Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Heal A Leaky Gut


Yoekie

Recommended Posts

Yoekie Apprentice

It's been 6 months since I was diagnosed with leaky gut. I've taken probiotics every morning, fish oil supplements and followed a strict gluten/wheat/diairy/egg free diet. And nothing's changed!!

I still have sensitive bowels (and stomach), I haven't gained anything, I still need 12 hours sleep and feel exhausted nevertheless. I have a chronic throatache, headache, bleeding gum, am feeling dizzy and have a bad inflammation on my hip :o I don't know what to do.

How do you know you have a leaky gut, then how do you heal it? And -perhaps most importantly- how do you know when it's healed??

Last week I was in a rash on the palm of my hands, but I'm sure I had not eaten any of the 'forbidden' foods. Yet, with a leaky gut, I guess you can become intolerant to whatever comes into your bloodstream, if not wheat and diairy, than corn and soy, no? So what's the point in following a gluten-free diet? I'm not celiac.

Anyone any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chatycady Explorer
It's been 6 months since I was diagnosed with leaky gut. I've taken probiotics every morning, fish oil supplements and followed a strict gluten/wheat/diairy/egg free diet. And nothing's changed!!

I still have sensitive bowels (and stomach), I haven't gained anything, I still need 12 hours sleep and feel exhausted nevertheless. I have a chronic throatache, headache, bleeding gum, am feeling dizzy and have a bad inflammation on my hip :o I don't know what to do.

How do you know you have a leaky gut, then how do you heal it? And -perhaps most importantly- how do you know when it's healed??

Last week I was in a rash on the palm of my hands, but I'm sure I had not eaten any of the 'forbidden' foods. Yet, with a leaky gut, I guess you can become intolerant to whatever comes into your bloodstream, if not wheat and diairy, than corn and soy, no? So what's the point in following a gluten-free diet? I'm not celiac.

Anyone any ideas?

You sound like me last year! I was miserable. I was gluten free but had similar simptoms. I knew if I ate only plain meat and fresh veggies I did better, but I couldn't figure out the rest until I came across the Specific Carbohydrate Diet. I found the website and bought the book and have made great progress. Each of us is so different so each of us has different food issues, but I'm healing and now have been able to add small amounts of my problem foods back in.

I am able to eat the homemade yogurt and find it satisfying. I can not do any other milk product as I don't have the enzymes to split the sugar molecules. I read everything on all the websites about the diet. It has helped me, and my two sisters who are having the same problems.

Make some beef broth (recipe on the website) and add fresh veggies and eat that for a day or two and see if you feel a little better. I've been on the diet 8 months and each month I got stronger, had more energy and feel much younger.

I recently found I am very low on vitamin D and since taking the supplements I've made more progress.

God bless you and may you heal too!

P.S. I found I can't take supplements - such as probiotics etc. They have ingredients in them that bother me such as starch, sugar and other stuff.

Yoekie Apprentice

People already suggested trying it 6 months ago when I joined the forum. I read about it, then rejected the idea because carbs are what I hang on to when I'm not feeling well. Most of the time I'm not hungry, and tasteless food (which is carbs!) are the only thing I get down easily. As does a bananamilkshake but I guess even that's 'forbidden' in SCD... so I don't know what on earth I'd live from. And then I'm not sure it's the food. Maybe it's my nervous system, my immunity system or both. Going without carbs could weaken those even more... I don't know.

But thanks anyway for sharing what helped for you!! I wish you all the best in your recovery!

chatycady Explorer
People already suggested trying it 6 months ago when I joined the forum. I read about it, then rejected the idea because carbs are what I hang on to when I'm not feeling well. Most of the time I'm not hungry, and tasteless food (which is carbs!) are the only thing I get down easily. As does a bananamilkshake but I guess even that's 'forbidden' in SCD... so I don't know what on earth I'd live from. And then I'm not sure it's the food. Maybe it's my nervous system, my immunity system or both. Going without carbs could weaken those even more... I don't know.

But thanks anyway for sharing what helped for you!! I wish you all the best in your recovery!

I hope you will reconsider. Carbohydrates cause a leaky gut. There is no magic pill (pro-biotic) that will heal a leaky gut. It's only through diet and restoring the balance of good bacteria will one finally heal. There are wonderful cook books for the SCdiet. I just made some homemade butter pecan ice cream that is delicious and it is full of good bacteria (natural probiotic.) I eat a big bowl full before I go to sleep and the calcium & protein gives me a good nights rest. I too use to be exhausted and could sleep 24-7.

Take care - I hope you find an answer to your problems.

