Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Hear Me Out There

Diva1

Recommended Posts

Diva1 Enthusiast
Diva1
Posted

Hi anybody. Ive being sick since Jan 09..everyday now....Ive had a colonoscopy and several gastroscopies and also that little camera you swallow..it takes millions of pictures. well no diagnosis came out of all this test. but yet I still have incredible pain..specialy epigastric pain..then it moves down my right gut....then some diarhea with lots of undigested food in it.....joint pain....and it starts all over again....Then I heard that my cousin was celiac...so maybe its genetic....heard that some people show negative testing and still have it.

so I took on my own to start the gluten free diet....I felt well after the first 2 weeks, then some incredible pains that I could backtrack to gluten contamination.....but now being on the diet for one month and still have some symptoms..

can anyone answer me how long it will take to be syptom free....

I'm very strict with the diet...cant wait to feel good.....belly pain everyday is very depressing..

I need to hear someone out there that relates to all this. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
GliadinX
Food for Life

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi anybody. Ive being sick since Jan 09..everyday now....Ive had a colonoscopy and several gastroscopies and also that little camera you swallow..it takes millions of pictures. well no diagnosis came out of all this test. but yet I still have incredible pain..specialy epigastric pain..then it moves down my right gut....then some diarhea with lots of undigested food in it.....joint pain....and it starts all over again....Then I heard that my cousin was celiac...so maybe its genetic....heard that some people show negative testing and still have it.

so I took on my own to start the gluten free diet....I felt well after the first 2 weeks, then some incredible pains that I could backtrack to gluten contamination.....but now being on the diet for one month and still have some symptoms..

can anyone answer me how long it will take to be syptom free....

I'm very strict with the diet...cant wait to feel good.....belly pain everyday is very depressing..

I need to hear someone out there that relates to all this. :(

I can definately relate. I am one who didn't show up in blood work and I suffered for years even though I could have been a textbook case symptom wise.

It can take some time to heal and also some of us do have other intolerances in addition to the gluten. Have you deleted dairy from your diet? The same areas that are damaged by celiac are the ones that produce the enzyme needed to digest diary. Many are able to add dairy back in after they heal. Another thing to think about eliminating is soy. It took me a couple of years to realize it was the cause of my continued stomach pain.

Something that helped me a lot with the stomach pain was name brand Pepto Bismal liquid, it would stop the pain with one dose and very quickly. If it is something you can take you may want to give it a try. Also if you take any vitamins or meds, script or OTC do make sure to check and make sure they are gluten free. Labeling laws for meds are different than for foods and if gluten is in there they are not required to say so.

Diva1 Enthusiast
Diva1
Posted
  • Author
I can definately relate. I am one who didn't show up in blood work and I suffered for years even though I could have been a textbook case symptom wise.

It can take some time to heal and also some of us do have other intolerances in addition to the gluten. Have you deleted dairy from your diet? The same areas that are damaged by celiac are the ones that produce the enzyme needed to digest diary. Many are able to add dairy back in after they heal. Another thing to think about eliminating is soy. It took me a couple of years to realize it was the cause of my continued stomach pain.

Something that helped me a lot with the stomach pain was name brand Pepto Bismal liquid, it would stop the pain with one dose and very quickly. If it is something you can take you may want to give it a try. Also if you take any vitamins or meds, script or OTC do make sure to check and make sure they are gluten free. Labeling laws for meds are different than for foods and if gluten is in there they are not required to say so.

Thanks for the words and the advise about soy....i will eliminated then later on get back to it ..and see

thanks for your time

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      129,797
    • Most Online (within 30 mins)
      7,748
    Norma athey
    Newest Member
    Norma athey
    Joined
  • Celiac.com Sponsor (A20):
    Smith & Truslow

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    NutHouse! Granola Co.


  • Upcoming Events

  • Posts

    • Scott Adams
      Make up. Is Mary Kay gluten-free?

      By Scott Adams · Posted

      I am not sure about that brand specifically, but this article may be helpful:  
    • Scott Adams
      New onset constant gas

      By Scott Adams · Posted

      First, I’m so sorry you’re dealing with this—constant bloating and gas can be incredibly frustrating, especially when you’ve been so diligent with your gluten-free diet. Since nothing obvious has changed in your routine, a few possibilities come to mind: 1) Cross-contamination or hidden gluten (have you introduced new brands, eaten out more, or tried processed GF foods with questionable ingredients?), 2) New food intolerances (dairy, FODMAPs, or even GF grains like corn/rice can sometimes cause issues over time), 3) Gut dysbiosis (an imbalance in gut bacteria, possibly triggered by stress, antibiotics, or diet shifts), or 4) Non-celiac triggers (like SIBO or fructose malabsorption). You may also want to take choline supplements, as this helps some people. It might help to keep a detailed food/symptom log and try an elimination diet (e.g., cutting dairy or high-FODMAP foods temporarily). Probiotics or digestive enzymes could also offer relief while you investigate.
    • Scott Adams
      Gluten free and oat free bars not sugary?

      By Scott Adams · Posted

      Finding gluten-free and oat-free bars that aren’t overly sugary can be tricky, but there are some great options out there! For your little adventurers, consider GoMacro Kids bars (many are GF/oat-free and lower in sugar), 88 Acres Seed Bars (sweetened lightly with fruit), or The Good Crisp Company’s protein bars (grain-free and not too sweet). For homemade ideas, try simple nut/seed bars with dates, almond butter, and chia—no baking needed! Packaged snacks like Chomps meat sticks, Simple Mills almond flour crackers, or seaweed snacks also work well for hikes. If they like savory, roasted chickpeas or lupini beans are protein-packed and easy to carry. Hope this helps—happy trails!
    • Scott Adams
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Scott Adams · Posted

      Using anti-inflammatories for symptom management after inadvertent gluten exposure can be a helpful short-term strategy, particularly for reducing discomfort like inflammation, pain, or swelling. However, it shouldn’t replace strict adherence to a gluten-free diet as the primary treatment for conditions like celiac disease or gluten sensitivity. While NSAIDs (e.g., ibuprofen) or natural anti-inflammatories (e.g., turmeric) may provide relief, they don’t address the underlying immune response or intestinal damage caused by gluten. Additionally, long-term or frequent use of NSAIDs carries risks, such as gastrointestinal irritation. It’s best to consult a healthcare provider to tailor an individualized plan, which may include digestive enzymes, hydration, rest, and probiotics alongside anti-inflammatories when needed. This article, and the comments below it, may be helpful:    
    • Russ H
      Confused about my results

      By Russ H · Posted

      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
×
×
  • Create New...