Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Sound Like Celiac Disease?


ZackMacc

Recommended Posts

ZackMacc Newbie

I am recently recovering from a bout of clinical depression during which I lost a considerably amount of weight. The weight loss was not unexpected since I literally was not eating over a course of 4 to 5 months. The weight loss episode was very similar to an anorexic type of experience...that is, eating very little, and exercising vigorously. I am coming out of this now, but I am having a hard time regaining any weight despite that I am eating. I am in the midst of a series of tests that are coming back negative (e.g. colonoscopy, CT scans of my pelvis, abdomen, etc.). I am having a endoscopy done this week. The blood test for celiac disease was negative. All organ function tests are normal (e.g. liver, kidneys, pancreas, thyroid, parathyroid, etc.). The only notable result was my iron was low, but the blood cell counts, etc., normal.

The doctor ordered these tests due to my symptoms, namely, slowing of bowel movements, feeling lightheaded and out of it which seemed to occur mainly after eating (my glucose tolerance test was a little off, but normal). One notable episode in particular occurred after eating a flat bread sandwich where I thought I was near passing out. Yet I have no nausea, vomiting, diarrhea, nor any evidence of blood in my stools, etc. I switched as best I could to a gluten free diet for the past week, as well as increased my food intake, and the symptoms seem to have subsided a bit. Especially the lightheadedness. My bowel movements actually increased in frequency somewhat, but I am not gaining weight.

I know celiac symptoms can vary...but does this sound like a possibility? Will the endoscopy tell the tale? I appreciate any advice...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

It could be, as you mentioned, celiac disease reactions are varied. But you need to be eating gluten in order for your testing to be accurate. Eat gluten right up until your test time. You can switch back to gluten-free right after your test. Even if your test result is negative, if gluten-free makes you feel better, go ahead and follow the diet. You could be gluten intolerant there is no test for that.

Did you know that gluten can factor into depression and other mental conditions as well? It wouldn't be surprising if gluten-free eating helps you in that regard also.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,826
    • Most Online (within 30 mins)
      7,748

    Martis
    Newest Member
    Martis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.