Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Clueless...


lPa1nl

Recommended Posts

lPa1nl Newbie

Well first off, Hi to everyone on the forum, I am new here. I am posting here mainly out of pure hope that I might be able to gain some knowledge. My girlfriend of 4 years and I are planning on moving in together in my house. She was found to have this disease about 16 months ago. Along with her trying to be gluten-free she also has severe problems with sugar and corn products. So lets just say it makes it interesting when we try and go out to eat and or cook something at home. I have become pretty good at reading ingredient labels and scouring the internet for Girlfriend friendly recipes that I can cook for her.

I must say she does post on this forum (Hi Honey!), and that the last 8-12 months she has buckled down and stuck to these new restrictions and is doing great. I try my best to support her in every way I can but I guess its just hard for me to grasp this disease, mainly because I am only allergic to penicillin and have never had any serious health issues like this.

We have agreed that it would be in our best interests to have a gluten-free house. So given the fact that we are going to move into a house together and going to try and have kids. Is there anything you people might think I can do to make it easier on her to continue the progress she is making?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

That is very supportive of you. The best thing to do is keep the house gluten free to ensure she will not get sick. Are you going to follow the diet as well? If not you should mouthwash or something after eating so when you kiss her you do not contaminate her. The best thing you can do is continue to be supportive and encourage her with the progress she is making and help when you can. Coming here you can learn so much info of good gluten free products if you wanted to cook for her and other things...if you have any questions just ask.

lPa1nl Newbie

Yea, I also plan to follow the diet with her. It will make it allot easier if I follow along rather than bring in gluten-free products into the home and possibly contaminate her. I am thinking that especially if we have kids and they to need to be gluten-free. I have made stuffing for her at thanksgiving out of millet bread, so its possible will just take a little bit more effort on my part to help her out.

Guest Leidenschaft

A supportive spouse makes such a huge difference!! :rolleyes: Pat yourself on the back for your efforts so far, and definitely keep checking this site for support and info!

My hubby has been wonderfully supportive through my diagnosis, the grieving, and the change of lifestyle! He even makes sure the wine rack is always topped up (and he makes the wine too!), since I can't share a cold beer with him anymore! :angry::lol:

However, he does not live gluten-free, and that's completely fine too! We have our kitchen cupboards organized (and CLEARLY marked!) as Safe, gluten-free Products ONLY (mainly for inventory purposes, I don't have to hunt for my specialized items), and NOT Safe. There is only one little NOT Safe cupboard, and it's buffered by canned goods so there isn't any cross contamination from his Not Safe cupboard. We also have the Gluten Zone where he has his bread and toaster. I take responsibility to ensure that IF I am in his zone, I am extra careful, although he does clean up after himself quite well! :D The rest of the kitchen is mine to assume gluten-free... however I do keep a vigilant eye on things, especially the shared microwave.

I can honestly say that in 16 months of gluten-free living, I can not blame any gluten incidents on carelessness. :)

Being supportive and understanding when the celiac disease patient DOES get "glutenated" is also very important. He/She may feel like crap (no pun!) for days, or may just be mildly irritable and not even associate it with gluten.

It's a tough job being the SO of the celiac disease patient, sometimes it can be very frustrating, the extra time everything takes, dealing with the ignorance of others, and the occasional pity parties we are prone to... :(

Your "honey" can count herself among the lucky, and should give you a great big HUG! :lol:

Good luck!

kabowman Explorer

I am the only one in our house of 5 and while we have a "mostly" gluten-free house, we keep stuff like regular mac & cheese and frozen pizzas for the kids and hubby. All condiments are off limits to me so those are no problem with cross contamination. We also keep "normal" bread on hand (for the cost issue) which you have to watch. Anyway, I can go for weeks without a problem then all of a sudden, something that should be safe, makes me sick. Maybe the kids used one of the wooden utensils for the butter (soy and corn), maybe, the skillet didn't get clean enough, etc.

Clean out all cabinets as you move - throw away everything with corn and gluten. Keep a separate cabinet for your foods that may make her sick (my cabinet arrangement is the opposite since I am definitly the minority!!!) like cereal.

My husband cooks as much or more than I do and we don't make anything for the family that I cannot eat - if we do, like pizza night, mine goes first so the fumes from the yeast and cheese won't contaminate my pizza. All meals are gluten-free except for the rare sides or bisquits and gravy for one of the kids because, you just can't substitute some things!

Good luck and glad you guys seem to be on the right track...

tarnalberry Community Regular

Keep going as you're doing! You sound like you're very supportive and understanding of the challenges she's facing. The more you cook at home, the more you'll get a good grasp on easy, tasty, fun things to cook at home that are safe. Particularly with corn issues, you may need to do a lot of cooking from scratch, but with practice, it'll be easy to cook from scratch at home without taking hours.

You may want to replace some of the items in your kitchen so she doesn't get any contamination. Definitely replace the toaster and collander, but also look into replacing pots that may be difficult to clean (like cast iron) and wooden spoons.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,345
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.