Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Do Now After Exposure?

spoticus

Recommended Posts

spoticus Rookie
spoticus
Posted

Hi - I could use any suggestions advice you have. Gluten Free since Sept 08, biopsy negative for celiac.

Last Friday I ate something inadvertently that had gluten in it. Within 10 minutes I was reacting; bloatedness, burps that sounded like they came from my toes, and a burning sensation in my stomach and cramping a little further into the intestines. It didn't take long for it to be consuming. I braced myself for the domino effect over the next 48 hours - and that is just how it went.

It is now the Thursday after exposure and my stomach burns still. There is no reflux - it is just a burning sensation and when I try to eat a small meal I immediately get gas and cramping. I started taking extra probiotic supplements Monday...It was so bad last night when I tried to eat a small salad and a fruit puree /smoothie with goat milk that I only dare to try some goat milk yogurt and small bites of a prana bar.

I don't know what else I can do to get through this or when this is something I should present back at the dr office (if at all).

Bridget

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa16 Collaborator
Lisa16
Posted

In general it has to run its course and a doctor cannot do very much for you.

There are some things you can try:

Eat some whole cloves for the burping (they help me for a bit and then I have to eat more)

Try to take some gluten-eze. This is an enzyme that supposedly keeps you from digesting the gluten. I find it is helpful for accidents, even though they say you should take it before hand (ha! Like you know you are going to get glutened that day!)

Try some papaya and bropmedliad (pineapple) enzymes.

Teas-- camomile, green tea, hibiscus-- what ever. Keep yourself hydrated.

A hot bath and/or a heating pad.

And safe comfort foods-- soups, etc. Keep the ingredients simple. I find a salty warm broth helps-- glutino, better than bullion, herb-ox, etc. Or even better, homemade.

Maybe keep away from dairy for a bit because it is hard to digest even under normal circumstances.

I hope you feel better soon. I got glutened recently too and it is upsetting.

spoticus Rookie
spoticus
Posted
  • Author

Thank you very much for all the ideas. I appreciate them and my husband is grateful for the tips too ~ he has something more concrete to work with. It has been frustrating and upsetting not only for me but the rest of the family too.

I am so grateful for the people like you that know and understand.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

      Remember that damage to the small intestine can be microscopic and patchy. Deficiency in Thiamine can result in Gastrointestinal Beriberi. The symptoms are the same as a glutening! Clinical profile of patients presenting with thiamine-responsive upper-gastrointestinal upset: A pointer toward gastric beriberi https://pubmed.ncbi.nlm.nih...
    2. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

      Of course, I thought about the OP not being consistent with the gluten-free diet and about cross reactivity. But you would think those things would show some damage in the biopsy, especially as severe as the symptoms seem to be. SIBO? Perhaps. But then we are probably leaving a celiac diagnosis and that is the question.
    3. knitty kitty
      - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      38

      Blood results

      Processed meats and formed meats, like sausage, sandwich meats, chicken nuggets, contain "meat glue" to hold their shape. This "meat glue" is produced by bacteria and called microbial transglutaminase. It's the same structually as tissue transglutaminase that our bodies produce in response to gluten. Microbial transglutaminase provokes the same autoimmune...
    4. knitty kitty
      - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

      How clean is her gluten free diet? Is dairy included? Does she eat out? SIBO? Thiamine deficiency presenting as Gastrointestinal Beriberi?
    5. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      Insomnia help

      There's more essential vitamins than B12 and Vitamin D! Thiamine is B1. Thiamine deficiency causes insomnia. Thiamine deficiency causes changes in brain function resulting in anxiety, insomnia, depression and dementia. The brain uses more thiamine when stressed emotionally or physically. Interesting Reading: Subclinical Thiamine deficiency...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,466
    • Most Online (within 30 mins)
      7,748
    Bigbear
    Newest Member
    Bigbear
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Confused about HLA-DQ Celiac gene test result

      By knitty kitty · Posted

      Remember that damage to the small intestine can be microscopic and patchy. Deficiency in Thiamine can result in Gastrointestinal Beriberi.  The symptoms are the same as a glutening!    Clinical profile of patients presenting with thiamine-responsive upper-gastrointestinal upset: A pointer toward gastric beriberi https://pubmed.ncbi.nlm.nih.gov/35810577/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dental problems can result in vitamin and mineral deficiencies due to Malabsorption in Celiac Disease. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      Of course, I thought about the OP not being consistent with the gluten-free diet and about cross reactivity. But you would think those things would show some damage in the biopsy, especially as severe as the symptoms seem to be. SIBO? Perhaps. But then we are probably leaving a celiac diagnosis and that is the question.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Processed meats and formed meats, like sausage, sandwich meats, chicken nuggets, contain "meat glue" to hold their shape.   This "meat glue" is produced by bacteria and called microbial transglutaminase.  It's the same structually as tissue transglutaminase that our bodies produce in response to gluten.  Microbial transglutaminase provokes the same autoimmune reaction in our bodies as if we had eaten gluten.   Microbial transglutaminase is also used in dairy products like yogurt.   Bacon is high in histamine.  Eating high histamine foods can cause continuing gastrointestinal symptoms.  A low histamine diet helps. Processed gluten free processed foods are not enriched with vitamins and minerals like gluten containing products are.   Deficiencies in Thiamine B1, Niacin B3, and  Vitamin C can also result in gastrointestinal symptoms.   Blood tests for B vitamins are not accurate because they don't measure the amount of a vitamin stored inside cells.  The blood is a transportation system delivering vitamins from the digestive tract around the body.  What's on a truck doesn't tell you that the warehouse is almost empty.   Supplementing with B vitamins is important! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/
    • knitty kitty
      Confused about HLA-DQ Celiac gene test result

      By knitty kitty · Posted

      How clean is her gluten free diet?  Is dairy included? Does she eat out?  SIBO?  Thiamine deficiency presenting as Gastrointestinal Beriberi?
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      There's more essential vitamins than B12 and Vitamin D!   Thiamine is B1.  Thiamine deficiency causes insomnia. Thiamine deficiency causes changes in brain function resulting in anxiety, insomnia, depression and dementia.  The brain uses more thiamine when stressed emotionally or physically.   Interesting Reading: Subclinical Thiamine deficiency causes anxiety, insomnia and depression... https://www.psychiatryredefined.org/running-on-empty-subclinical-thiamine-deficiency-is-common-and-causes-depression/#:~:text=Early signs of low thiamine,low appetite%2C and sleep disruption. Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Sleep and indolamine alterations induced by thiamine deficiency https://pubmed.ncbi.nlm.nih.gov/6182942/ Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.