Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Get Dh In Genital Area?


glutenmommy

Recommended Posts

ravenwoodglass Mentor

Yes.

It's often misdiagnosed as herpes, especially if a herpes test comes back positive.

If a herpes test comes back positive it is herpes. You can have both herpes and DH.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

I had to really baby my DH. Before I knew what it was I sprayed an antifungal on it because it seemed to help. I think it helped because it had a numbing agent and it made it feel dry. The numbing part was great, but the dry part wasn't...it ended up making it worse - more irritated.

My best luck was with Vanicream lotion as far as keeping the skin soft and stopping irritation from scabbing.

My DH was under my arms - pits and surrounding area (actually, my actual pits were unaffected - they were white bullseyes in the middle of the red rash). I did have terrible underarm b.o. from it since the scabs captured the stink and clogged up the pores...

I had a brief episode down my butt crack and that was about the time my derm put me on steroids and a wham-bam double antihistimine that was also an antipsychotic - which was pretty handy since I was quickly losing it as the rash grew and itched down my butt. Luckily, when I got off the steroid the rash didn't come back except under my arms...so I don't have any more advice about dealing with DH down yonder.

My advice, baby it with a moisturizing lotion. Ice it (sorry, I know that could be interesting). Try to keep it dry when the blisters pop by airing it out.

I assume a doctor has looked at this rash and excluded other dx? Can you get it biopsied? Can you try dapsone?

Also, it can take a while to drop iodine levels...and some people struggle with one particular iodine source (egg yolks and seaweed were bad for me). In the beginning weird stuff set me off, but I was also newly gluten-free.

Was the "white, bullseye" area, where you put your antipersperant?

pricklypear1971 Community Regular

Was the "white, bullseye" area, where you put your antipersperant?

Yes, it was the "official pit area"...I put the deoderant there but it would smear outside the area. :)

The rash was slightly in the outer regions of the pits, but the center-most part of my arm pit was clear. The rash radiated out from that area. It was quite impressive.

YoloGx Rookie

Hi, I know this is a late response--but just saw the thread now.

I also have had intense itching, cracking, scaling skin and hives in the genital area including around the anus--and terrible flaky, scaling, crusty inside of my outer ears.

I used to get small pimples too as a young adult before I was mostly off all gluten--in these areas as well as my back, scalp, neck, and over my breasts. Awful! If I ingest gluten I start getting the pimples again.

The other stuff however which I will call psoriasis and hives, seems to be related to other additional food sensitivities. In me namely salicylates, amines and tannins. Being mostly off the heavy to medium and sometimes even low food chemicals like that, has greatly improved my condition.

Other things that have helped are taking bentonite clay regularly with psyllium husks. I always sprinkle the bentonite on the top of a large mug of water and let sit for at least 4 hours before stirring and drinking. In addition I take an equal amount of psyllium husks freshly mixed in another large mug of water. It absorbs toxic chemicals, heavy metals, and various bacteria and parasites and then carries them out of the body. Its great for better bowel movements too. Just make sure you take it at least 2 hours after eating anything and one hour before you ingest anything new besides water.

I also have found taking small amounts of barberry bark regularly also helps my liver and gall bladder which then in turn helps out my skin and lessens some of my food sensitivities by improving my intestinal health.

Just thought I'd give whomever a heads up in case they go looking for this kind of information.

  • 2 months later...
sisterlynr Explorer

Just in case someone reads this "bumped to 2012" posting. . . . My GYN took a biopsy and it was negative for any disease, she just told me didn't know what the problem was. . . sound familiar?

Showering was horrible and I used lots of Vaseline but it didn't help the itch. I used lots of products but eventually tried Prep H - strongest strength and it did provide relief. FYI :) Thankfully that area hasn't been affected for several months!

frieze Community Regular

Yes, it was the "official pit area"...I put the deoderant there but it would smear outside the area. smile.gif

The rash was slightly in the outer regions of the pits, but the center-most part of my arm pit was clear. The rash radiated out from that area. It was quite impressive.

Then i would think it may be the "anti sweat" aspect.....try covering a larger area......
  • 2 months later...
magickgrrrl Newbie

Yes! this is a nightmare Ive been living with for years! I never knew I was gluten intoleratnt., but i kept getting this terrible itching all around my vulva, the crack of my butt, and even inside a little ways. It was exasperated by any moisture at all, bowel movements, menses, and sexual intimacy. It went on for years and the doctors all shook their heads, finding nothing, and some of them quite frankly wouldnt even take me seriously at all. (AS IF I ENJOYED HAVING THEM STUPIDLY PEER UP THE CRACK OF MY BUM< JUST FOR THE HELL OF IT TO WASTE THEIR TIME) ... i was checked for yeast, herpes, parasites, any number of skin disorders, I had the area biopsied, Tried every ointment, cream, and allergy treatment i could get my hands on. It any chance of intimacy I could hope of having in my marriage, and I sunk into deep depression as the outcome spralled out of my control. My therapist was convinced it was a psychosematic condition resulting from some childhood trauma.

After almost 15 years of this nightmare, through some other bloodwork for another illness I was being treated for, the question of celiac arose with my doctor. I wasnt experiencing most of the symptoms associated with it, but after about 6 months of being celiac free, my rash symptoms began to dissipate. Now, if I have even the slightest trace of gluten exposure, the flare ups come right back with a vengeance. I have yet to learn how to successfully lead a completely gluten free existance, and often have relapse. One thing I have found to ease the discomfort when this happens is cleaning the area with very cold water, pure shea butter as a moisture barrier, and taking an anti inflammatory supplement called QBC Plex by Solaray.....its a combination of quercitin, bromelain, and vitamin c. you can get all of these things seperately but together they are a miracle, somehow they suport each other. I usually have the worst time at night when trying to sleep, and have in the past suffered countless sleepless nights from itching. I keep this stuff by the bed, and if Im having a bad night i down some and usually am sleeping soundly withinn about 20 minutes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748

    Jane Margaret
    Newest Member
    Jane Margaret
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.