P.S. Carbs weaken the immune system. Fresh fruits and veggies strengthen it, as they contain wonderful enzymes that keep us strong. Carbs (sugar and starch) cause inflamation - possibly your hip trouble. Sore throat, and upset stomach. Do a websearch on carbs and leaky gut and see what you find.

Yoekie Apprentice

I could give it a try but I have very little resources since I live in Belgium and you simply don't hear of 'SCD' around here. Only low-carb diets to loose weight but that's not what I want!! Didn't you loose weight?

I can't get nut butter around here. Can I use walnut/chestnut/coconut powder? I could bake biscuits with them. Would it make a difference if I eat low carb, or should it really be strict no-carb to make a difference?

thanks for informing me about the immunity-thing, it matters greatly to me.

Ms Jan Rookie

Hi Yoekie,

The SCD can be done no matter where you live. I live half the time in Denmark, and some years ago I lived in Belgium, and you can get enough of the necessary produce - and if you need any specific stuff, or SCD legal supplements, you can always order them on the internet.

The diet is all about eliminating additives, grains and highly processed food that feed the bad bacteria rather than our bodies. Thus, it's simply back to basics: vegetables, fruits, meat, fish and nuts, a few very specific dairy products as well as honey (the last two I don't eat myself). If you buy whatever is in season locally, it doesn't have to be expensive. And if you eat sufficient amounts of nuts and good olive and coconut oils, you shouldn't worry about loosing weight. Because you're building strength by feeding your body properly.

And instead of banana milkshakes you can do your own fruit smoothies: just blend some fruits you like with a banana and a little water, and there you go ... Delicious and very healthy !

Read up on Breaking the Vicious Cycle, and SCD websites - and maybe the long SCD thread here. And if you do it, commit to it fully. It's a total turn around of your gut flora, so to trying to make up for the lost carbs by eating only baked SCD legal foods, wouldn't do it. You've got to get started on the greens also.

btw, even now four months into the SCD, I still can't eat anything made of nut-flours. It's just too processed for me. But living on my sauteed vegetables and boiled chicken, I'm healthier and more enrgetic than in years - so to me it's all worth it.

Good luck!

RiceGuy Collaborator

I can only say what worked for me, which was the gluten-free diet, low protein, supplements, and time. I found proteins were leaking the most, so I cut back on them until I saw sufficient improvements.

Some of the symptoms you describe can easily be from nutrient deficiencies, which you are prone to have with a leaky gut. Do you take B-vitamins, sublingual B12, and/or minerals? The fatigue, bleeding gums, headache, and so forth can be caused by deficiencies, regardless of what blood tests suggest. Since, they are cheap and safe, I'd think it's worth a try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yoekie Apprentice

Okey I'm now giving it serious consideration.

I know my parents will think I'm starving myself and I don't like the introduction diet at all but I really need to get better so I'm prepared to try a lot... maybe even SCD, who knows.

I'll do some more reading first.

  • 2 months later...
Zathras Newbie

Yoekie,

I haven't logged in for a long time, but your post caught my eye because I'm also trying to figure out how long it takes to heal up from leaky gut. I am highly allergic to gliadin, one of the proteins that makes up gluten, and this allergy created the my leaky gut condition. LG led to multiple food allergies because of the large particles of food and other substances that got into my bloodstream. My body's symptom of choice is post nasal drip, congestion, and coughing - a histimine response.

I was so frustrated I finally had a blood test done for food allergies - and came up with 74 food and food additives that I'm reactive to, and a few other chemicals besides. Well worth the money to know what to avoid. It's not easy, but I would highly recommend getting a food allergy test done - not a skin scratch test, but a blood test.

There's probably a naturpath in your area that can help you do that. That should help your symptoms, and but be aware of the the hidden ingredients of supplements! Cross contamination of supposedly gluten free grains, proteins that are similar enough to gluten that I have an allergy response ( I call them gluten mimics), pectin from apples, gelatin from beef, cream of tartar from grapes, etc., but I'm told that if I stay away from all of these substances for 3-12 mos my body should be able to tolerate those items again - and I'm taking aloe vera juice nightly to help heal the leaky gut so the allergies don't re-develop.

Hope you're feeling better!

happy2bme Newbie

Probiotics (eneric coated) dairy and soy free

glutamine (very important)

minimize sticky carbs

stay away from red meat

chicken broth and fish are great protein. My doctor said to sip on the broth throughout the day for it is a great source of protein for those on a strict diet

Stay away from dairy all together

MSM, glucosamine and collagen supplement

Also get tested for fungus and parasites by an alternative practitioner. I say alternative as far as one who has great experience in stool testing. The test will be more accurate and they catch more. Standard labs are not as up to date and miss most issues.

Goodluck and Godbless

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.