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Celiac Blood Panel - No Conspiracy Here!


yellowlilax

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yellowlilax Rookie

Went to the dr for my chronic diarrhea/constipation alternating problem and she ordered celiac panel test, milk allergy test (this I asked for though), complete blood count, amongst others. I didnt even ask for celiac. I cant believe how much I've read on here that so many doctors wont test for it even when asked? I thought that I would have to beg and plead for it and no big deal here. I guess I'm fortunate! Now we shall see what the results are. I have a stool sample in at Enterolab that should have results by Tuesday...this other test I might know today. I tested negative on the Biocard blood test (now I wish I wouldnt have wasted the $100 on it - I just assumed from all the posts here that my dr would refuse to test me). Don't assume I guess! Wish me luck!


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Jestgar Rising Star

Some docs are more aware than others...

FMcGee Explorer

The person who first told me I probably had celiac disease was a doctor at my university's student health care center. That's right, a doctor among what is probably the most-maligned group of medical professionals. The people we joke about being able to diagnose only pregnancy and seasonal allergies. She tested me for celiac disease without my asking for it, and she (not a celiac herself) was absolutely right. She sent me to a GI doctor, and I ended up seeing the PA, who was all "well my cousin has celiac disease but she still eats pizza and just deals with the consequences." So, you never know what you're going to get.

happygirl Collaborator

Happy you have a doctor well versed in Celiac!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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