Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure What To Do Now?


sharkmom

Recommended Posts

sharkmom Apprentice

I went a saw a preventative MD that ran a bunch of tests. One was a saliva test that showed positive gluten. When I saw my endo, I asked her to run a celiac panel but told her I had been gluten-free for 2-3 wks. She sd it would show positive for celiac, if I had it, because antibodies would still be present. Got my results and showed negative. Now, I am doubting reliability of the results and wished I had eaten gluten beforehand. Dont know if I should eat gluten and get retested or just go in for a biopsy. I cant say that I felt bad to begin with and that I feel better since going gluten-free. I tried to get more info on what the saliva test and what it exactly means but havent had much luck. Preventative md just said I am gluten intolerant and shouldnt eat it. Any advice what to do now?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Could you post your results of your blood work here. Many can help you interpret you results.

Here is some information on gluten intolerance:

Open Original Shared Link

A preventative MD is a term I'm not familiar with.

sharkmom Apprentice
  Momma Goose said:
Could you post your results of your blood work here. Many can help you interpret you results.

Here is some information on gluten intolerance:

Open Original Shared Link

A preventative MD is a term I'm not familiar with.

Sorry, meant Preventive Medicine Dr. The results:

Transgluteminase IgA Autoantibodies, result < 4.0 (<4.0 indicates negative)

Reticulin IgA autoantibodies, result <1:10, ref range <1:10

Endomyaial IgA, result <1:10, ref range <1:10

Gliadin IgG, result <10, ref range <10.0

Gliadin IgA, result <5.0, ref range <6.0

Lisa Mentor

Others are better with test results than I, but your results are certainly on the high side of negative. If you have symptoms consistent with a gluten intolerance and feel better on the gluten free diet, it is a good indicator that you have a gluten problem.

At this time, tests are not as accurate as we would like, but a positive dietary response can tell you a lot.

sharkmom Apprentice
  Momma Goose said:
Others are better with test results than I, but your results are certainly on the high side of negative. If you have symptoms consistent with a gluten intolerance and feel better on the gluten free diet, it is a good indicator that you have a gluten problem.

At this time, tests are not as accurate as we would like, but a positive dietary response can tell you a lot.

So, does that mean that it was ok that I was not eating gluten at the time? Do you think I would still show the antibodies after a couple of weeks?

gfb1 Rookie
  sharkmom said:
Sorry, meant Preventive Medicine Dr. The results:

Transgluteminase IgA Autoantibodies, result < 4.0 (<4.0 indicates negative)

Reticulin IgA autoantibodies, result <1:10, ref range <1:10

Endomyaial IgA, result <1:10, ref range <1:10

Gliadin IgG, result <10, ref range <10.0

Gliadin IgA, result <5.0, ref range <6.0

since all the ab's indicative of intestinal damage were of the 'IgA' variety and you had been off gluten for several weeks -- i might not expect the gliadin IgA/IgG to be positive. you MIGHT have tested positive for the others .... but, impossible to say.

further, while only a small percentage of the population are IgA low/deficient -- you MIGHT be, therefore your results are not definitive.

from a previous post:

  gfb1 said:
approx 1:700 caucasians in the US are IgA deficient, there is a family history/heritable component... but, its inheritance pattern is unclear.

among celiacs, the literature is highly variable depending on country of origin and sample size; but around 1:70 celiacs present as IgA deficient.

there is also a 3rd subcategory of marginally-deficient IgA patients (low... but, not deficient) for which there is little to no evidence that it is associated with celiac disease; and may have more to do with age-bias in those surveys.

take this pic to your doc, it might help.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,539
    • Most Online (within 30 mins)
      7,748

    Pablohoyasaxa
    Newest Member
    Pablohoyasaxa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WVGirl
    • RMJ
      It took me 5 years to get one of my celiac antibodies down into the normal range.  A few years later it went up to a low positive. I had started baking with a certain gluten free flour. When I switched to a certified gluten free flour the antibody level went back down to normal. Has anything changed in your diet, supplements, kitchen, etc. that might correlate with the increase?
    • KimMS
      Quick follow up: with strict "home-only" eating, how does this apply to drinks (soda/tea at a restaurant or coffee at Starbucks)? Would you avoid these as well? At times when I know I can't eat something when I'm out with friends, I will just order a drink, but is that okay (for this time period while I'm being strict)?
    • KimMS
      Hello, My daughter (almost 13) was diagnosed with celiac 1.5 years ago. I also have celiac and gluten ataxia so we are on this journey together. In another post, I mentioned how my AGA IgA has not really gone down even though my ttg IgA is down in normal range, and a biopsy one year ago showed my villi were healed/basically normal. My daughter's GI is concerned that her antibody levels are not going down fast enough (they dropped drastically the first year and she grew three inches, but they have slowed the past 6-9 months and her growth has plateaued). Doctor is concerned that she will not grow to her full height if she doesn't get her levels down as low as possible before her...
    • RMJ
      I’ve had both but without salt. The Tierra Farm had a little more flavor, although the almonds were a bit smaller and maybe a tiny bit tougher.
×
×
  • Create New...