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Vitamin K Deficiency


Candy

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Candy Contributor

I read on a science page somewheres that von Willebrand Disease can cause bleeding ,mostly excess menstrual, but also in the joints, and bruising. I took note of it because ,I have leaky blood,and a kindly Angel (it's an evil world,so she must have been an Angel ,as many on this forum are) on this site told me to take Vitamin K- but get K2 if you can, it's known to be easy on the heart and stays in the blood longer ($6-8 at vitacost.com or anywhere you like).

Anyway,getting back to von Hillebrand Disease, I read on wikipedia that there are two forms of it .One inherited and the other Aquired By People With AutoImmune Antibodies; believe it or not Celiac Disease and Sjogren's Disease (I have both) were listed,but also remember that there are many AutoImmune Diseases and AutoImmune Antibodies Out There ,so also listed were Type-1 Diabetes, Lupus, Rheumatoid Arthritis and the like ,many of which Co-exist along with Celiac Disease. SO Celiacs COULD have aquired von Willebrand Disease through having AutoAntibodies.I don't know the URL address of where I found and read this,but there is a good explanation of it at wikipedia here. Open Original Shared Link .org/wiki/Von_Willebrand_disease

From Candy

PP I love this forum,without it I'd be dead for sure,and no one would know what from.But I don't like the gluten-free store; they far too pushy-I eat regular foods meat and potatoes and go to whole Foods for gluten free flour.


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strawberrynin Newbie

Possibly an old wives tale, but I had once heard that some exposure to sunlight helps increase the absorption of Vitamin K.

Candy Contributor
Possibly an old wives tale, but I had once heard that some exposure to sunlight helps increase the absorption of Vitamin K.

Yeah well, Lynn, sittin' in the sun all day ain't practical or safe for most people.

Besides supplement is sold , so somebody must need it and my Celiac blood is runny;For your information some foods contain Vitamin K like Olive Oil,and Parsley,but it ain't practical to sit around eatin' Parsley and Olive Oil all day either.....but I have switched to all Olive oil for my cooking since I hear it is good for people.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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