Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Going To The Doctor


JBaby

Recommended Posts

JBaby Enthusiast

Learned about gluten/celiac by accident late april. Researched it, did some food experiements, longest exp lasting 3 weeks and I felt phenominal. Like a new person. Been having difficult time staying on the diet. I saw doc for almost 2 years for all the symtoms that gluten and celiac give a person but these 2 possibilities never came up. I am finally going back with info and proof: what happens when i eat ceratin foods. Like tonight I had 2 slices of pizza hut supreme pizza. Was gluten free for last 3 days. well I felt it within a half hour. Still do and its been an hour and a half. Couldnt breathe. Felt like i was being squeezed. Had to take off my bra, there was that much pressure. Still feel that pressure in chest. brain fog and sooooo tired. I was bouncing like tigger when i cme home from work. I dont want to wste my time at docs on tuesday. I need to be clear with her. I dont have insurance so testing is out unless it is free. Not sure what I am sking you all. I just need to get on a plan and stay on it. This yo yo thing is not good for me. Thanks....Now I am itching!!!! Everywhere. Ugh!!!!!!

JBaby


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor
Learned about gluten/celiac by accident late april. Researched it, did some food experiements, longest exp lasting 3 weeks and I felt phenominal. Like a new person. Been having difficult time staying on the diet. I saw doc for almost 2 years for all the symtoms that gluten and celiac give a person but these 2 possibilities never came up. I am finally going back with info and proof: what happens when i eat ceratin foods. Like tonight I had 2 slices of pizza hut supreme pizza. Was gluten free for last 3 days. well I felt it within a half hour. Still do and its been an hour and a half. Couldnt breathe. Felt like i was being squeezed. Had to take off my bra, there was that much pressure. Still feel that pressure in chest. brain fog and sooooo tired. I was bouncing like tigger when i cme home from work. I dont want to wste my time at docs on tuesday. I need to be clear with her. I dont have insurance so testing is out unless it is free. Not sure what I am sking you all. I just need to get on a plan and stay on it. This yo yo thing is not good for me. Thanks....Now I am itching!!!! Everywhere. Ugh!!!!!!

JBaby

Diagnosed or not it sounds like the gluten free diet is the way to go for you. It is not worth the pain of waitin for a diagnosis when you have been proved thru the way to feel.

Hope that helps~

JBaby Enthusiast

I agree but for some reason I just need formality. It is apparent. I looked up the pizza dough i had tonight and it containd wheat and now I am having my own itch fest. My wonderful and amazing man left to get me some benadryl to stop the itching.

The Fluffy Assassin Enthusiast
... I dont have insurance so testing is out unless it is free. ...

JBaby

There are doctors who will diagnose you based on your response to the diet, but not many. Before you go, you need to call and find out if she's one of them. Because if she isn't and you can't pay for the testing (blood tests and endoscopy, and you have to keep eating gluten for weeks on end for both), I don't see any point in keeping the appointment. You can post on the Doctors forum on this board to try to find a doctor near you who will give you a diagnosis based on dietary response. But again, unless you know that the doctor you're seeing Tuesday will do so, you'd just be wasting time and money.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,216
    • Most Online (within 30 mins)
      7,748

    SAY
    Newest Member
    SAY
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
×
×
  • Create New...