Not Sure What To Do Now?

[sharkmom]

I went a saw a preventative MD that ran a bunch of tests. One was a saliva test that showed positive gluten. When I saw my endo, I asked her to run a celiac panel but told her I had been gluten-free for 2-3 wks. She sd it would show positive for celiac, if I had it, because antibodies would still be present. Got my results and showed negative. Now, I am doubting reliability of the results and wished I had eaten gluten beforehand. Dont know if I should eat gluten and get retested or just go in for a biopsy. I cant say that I felt bad to begin with and that I feel better since going gluten-free. I tried to get more info on what the saliva test and what it exactly means but havent had much luck. Preventative md just said I am gluten intolerant and shouldnt eat it. Any advice what to do now?

[Lisa]

Could you post your results of your blood work here. Many can help you interpret you results.

Here is some information on gluten intolerance:

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A preventative MD is a term I'm not familiar with.

[sharkmom]

Could you post your results of your blood work here. Many can help you interpret you results.

Here is some information on gluten intolerance:

Open Original Shared Link

A preventative MD is a term I'm not familiar with.

Sorry, meant Preventive Medicine Dr. The results:

Transgluteminase IgA Autoantibodies, result < 4.0 (<4.0 indicates negative)

Reticulin IgA autoantibodies, result <1:10, ref range <1:10

Endomyaial IgA, result <1:10, ref range <1:10

Gliadin IgG, result <10, ref range <10.0

Gliadin IgA, result <5.0, ref range <6.0

[Lisa]

Others are better with test results than I, but your results are certainly on the high side of negative. If you have symptoms consistent with a gluten intolerance and feel better on the gluten free diet, it is a good indicator that you have a gluten problem.

At this time, tests are not as accurate as we would like, but a positive dietary response can tell you a lot.

[sharkmom]

Others are better with test results than I, but your results are certainly on the high side of negative. If you have symptoms consistent with a gluten intolerance and feel better on the gluten free diet, it is a good indicator that you have a gluten problem.

At this time, tests are not as accurate as we would like, but a positive dietary response can tell you a lot.

So, does that mean that it was ok that I was not eating gluten at the time? Do you think I would still show the antibodies after a couple of weeks?

[gfb1]

Sorry, meant Preventive Medicine Dr. The results:

Transgluteminase IgA Autoantibodies, result < 4.0 (<4.0 indicates negative)

Reticulin IgA autoantibodies, result <1:10, ref range <1:10

Endomyaial IgA, result <1:10, ref range <1:10

Gliadin IgG, result <10, ref range <10.0

Gliadin IgA, result <5.0, ref range <6.0

since all the ab's indicative of intestinal damage were of the 'IgA' variety and you had been off gluten for several weeks -- i might not expect the gliadin IgA/IgG to be positive. you MIGHT have tested positive for the others .... but, impossible to say.

further, while only a small percentage of the population are IgA low/deficient -- you MIGHT be, therefore your results are not definitive.

from a previous post:

approx 1:700 caucasians in the US are IgA deficient, there is a family history/heritable component... but, its inheritance pattern is unclear.

among celiacs, the literature is highly variable depending on country of origin and sample size; but around 1:70 celiacs present as IgA deficient.

there is also a 3rd subcategory of marginally-deficient IgA patients (low... but, not deficient) for which there is little to no evidence that it is associated with celiac disease; and may have more to do with age-bias in those surveys.

take this pic to your doc, it might help.

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