Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Overreacting?


DaisyDaisy

Recommended Posts

DaisyDaisy Newbie

Hi

I know it's not anyone's place to give a diagnosis, I was just wondering if any of my symptoms sounded familiar to anyone or if someone could let me know if they thought I was either overreacting or barking up the wrong tree? I absolutely hate going to the doctor, so I'd rather have a stronger idea that I'm not just blowing things out of proportion.

I'm 26 and I've always had a weak stomach, I've had diarrhoea at least once a week for as long as I can remember. Because it's so often, I just thought that it was normal for me. I get sore stomach's a lot, often feel run down and can be super gassy. Which is lovely. I've never made an effort to stop eating certain things before but the other week I was reading about gluten intolerance and recognised a few of the symptoms so thought I'd give it a go. I was super strict for a week and felt absolutely amazing. I was full of energy, felt really happy, my stomach behaved itself entirely, it was wonderful. So I then started eating wheat again 3 days ago, just to see what would happen, and I'm back to feeling like I was before. And only in the comparison do I realise how rubbish it is. I've got a sore stomach, had D a few times, feel bloated and miserable, I'm really tired etc.

I'm just wondering if this is maybe in my head?! Like, can it really make such a difference so quickly? And if it is an actual condition or something how can I have possibly made it to 26 without having more serious problems? Also, I'm slightly over weight so am definately not malnourished or anything!

Any thoughts from anyone with experience with Celiac disease or anything else would be really appreciated.

Thanks.

Daisy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LDJofDenver Apprentice

Hi Daisy. Doesn't sound like it's in your head, sounds like it's in your stomach (gut)!

I think over the years I, indeed, thought most of my symptoms were just my "norm." And "our family has always had touchy guts." Duh! That's probably because half of them (or more) no doubt have celiac disease. My son (diagnosed as an adult) and I, and I'm certain my Mom's had it most all her life - although I can't (at 79) get her down the path to testing (hard to give up your favorite things at that age?).

Your positive reaction to eliminating gluten from your diet could be telling you something.

If you do have it, it would be better to know sooner than later. Eventually my problems (which were due to malabsorption from intestinal damage) grew include migraines, roving pins and needles (neuropathy), balance problems (gluten ataxia), DH, osteopenia, in addition to the stomach and intestinal woes.

I encourage you to pursue this further. Many on this forum (and my son, too) are self-diagnosed and never felt the need for medical confirmation. There are genetic tests (https://www.celiac.com/articles/21567/1/Ten-Facts-About-Celiac-Disease-Genetic-Testing/Page1.html) to see whether or not you carry the gene for it, and the conventional blood panels (Open Original Shared Link) and endoscopy. I was diagnosed by both the latter.

DaisyDaisy Newbie

Hi LDJ,

Thanks very much for the advice. I think I just needed a bit of confirmation that I'm not just being a hypochondriac. Most of my family have "touchy guts" too, so I just thought that I was the same. I'll make an appointment with a doctor as soon as I can. The further problems you mentioned do not sound pleasant so I'd rather face the doctor now than face them in a few years. :)

Will the week off the gluten 3 days ago affect a blood test?

Daisy

JillianLindsay Enthusiast

Hi Daisy,

Your story sounds very similar to mine and worth checking out.

3 days gluten-free shouldn't affect the blood test, just don't make any more diet changes if you are going to follow-through with seeking out a formal medical diagnosis.

Good luck :)

Jillian

Hi LDJ,

Thanks very much for the advice. I think I just needed a bit of confirmation that I'm not just being a hypochondriac. Most of my family have "touchy guts" too, so I just thought that I was the same. I'll make an appointment with a doctor as soon as I can. The further problems you mentioned do not sound pleasant so I'd rather face the doctor now than face them in a few years. :)

Will the week off the gluten 3 days ago affect a blood test?

Daisy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    2. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    3. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    5. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.