Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Do Now After Exposure?


spoticus

Recommended Posts

spoticus Rookie

Hi - I could use any suggestions advice you have. Gluten Free since Sept 08, biopsy negative for celiac.

Last Friday I ate something inadvertently that had gluten in it. Within 10 minutes I was reacting; bloatedness, burps that sounded like they came from my toes, and a burning sensation in my stomach and cramping a little further into the intestines. It didn't take long for it to be consuming. I braced myself for the domino effect over the next 48 hours - and that is just how it went.

It is now the Thursday after exposure and my stomach burns still. There is no reflux - it is just a burning sensation and when I try to eat a small meal I immediately get gas and cramping. I started taking extra probiotic supplements Monday...It was so bad last night when I tried to eat a small salad and a fruit puree /smoothie with goat milk that I only dare to try some goat milk yogurt and small bites of a prana bar.

I don't know what else I can do to get through this or when this is something I should present back at the dr office (if at all).

Bridget


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa16 Collaborator

In general it has to run its course and a doctor cannot do very much for you.

There are some things you can try:

Eat some whole cloves for the burping (they help me for a bit and then I have to eat more)

Try to take some gluten-eze. This is an enzyme that supposedly keeps you from digesting the gluten. I find it is helpful for accidents, even though they say you should take it before hand (ha! Like you know you are going to get glutened that day!)

Try some papaya and bropmedliad (pineapple) enzymes.

Teas-- camomile, green tea, hibiscus-- what ever. Keep yourself hydrated.

A hot bath and/or a heating pad.

And safe comfort foods-- soups, etc. Keep the ingredients simple. I find a salty warm broth helps-- glutino, better than bullion, herb-ox, etc. Or even better, homemade.

Maybe keep away from dairy for a bit because it is hard to digest even under normal circumstances.

I hope you feel better soon. I got glutened recently too and it is upsetting.

spoticus Rookie

Thank you very much for all the ideas. I appreciate them and my husband is grateful for the tips too ~ he has something more concrete to work with. It has been frustrating and upsetting not only for me but the rest of the family too.

I am so grateful for the people like you that know and understand.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    2. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,435
    • Most Online (within 30 mins)
      7,748

    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
    • Scott Adams
      In the USA only wheat-based breads are fortified with certain vitamins, but not gluten-free breads, thus we typically encourage celiacs to take multivitamin supplements.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.