Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After Advise On Symptoms / Blood Test Results


elltrev

Recommended Posts

elltrev Newbie

Hello all,

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgeorge Rookie

That says very little about your gluten/celiac status. The only thing on there that is related it the endomesial antibody.

daphniela Explorer
Hello all,

I’ve been suffering from various symptoms recently, for which my doctor sent me off some blood tests. Having done my own research I had suspected celiac / gluten intolerance (amongst other things), but the tests came back good / negative on all counts. I am just hoping for some experienced and knowledgable minds to be kind enough to take the time to let me know if these results completely rule out a problem with gluten (or make it very unlikely), or if it is still a possibility / there are further tests that would be necessary to rule it out. Also any other suggestions for possible causes of my symptoms (bearing in mind my blood test results) would be hugely appreciated.

My symptoms seem pretty usual judging by what I’ve read on this site; the digestive symptoms I’ve been having for 5 or 6 months, seemingly out of nowhere, whilst the other symptoms have appeared, or at least worsened, in the last few weeks:

- Constipation / ‘incomplete’ bowel movements (whose official term I’m told is low rectal satisfaction!)

- Bloating, gas, bad flatulence, churning stomach, nausea, heartburn, indigestion etc

- Constant lethargy, fatigue, aching, lack of energy etc

- Sometimes light-headedness and occasional dizziness and poor co-ordination

- Brain fog – difficulty in thought, concentration, feel awkward holding a conversation, feel spaced out like I’m on drugs etc

- Feel irritable, depressed etc

And here are my blood test results, or at least those which I think are relevant here:

- Endomysial antibody lgG level – Absent

- Blood glucose – 4.3 mmol/L (seems normal, and rules out hypoglycaemia)

- TSH (thyroid hormone) – 2.2 MicroU/L (Normal thyroid)

- Haemoglobin – 15 g/dL \

- Blood folate – 6.8 ug/L > (All seem normal and rule out anemia)

- Serum ferritin – 91 ug/L /

- B12 level – 646 umol/L (Is this normal? I couldn’t find a reference point anywhere on the net)

- Blood folate – 6 .8 ug/L (Apparently normal)

So I guess the advice / info I am after, based on my symptoms and test results, is:

1) Do my tests completely rule out celiac / gluten intolerance?

2) Either way, what other causes for my symptoms could there be?

3) What other tests (blood or otherwise) should I think about getting done, whether to check further for GI or to check for other causes?

Thanks in advance for anyone’s help!

It doesn't look like you got a full blood panel for Celiac. There is a possibility you still may have it. Also you need to continue eating gluten for the tests to come out accurate.

Karrin Rookie
Hello all,

I

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.