Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quinoa Intolerance


trents

Recommended Posts

trents Grand Master

Quinoa gives me severe GI distress when I eat it as a breakfast cereal or a side dish but when combined with other grains such as corn in noodles I seem to be okay with it. Perhaps with the noodles the difference is the concentration or the processing that either dilutes the offensive ingredient or changes it in some way. From the research I've done I think the offending compound in the quinoa is the saponin, which is found concentrated in the hulls of the seed. When the seeds are washed the saponin produces a sudsy residue. Normally, the seeds are washed to remove most of this in food processing but even traces that remain may cause problems in saponin-sensitive individuals.

I brought up this topic about a year-and-a-half ago and had stayed away from quinoa in the meantime until two days ago when I cooked some for breakfast. I thought, "Maybe it was just coincidence before when I tried it and got sick. Maybe I had just picked up an intestinal bug at the same time." No, it wasn't coincidence. The new piece, however, is the discovery that I can have it in noodles.

Thanks to Rachel who had some good info on the subject when I posted a year-and-a-half ago.

Just goes to show you that what is good for most people is bad for some when it comes to "safe" alternatives to gluten-containing grains.

Are there any other quinoa intolerant forum members out there besides Rachel and I?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



goatmilkpower Newbie

I too get HORRIBLE pains from quinoa, even worse than from gluten a lot of the time. None of my nutritionists etc. believe me because it's supposed to be such a miracle food for everyone else. Someone has suggested that I try millet; have you had any luck with this grain? I've been curious but kind of worried that it might have the same effects as quinoa.

trents Grand Master

Millet is just a form of rice I think. If you do okay with rice then you should be okay with millet.

Have you tried amarynth? It is delicious but a little spendy. Actually, I'm not going to miss quinoa much as I don't like the taste. It smells and tastes like wet, moldy grass seed to me.

  • 2 weeks later...
katie may Newbie
I too get HORRIBLE pains from quinoa, even worse than from gluten a lot of the time. None of my nutritionists etc. believe me because it's supposed to be such a miracle food for everyone else. Someone has suggested that I try millet; have you had any luck with this grain? I've been curious but kind of worried that it might have the same effects as quinoa.

I believe millet is its own grain, not just a rice product. It is very small and has been used since ancient times in the East. Of course, we never see it here in the wheat & corn eat'n West. I've never noticed any soapiness when cooking it but as with anything, you could be sensitive to it. I don't particularly like the taste of cooked millet though I've found some puffed millet that isn't as weird in texture and taste. You could always try it - good luck!

Sulevismom Apprentice
Quinoa gives me severe GI distress when I eat it as a breakfast cereal or a side dish but when combined with other grains such as corn in noodles I seem to be okay with it. Perhaps with the noodles the difference is the concentration or the processing that either dilutes the offensive ingredient or changes it in some way. From the research I've done I think the offending compound in the quinoa is the saponin, which is found concentrated in the hulls of the seed. When the seeds are washed the saponin produces a sudsy residue. Normally, the seeds are washed to remove most of this in food processing but even traces that remain may cause problems in saponin-sensitive individuals.

I brought up this topic about a year-and-a-half ago and had stayed away from quinoa in the meantime until two days ago when I cooked some for breakfast. I thought, "Maybe it was just coincidence before when I tried it and got sick. Maybe I had just picked up an intestinal bug at the same time." No, it wasn't coincidence. The new piece, however, is the discovery that I can have it in noodles.

Thanks to Rachel who had some good info on the subject when I posted a year-and-a-half ago.

Just goes to show you that what is good for most people is bad for some when it comes to "safe" alternatives to gluten-containing grains.

Are there any other quinoa intolerant forum members out there besides Rachel and I?

I think I've always had some trouble with quinoa, which is too bad because I love the taste. Luckily for me the only seems to be that I simply do not digest it. It comes out looking exactly the same as it went in! But thanks for the info about it; I thought I was the only one who had trouble with it!

tarnalberry Community Regular

Millet and rice are separate plants. Millet and amaranth are both excellent alternatives, and do not have saponin. Of course, you can try rinsing your quinoa very well (I use a paper towel in a colander, since the grain is so small) prior to cooking, regardless of whether or not it says it was rinsed. I haven't had a problem, but I can certainly believe that it might cause someone else problems.

mysecretcurse Contributor

I have no problems with the white quinoa, although the red kind hurt my gut and wouldn't digest.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

Quinoa was very bad news for me. No thanks... ever again. I think there are issues with the saponin, even residually, and leaky gut problems which seem to have a very noticeable effect on not only my celiac but also my RA.

Chuck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748

    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.