Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dentist? Will Just Any Do?

g1gg1e

Recommended Posts

g1gg1e Rookie
g1gg1e
Posted

One issue with our YDD is she has low enamel...we noticed last night ( at tooth inspection ) that she has a cavity on a molar.

What do you look for in a pediatric dentist? Do you have any tips for going to one with a child with Celiacs?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Foxfire62 Newbie
Foxfire62
Posted
One issue with our YDD is she has low enamel...we noticed last night ( at tooth inspection ) that she has a cavity on a molar.

What do you look for in a pediatric dentist? Do you have any tips for going to one with a child with Celiacs?

I recommend bio dentists.

g1gg1e Rookie
g1gg1e
Posted
  • Author
I recommend bio dentists.

I found a holistic Dentist , he normally sees adults but said he would see her because of her condition :)

Wish us luck!

Rondar2001 Apprentice
Rondar2001
Posted

I would send her to a dentist that specializes in kids. Try checking with your own dentist for any recommendations.

g1gg1e Rookie
g1gg1e
Posted
  • Author
I would send her to a dentist that specializes in kids. Try checking with your own dentist for any recommendations.

Yeah....I haven't been in 10 + years...Ive never had a cavity or any issues LOL that would be a great place to start though.

Every one that Ive talked to on the phone either had not ever seen a child with Celiacs OR my friends had said they have had there issues blamed on nursing , bad diet etc...the kid hardly ever has refined sugar , colorings , eat whole foods , out of the garden etc...I'm just wanting someone experienced.

I'm thinking we will go with the guy I called and had 2 recommendations for and then if she needs any work I may then take her for a 2nd opinion...not sure..

Dentist make me nervous.

Roda Rising Star
Roda
Posted

We have always had great experiences with dentists and we go faithfully every 6 months. I started taking both my boys to my regular 6 month checkups even before they started going themselves. The dentist would let them sit in the chair and show them the tools. They also watched me get my cleaning and check ups. By the time they were both two they were very comfortable and let them do anything. We see a regular dentist and not a pediatric one. My oldest(8yo) is having issues with cavities between his teeth. Our dentist is aware of me having celiac and is great. I asked her if my oldest had enamal problems and she said his teeth are good and that his teeth are very tight together for baby teeth. My youngest (4yo) had some cavities come up on his 2 year molars. Since he was only three at the time she was not confortable filling his and we were referred to a pediatric dentist. They were great and my youngest one did great. They did not let me go with him and he did it all by himself. This year he had to have the other two finaly filled and I told our regular dentist that he did so well for the other one and asked if she would consider filling them. She did and I again sent him back by himself and he did wonderful. If you have not had any dealing with a dentist in a long time yourself, then I would go with the ped dentist since your child is so young, having issues, and has never had a previous experience.

  • 2 weeks later...
g1gg1e Rookie
g1gg1e
Posted
  • Author

Well we have been to two dentists now. The first did not charge us and wanted to see Celiac teeth AND educate himself more. He referred us to a Ped dentisit ( #2). That one was not for us ( he kept saying her allergy was a "factor" , but that it was because she was eating to often etc. ) , He didn't know what Celiac was nor do I feel the urge to educate or argue with him further.

We are going now to Dentist #3. YDD has 4 cavities that we know of now :(

Wish us luck and support finding someone to work with that doesn't think she eats candy all day!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DentalMom Newbie
DentalMom
Posted
Well we have been to two dentists now. The first did not charge us and wanted to see Celiac teeth AND educate himself more. He referred us to a Ped dentisit ( #2). That one was not for us ( he kept saying her allergy was a "factor" , but that it was because she was eating to often etc. ) , He didn't know what Celiac was nor do I feel the urge to educate or argue with him further.

We are going now to Dentist #3. YDD has 4 cavities that we know of now :(

Wish us luck and support finding someone to work with that doesn't think she eats candy all day!

As a dental hygienist I am sadden to say that my profession is not well versed in celiac enamel defects. When my daughter's teeth erupted severely decalcified neither my dentist employer or the pediatric specialist (and instructor at MD Dental School) that I took her to even mentioned celiacs as a possibility. My own employer accused me of feeding her candy!!! I am a hygienist for goodness sakes!! My other children have no dental issues. It was not until her intestinal issues had her on daily meds that I began researching this link. Interestingly, I spoke to her pediatrician and she also had no knowledge in the area. I think you should consult a registered dietitian and ask him/her if they know of a dentist that has a special interest in this.

