Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping With Gluten In The Home


NativeNYer

Recommended Posts

NativeNYer Newbie

Six weeks ago. I was dx with celiac and have been searching through your posts to learn what I can. At times I am OK with being gluten-free (when I manage to do it "right" I feel better), at other times I am angry, sad, irritable, hungry, blah, blah. What I am now wrestling with, and seek advice on, is my increasing anxiety about inadvertent ingestion of gluten/contact with gluten. Silly as it may sound, I am finding sharing a home with my non-gluten-free 4 year-old and husband really stressful. Whenever the wee one comes joyfully running toward me after having his hands in Playdoh, I want to run screaming. I don't, but I feel my anxiety shoot right through the roof. While, I have never been an anxious type I find myself wondering about the weirdest things! For instance, are the kitchen faucet handles a threat if my husband has a made a sandwich and then washed his hands? Is being kissed on the cheek by my wheat/gluten loving son a threat? How paranoid is too paranoid?

I welcome your insight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

Hello NativeNYer,

I live with my BF who tries hard to understand, three or four teenagers (always somebody coming to stay or going off on a visit), four dogs and an elderly cat. I've stopped buying foods that contain gluten. Most of our meals are homemade bread, meat and two veggies (which reminds me of a funny story, I googled meat and two veggies, looking for recipes and found an interesting tidbit about slang in the UK :lol: ). Anyhow, we all feel better now that we are getting our veggies! And we found that two of the teens, DS#1 and DS#2's girlfriend, are also celiacs. Even my pets and any mice who come to visit are now gluten free because the mice had been storing dogfood in rubber boots in a closet. When I cleaned the closet I got really sick so.... no more gluten for the mice. IMHO you can not be too careful.

On another note could some of your anxiety be from gluten withdrawal? I get pms like feelings when recovering from a glutening.

Hope this helps, RA

missy'smom Collaborator

Since your kiddo is so young I'd just quit buying/providing gluten treats and switch to gluten-free ones. Jello, pudding cups, popsicles, fruit leather, dried fruit, freeze dried fruit, popcorn, there are so many choices and gluten-free goodies as you can afford them or have time to make them. There are so many good mixes. I found that using a mix to make a batch of something lasted kiddo and I quite a while if we didn't go overboard eating it. A batch of unfrosted choc. cupcakes in the freezer were a staple. My kiddo wasn't gluten-free at the beginning but we shared snacks. He wasn't deprived as he still got plenty of gluten stuff outside the home. From the beginning we pretty much gave up bread and switched to rice and potatoes. Sometimes we do separate pastas but sometimes gluten-free for all. DH still makes sandwiches for himself but on a separate counter and he has all his own stuff and a method-he handles all the meats and cheeses before he gets out the bread-puts them on a plate and then puts the rest away, then assembles his sandwich.

For the playdoh, there are alternatives. I don't have a little one anymore but before I was gluten-free I made playdoh(with wheat flour) for a pre-school and I'm sure it can be done gluten-free. It really didn't take that long, made a big batch-I made a fresh batch every month as it got well used. Some of the parents here may be able to recommend store bought kinds.

tarnalberry Community Regular

You have every reason to be concerned, but taking the house "vastly gluten free" is easier than you might think.

Figure out what gluten-containing options are "allowable". (This may well entail a discussion/agreement with your husband, but not your 4-yr old. ;) ) Playdough? Out - it's everywhere on hands! But cereal? Maybe if everyone will eat with a spoon (not hands). Bread for sandwiches? Maybe, if there's a dedicated counter space to sandwiches, and you and your husband can agree on a 'cleanup protocol'. Flour? Eh... I'd probably avoid it.

As others have said, once we get past our habits of eating wheat (yeah, it's in a lot of things, because we have a habit of not eating non-wheat things!), it's really not so hard to take a whole family gluten free. It may take some time and planning, but is all the healthier if it involves cooking your own meals and not using packaged products.

larry mac Enthusiast

Here's what works for me.

Our house is not a gluten-free one. But, I do all the grocery shopping and cooking, so I have much more control than some. I make my wife gluten bread items, and we have gluten cerial, crackers, etc. I keep a few pots & pans seperate for gluten use. We have different toasters.

I do not allow any loose gluten flour in the house though. No Bisquick, cookie mix, etc. Wheat processed finished products only. I have my own cerial bowls that I hand wash. I feel better mentally about it that way. I just don't trust the dishwasher completely.

best regards, lm

NativeNYer Newbie

Dear OptimisticMom42, missy'smom, tarnalberry and larry mac,

I have very much appreciated your swift, thoughtful and helpful replies to my post. I will be implementing many of your suggestions. My, my the learning curve on living with celiac and becoming gluten-free is a high one! (Higher than I'd expected!) Thanks for lending support.

ranger Enthusiast

Hi and welcome. Our house is mainly gluten free. Only exceptions are my husbands sandwich bread, His box of crackers, and individual snack cakes for his lunch - all kept separate from other food. He has one area of the counter he makes a sandwich on, on a plate. Most shared meals are gluten free ( exept spaghetti and pizza for economy). If I had a child, he would also eat gluten free at home. There is a recipe for gluten free play dough, but I can't remember where I saw it. Look around the internet. There are tons of recipes. I know it's hard at first but hang in there. It does get easier.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



foodiegurl Collaborator

Here is a recipe:

Open Original Shared Link

elle's mom Contributor

I can relate to your situation, but as the parent of a paranoid gluten-free 4yo celiac (not being gluten-free myself). She is paranoid about gluten and so am I. When she was first diagnosed we had a separate gluten-free cupboard for her.....special area of the counter for her gluten-free food etc. NOW, after almost 2 years, we've realized that it is actually easier to have mostly gluten-free, and a separate area only for the other family members' gluten bread, crackers, pasta etc. I have found that Tinkynada (SP?) pasta is so close to normal tasting that for spaghetti night it's easier just to use that for everyone-a little more pricey but the first time we used it and didn't have to worry about dipping the spoon into the sauce-it was way worth it! The only things the rest of us gluten eaters have is bread, bagels, crackers, and cereal. We make gluten-free pancakes, muffins, brownies, pasta, cookies etc. All of our condiments are labeled gluten-free-no knife dipping from gluten bread-we are super serious about this and have to drill it into babysitters heads. Separate toaster.........we need to do a separate colander and cutting board, I didn't realize that washing wasn't good enough. Really, are there lots of you that don't trust the dishwasher on hot?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.