Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ot - Singulair - Bad Reaction!


Jana315

Recommended Posts

Jana315 Apprentice

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brigala Explorer

I've been taking Singulair every day since it was new on the market, and never had an issue with it. I know that doesn't mean a whole bunch, though. I'm sorry you reacted to it.

Fiddle-Faddle Community Regular

I had a very bad reaction to Singulair, which was prescribed to me when I had bronchitis/pleurisy as a reaction to the flu shot.

It made my coughing and wheezing immediately worse--much worse-- rather than better, and my doctor didn't believe me when I called him to tell him that. He switched me to Advair--and the same thing happened. The doctor didn't believe that that was possible.

He wanted me to take more, and I refused, and asked if I couldn't just use albuterol instead. He agreed, I did, and the albuterol helped a lot. I've not needed any kind of inhaler since. (I used to have mild exercise-induced asthma until I went off gluten.)

This was several years ago. A few months after this episode, both Singulair and Advair began to carry a black-box warning; apparently, some people died from their reactions to it.

I do not know if they still carry that black-box warning.

JillianLindsay Enthusiast

I've been on Singulair for years and never had a problem other than tiredness (and I take it at night of course so it's a welcome SA). When I was diagnosed with Celiac, my pharmacist called the company directly and they told her the product is gluten-free. Perhaps there's something else in it you are reacting to, or you could have a very sensitive stomach and experienced the GI SA they mentioned. Hope you figure it out! Singulair has been so helpful to me due to my asthma and allergies. Good luck!

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana

tarnalberry Community Regular

You should let your doctor know about the reaction. I'm guessing that it was likely reacting to the med itself, not gluten in it. While many people will do fine on many medications, it is completely possible to have a bad reaction to one.

  • 1 year later...
pelsteen Newbie

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana

I have been gluten free since 8/17/2010 but have continuing low-level cramping disrupting my sleep. I've been taking 2 5mg chewable Singulair tablets for about 5 years due to allergies, sinus infections, and comstant respiratory illness. Since I got my latest refill, I have been spending 2-3 hours/night cramping and not sleeping when I take one tablet before I go to bed. When I take two, I get a gluten reaction half as bad as what I had before God answered my despair and told me I had Celiac disease. Last night, I spent 16 hours in bed and may have slept about 8. As of now, I'm DONE with at least that bottle of pills. Getting a respiratory infection is better than being almost completely unable to sleep!!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    Jaxon Reed
    Newest Member
    Jaxon Reed
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.