I treated my daughter with a low sugar diet, using sweeteners like Splenda and Xylitol. Splenda is easier to handle then artifical sweeteners and Xylitol has cavity fighting properties. Three month fluoride varnishes and frequent check ups would be helpful. Most importantly, daily brushing by mom or dad with a fluoride paste (if she can rinse and spit if not MI Paste which is a calcium supplement) and FLOSSING are the best you can do to cut her risks down drastically.

GOOD LUCK, and sorry we have been so clueless... I am working on it.

margie Newbie
margie
Posted
One issue with our YDD is she has low enamel...we noticed last night ( at tooth inspection ) that she has a cavity on a molar.

What do you look for in a pediatric dentist? Do you have any tips for going to one with a child with Celiacs?

margie Newbie
margie
Posted

I find myself educating my child's pediatric dentist about Celiac. She has been great once getting hip to our reality. DS has had loads of work, poor babe. However, the permanent teeth are coming in strong and hard. Like I said, the dentist gets it now. I remember the day she told me she'd only seen such enamel issues like my son's in children adopted from China. I have friends who adopted from China and they dealt with the teeth issue, too. Still, I admit, after hearing this I went home, found a private place, and sobbed. But his permanent teeth seem to be developing well as of two days ago when we went in for a check up. Sealants next month on the incoming molars just to be on the safe side.

I would suggest not putting up with any dentist who denies the fact that our kids have soft teeth due to their autoimmune disease. Educate them, let them know that pediatric dentists are often the first to point out to parents that they might test their kids for celiac when they find these issues. I've only read this myself, but once the dentists I speak with do their research they seem very interested. I admit it would be cool to have health practitioners whom we dont have to educate, but until that day...

g1gg1e Rookie
g1gg1e
Posted
  • Author

Well the paperwork came in the mail for dentist #3 and I already feel better about this one ( watch me eat my words ;) ) it was addressed to my youngest and wanted more family history and habit info... so I stand by my feelings that dentist #2 was a <_< he had a nice office in a fancy part of town but I guess that doesn't mean he is the most educated :lol:

I'm going to go back to the xylitol tooth paste we used before..we don't use fluoride we have fluoridated water again and when we had well water last year her teeth actually looked allot better....

I'm also going to work on getting her a medical ID bracelet in the next week or so. I found one small enough to fit her tiny wrist....I hope it cuts down on the family members trying to poison her.

  • 3 weeks later...
DentalMom Newbie
DentalMom
Posted
Well the paperwork came in the mail for dentist #3 and I already feel better about this one ( watch me eat my words ;) ) it was addressed to my youngest and wanted more family history and habit info... so I stand by my feelings that dentist #2 was a <_< he had a nice office in a fancy part of town but I guess that doesn't mean he is the most educated :lol:

I'm going to go back to the xylitol tooth paste we used before..we don't use fluoride we have fluoridated water again and when we had well water last year her teeth actually looked allot better....

I'm also going to work on getting her a medical ID bracelet in the next week or so. I found one small enough to fit her tiny wrist....I hope it cuts down on the family members trying to poison her.

Glad to see you have someones attention.

The reason I recommended fluoride toothpaste in addition to your fluoridated water is because our kids' teeth need additional mineralization. Fluoride is a negative ion that sticks to the calcium in the enamel, making it harder. Some staining can occur from fluoride but at least the teeth will be more resistant to decay.

I have a meeting on next Thursday with the pediatric chair of the dental school at University of Maryland where I teach. I hope to convince him to add Celiac's to our screening list.

g1gg1e Rookie
g1gg1e
Posted
  • Author
Glad to see you have someones attention.

The reason I recommended fluoride toothpaste in addition to your fluoridated water is because our kids' teeth need additional mineralization. Fluoride is a negative ion that sticks to the calcium in the enamel, making it harder. Some staining can occur from fluoride but at least the teeth will be more resistant to decay.

I have a meeting on next Thursday with the pediatric chair of the dental school at University of Maryland where I teach. I hope to convince him to add Celiac's to our screening list.

Hope you Celiac screening makes the list.

I'm glad the dentist drama is over for the most part.... I informed dentist #3 we had been to others before and to stay on my good side ;) She helped me check the tooth paste for gluten ( it says its gluten free). She also does "happy" pills ( a.k.a valium) I feel much better about that then gas or putting her out...she has 6 cavities ( all facial) confirmed and I think I just saw a new one this week...still have to figure out the insurance issue also..I'm going to schedule the appointment for Sept and work the paper work out later I think...there goes $1000!

now I still need to find a supportive primary Dr.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748
    Newest Member

    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.