thank you so very much for all of your help.

What I love about this forum is you can always find someone who has already experienced the same issues you are going through. Not only does it help solve the problem, but it also eliminates the feeling of isolation.

At any rate, I

missy'smom Collaborator

I recently learned of a blood test that can be done. Someone pointed out this lab to me Open Original Shared Link. Look under allergy testing to find the egg milk subfraction test. They used it. I have not so check it out for yourself and don't just take my word for it. For the heck of it, I ran it by my doc. and he checked with the lab that his office uses and they had a similar tests available so I'm going to have it done there and hope that insurance helps. Without insurance, the test through my doctor's office was very close in price, but it excluded one of the milk proteins and offered testing for that particular one as a stool test. I'm going to opt for the serum panel and see what it turns up and skip the stool test for now. After a lifetime of dairy issues, I'm out of patience for figuring it out myself so I hope for clear direction! I eliminated all dairy for a long time and felt much better overall without it but I have other significant restrictions on my diet so if there are some forms that I can include in my diet it would be helpful. Good luck in your search for answers.

David Explorer

MissysMom:

Thanks for your response. I am so grateful for all of these excellent responses! I just did a preliminary check on their website, and the fees actually look reasonable (much better than going to a doctor without insurance, at least).

I think I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JenCO Newbie

I'm both lactose intolerant and dairy (probably casein) intolerant.

For me, the two intolerances cause different reactions.

If you are lactose intolerant it means that your body does not produce the enzyme lactase which is needed to digest the lactose. My symptom is that I will feel sick within a few minutes of eating something containing a pasteurised dairy product.

The pasturisation process destroys the lactase enzyme which naturally occurs in milk. In the UK, it is possible to get unpasteurised milk (but only directly from the farm). I tried this, and sure enough, I didn't feel sick after eating it. However, within a couple of weeks I started to get eczema, which I had never had before (I used to be a vegan). So obviously I was dairy intolerant too. If you are dairy intolerant, you may have ezcema, or of course you may have a completely different reaction.

I hope this helps.

To answer one of your other questions, the only place I've seen lactose without casein is in some medications, but they tend to be in very small amounts, so you would have to be very sensitive to notice them.

KevinG Apprentice
there aren't any dairy products that contain casein and *no* lactose.

Interesting, tarnalberry. On the flip side, are there any foods that contain high lactose but low casein?

In one of your other posts, you mentioned 4 types of adverse reactions to dairy (temporary lactose intolerance, genetic lactose intolerance, dairy allergy, and casein intolerance). Is there any kind of ad-hoc dairy elimination diet I can try in order to isolate what aspect of dairy is the culprit in my case? I tried your recommendation of eating yogurt with lactaid, and I still have problems. Now I'm trying to figure out if I can narrow it down even further (e.g. cow vs. non-cow, casein vs. some other ingredient, etc). Any ideas?

Thanks,

Kevin

  • 2 weeks later...
RollingAlong Explorer

I haven't tried it, but there's a product at www.countryfreshfarms.com that is a whey based milk. They claim to cater to the lactose and casein intolerant.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.