Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Any One Experienced More Effects From Caffeine After Going gluten-free?


mattathayde

Recommended Posts

mattathayde Apprentice

Ok so ive started cutting out gluten about april 08, got strict with my self in july 08 and found i was using some glutened products in food still between jan-march of this year (not all the time but a few time here and there). any way ive noticed that i seem to be having some anxiety/feeling just "off" lately and was wondering if logically since im able to absorb more stuff now via intestine if maybe im picking up more caffeine causing me to feel weird?

-matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Billygean Apprentice

I gave up caffeine when I gave up gluten in June 08. I tried to reintroduce it and every time I did I had basically panic attacks. It has a MAJOR effect on me!

mattathayde Apprentice

it doesnt happen all the time (i drink a lot of loose leaf tea and dont feel like this all the time), but since i drank a gallon of sweet tea in basically 2 days a couple months ago it seems to hit me more this way but only some times.

i guess i did take in a good amount of caffeine yesterday (32 oz cup of sweet tea, 2 cups of hot tea, and one of the super extreme huge refillable big gulp things of a coke slurpee)

but a few days ago i was feeling weird and i dont think i had a whole lot of caffeine then, probably a quart of sweet iced tea and then a 2 cups of black tea and the rest was no caffine

-matt

Ahorsesoul Enthusiast

Before going gluten free I drank several POTS of coffee and at least 3 liters of coca cola daily. The caffeine didn't seem to bother me. Now that I'm gluten free if I drink 1 cup of regular coffee after 12 noon I'm awake all night.

Liveenjoylife Apprentice

I know what you mean. After I diagnosed my self with celiac disease I noticed I was having an upset stomach after drinking caff. coffee. It made me want to vomit. Haven't touched it since. I thought it was all in my head so I am relieved to read that it wasnt, lol.

mysecretcurse Contributor

Yes, most definitely. Caffeine effects me a lot. In fact, since going gluten free it seems EVERYTHING effects me more than it used to.

ang1e0251 Contributor

I had to give up coffee as it was causing tremors of my tongue and jaw. But I don't think it was the caffiene as I have more caffein now in tea than I used to. But there are certain teas that really make me feel bad, I don't know why. They don't appear to have gluten in them but made me really sick. I just had to stop drinking those kinds. And strangly the tea from McDonald's makes me gain weight! Sweetened or unsweetened! That's really weird...sigh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mattathayde Apprentice
I had to give up coffee as it was causing tremors of my tongue and jaw. But I don't think it was the caffiene as I have more caffein now in tea than I used to. But there are certain teas that really make me feel bad, I don't know why. They don't appear to have gluten in them but made me really sick. I just had to stop drinking those kinds. And strangly the tea from McDonald's makes me gain weight! Sweetened or unsweetened! That's really weird...sigh

hmmmm just goes to show that McD's is making america fat ;) thats weird though since tea should make you lose weight

i slept a lot better last night and had basically no caffeine so i guess i need to play with how much i can take in a day. i am pretty sure i can drink a good amount of it just need to remember if i get one of those slurpies to not have any other caffeine

-matt

  • 1 month later...
Kitface Newbie

I was wondering if there was gluten in Relentless energy drinks. cos one can does me ALL day. I dont get how people can drink a can of red bull or wahtever in 10 minutes. if i do i go loopy and my heart races and i feel really anxious. so i figured they had gluten. i guess it could be the faster absorbing-ness-thing :)

boysmom Explorer

It makes sense to me. I only drink coffee or caffeinated drinks (tea or dr pepper) a few times a week annd haven't noticed any issues yet, but I have noticed if I drink a glass of wine I start feeling really loopy for about an hour and had about decided to just take a couple sips of my dh's instead of my own glass.

rueyn Apprentice
Ok so ive started cutting out gluten about april 08, got strict with my self in july 08 and found i was using some glutened products in food still between jan-march of this year (not all the time but a few time here and there). any way ive noticed that i seem to be having some anxiety/feeling just "off" lately and was wondering if logically since im able to absorb more stuff now via intestine if maybe im picking up more caffeine causing me to feel weird?

YES! I was drinking 3-4 cups of black tea a day before I went gluten-free, and now (four months later) if I had anything more than one small cup of green tea in the mornings I can't sleep at night. It's crazy, isn't it? I guess things it must just absorb more, plus you're probably not nearly as fatigued as you were before going gluten-free, so your body doesn't need all the caffeine?

ranger Enthusiast

I, too, have gone from 1/2 pot to one cup of coffee a day. Guess it's not all in my head. I'm thinking about just giving it up. My coffeepot went kapute and I'm seriously thinking of not replacing it!

cbear6301 Explorer

Very happy to see this.. I thought I was going crazy....coffee has a completely different affect on me than it did before... Thanks for this post.

taweavmo3 Enthusiast

Just last week I gave up my beloved coffee! I only drank one cup a day, but man did I love that cup each day. Anyway, I think it was tearing up my stomach and causing my heart to race. My stomach over time has become more and more sensitive to things, and it was gettting to where I was scared to eat anything. One morning, after a new brand of coffee (which is gluten free, but maybe stronger?) my heart was in the 120's all day. I haven't had coffee since then, and I feel ten times better. I actually feel like I have more energy, and slowly my stomach is tolerating more foods. I still can't tolerate refined carbs, such as any baked goods :( , b/c they also make my heart race and kill my stomach, not sure what the deal is there, lol.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.