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Can You Hear Me Out There

Diva1

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Diva1 Enthusiast
Diva1
Posted

Hi anybody. Ive being sick since Jan 09..everyday now....Ive had a colonoscopy and several gastroscopies and also that little camera you swallow..it takes millions of pictures. well no diagnosis came out of all this test. but yet I still have incredible pain..specialy epigastric pain..then it moves down my right gut....then some diarhea with lots of undigested food in it.....joint pain....and it starts all over again....Then I heard that my cousin was celiac...so maybe its genetic....heard that some people show negative testing and still have it.

so I took on my own to start the gluten free diet....I felt well after the first 2 weeks, then some incredible pains that I could backtrack to gluten contamination.....but now being on the diet for one month and still have some symptoms..

can anyone answer me how long it will take to be syptom free....

I'm very strict with the diet...cant wait to feel good.....belly pain everyday is very depressing..

I need to hear someone out there that relates to all this. :(

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ravenwoodglass Mentor
ravenwoodglass
Posted
Hi anybody. Ive being sick since Jan 09..everyday now....Ive had a colonoscopy and several gastroscopies and also that little camera you swallow..it takes millions of pictures. well no diagnosis came out of all this test. but yet I still have incredible pain..specialy epigastric pain..then it moves down my right gut....then some diarhea with lots of undigested food in it.....joint pain....and it starts all over again....Then I heard that my cousin was celiac...so maybe its genetic....heard that some people show negative testing and still have it.

so I took on my own to start the gluten free diet....I felt well after the first 2 weeks, then some incredible pains that I could backtrack to gluten contamination.....but now being on the diet for one month and still have some symptoms..

can anyone answer me how long it will take to be syptom free....

I'm very strict with the diet...cant wait to feel good.....belly pain everyday is very depressing..

I need to hear someone out there that relates to all this. :(

I can definately relate. I am one who didn't show up in blood work and I suffered for years even though I could have been a textbook case symptom wise.

It can take some time to heal and also some of us do have other intolerances in addition to the gluten. Have you deleted dairy from your diet? The same areas that are damaged by celiac are the ones that produce the enzyme needed to digest diary. Many are able to add dairy back in after they heal. Another thing to think about eliminating is soy. It took me a couple of years to realize it was the cause of my continued stomach pain.

Something that helped me a lot with the stomach pain was name brand Pepto Bismal liquid, it would stop the pain with one dose and very quickly. If it is something you can take you may want to give it a try. Also if you take any vitamins or meds, script or OTC do make sure to check and make sure they are gluten free. Labeling laws for meds are different than for foods and if gluten is in there they are not required to say so.

Diva1 Enthusiast
Diva1
Posted
  • Author
I can definately relate. I am one who didn't show up in blood work and I suffered for years even though I could have been a textbook case symptom wise.

It can take some time to heal and also some of us do have other intolerances in addition to the gluten. Have you deleted dairy from your diet? The same areas that are damaged by celiac are the ones that produce the enzyme needed to digest diary. Many are able to add dairy back in after they heal. Another thing to think about eliminating is soy. It took me a couple of years to realize it was the cause of my continued stomach pain.

Something that helped me a lot with the stomach pain was name brand Pepto Bismal liquid, it would stop the pain with one dose and very quickly. If it is something you can take you may want to give it a try. Also if you take any vitamins or meds, script or OTC do make sure to check and make sure they are gluten free. Labeling laws for meds are different than for foods and if gluten is in there they are not required to say so.

Thanks for the words and the advise about soy....i will eliminated then later on get back to it ..and see

thanks for your time

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