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My Symptoms- Does It Sound Like Celiac?


browneyedgrl73

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browneyedgrl73 Rookie

I am 21 years old and have had stomach issues since I was about 15. I have been tested for alot (but not Celiac) and my doctors have basically summed it to IBS. They diagnosed me as lactose intolerant, and said that I cause my own stomach aches through stress. I've learned to ignore my stomach pains, they're second nature to me at this point. But after reading more and more about celiac (after a friend was recently diagnosed) I think I have it. SO many of the symptoms match what is going on with me, even some really bizarre things that I simply dismissed. Here's what's going on:

-Stomach pain

-Ridiculous bloating (I look like I'm pregnant with twins)

-Constipation/diarrhea (basically the most inconsisent bowel movements ever)

-Lactose intolerance

-Nausea

-Joint pain

-Bruising easily

-Dental enamel defects/discoloration

-Depression

-Fatigue

-Hypoglycemia

-Irritable (I am generally a very happy person but I have become extremely irratible, very out of character)

-Irregular period (went away for almost a year, put on meds to regulte it, again the doctors could not explain why this was happening)

-Gas (24/7)

I am very frustrated with my doctors, as they don't seem to see that I am not okay. They dismiss everything as "just the way my body is". The more I read about celiac, the more convinced I am I have it. I just wanted other opinions, I suppose. I want to feel better, and it seems like my symptoms are only worsening. Any advice would be greatly appreciated. Thanks!


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cinabunny Rookie

I'm 20 and also wondering if Im suffering from celiacs. Ever since I was 10 my parents always suspected it.

I was and still am very skinny and apparently look like I do crack haha.

I also wanted to know if I sound like it might be something to test for as the doctors don't know why I've been having chronic diarrhea and nausea.

When I was 12 I started having severe stomach pains like in my belly button and below it and a sour taste in my mouth.. It then somewhat went away but I had chronic dizziness followed by diarrhea nausea just a sick stomach. I would have this for 6 years and my doctor just ignored my symptoms. I then started getting terrible panic attacks and then my throat would close up and feel swollen. Also would get severe diarrhea and nausea. My doctor again ignored all these saying no one my age should be sick and I'm just crazy. I then found a mental health doctor thinking I must just be actually crazy and she didn't know what was wrong with me. I then started throwing up and feeling a lot of nausea and now I've had chronic diarrhea for a month now followed by the throat closing up feeling after I eat.. Mental health doctor made me leave and go back to my regular doctor and tell him I need actual medical help not mental.

so far I've had 2 stool cultures taken showing nothing

these are my symptoms.

dizziness

nausea

diarrhea as soon as I get up in the morning sometimes a lot sometimes a little, always nauseus after it.

I did throw up a month ago.

Stomach pains very severe in the morning stomach just feels sore and bubbly all day.

Burping...a lot.

unrelated symptoms/conditions

migraines

Panic Attacks feel on the edge...

endometriosis.

HELP please. Maybe it's only a virus that won't go away.

The Fluffy Assassin Enthusiast
I am 21 years old and have had stomach issues since I was about 15. I have been tested for alot (but not Celiac) and my doctors have basically summed it to IBS. They diagnosed me as lactose intolerant, and said that I cause my own stomach aches through stress. I've learned to ignore my stomach pains, they're second nature to me at this point. But after reading more and more about celiac (after a friend was recently diagnosed) I think I have it. SO many of the symptoms match what is going on with me, even some really bizarre things that I simply dismissed. Here's what's going on:

-Stomach pain

-Ridiculous bloating (I look like I'm pregnant with twins)

-Constipation/diarrhea (basically the most inconsisent bowel movements ever)

-Lactose intolerance

-Nausea

-Joint pain

-Bruising easily

-Dental enamel defects/discoloration

-Depression

-Fatigue

-Hypoglycemia

-Irritable (I am generally a very happy person but I have become extremely irratible, very out of character)

-Irregular period (went away for almost a year, put on meds to regulte it, again the doctors could not explain why this was happening)

-Gas (24/7)

I am very frustrated with my doctors, as they don't seem to see that I am not okay. They dismiss everything as "just the way my body is". The more I read about celiac, the more convinced I am I have it. I just wanted other opinions, I suppose. I want to feel better, and it seems like my symptoms are only worsening. Any advice would be greatly appreciated. Thanks!

Yes, it sounds like you may well have celiac disease, and you too, cinabunny. Cinabunny, I still have the sour taste in my mouth (entire digestive tract in my case) two years after giving up gluten and thus am giving up dairy in a day or so. Many, many celiacs, maybe half, are also casein (i.e., dairy) intolerant as well. Just something to think about.

But yes, you both sound as if you have celiac disease. Get tested or try the gluten free diet. If doctors are ignoring you, find different doctors or ignore them and just do it yourself. Gluten free isn't as hard as it seems at first and it's getting easier all the time. People on this board will help; just ask.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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