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No Meds

hippo33

By hippo33
in Dermatitis Herpetiformis

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hippo33 Apprentice
hippo33
Posted

ive been unoficially diagnosed with dh ive been on the diet over a week now with no meds is it possible it takes longer without the meds or will i stop breaking out eventually ?

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tarnalberry Community Regular
tarnalberry
Posted

DH takes a long time to die down. make sure to - for just a short time - minimize excess iodine intake (no iodized salt, seaweed, etc.) as iodine is part of the reaction that causes DH.

angieInCA Apprentice
angieInCA
Posted

Be aware that it can take months for DH to totally die down. You should see improvement anywhere from 2 to 6 weeks with a continuous gradual tappering off of constant flair-ups. Any time you accidently ingest gluten you may have flair-ups within hours to 6 weeks later. I have never taken meds for DH as I didn't want to contend with possible side effects. Now, when I get accidently glutened I will start itching all over within 24 hours and then I may have a few small breakouts but nothing like I used to get.

jststric Contributor
jststric
Posted

I've read that breakouts can be as far as 15 days after being "exposed". That's A LONG TIME to wait and wonder!! Be sure to journal and keep track of everything you eat so that you can gain a clue about how fast your system typically works, how much you may have been exposed to and how badly you were affected and simply what may have bothered you. If you are like alot of us, you may be bothered by multiple things. Once you KNOW you have one thing out of your diet and you are still being bothered, then you look at your journal and start deducing and eliminating things till you pinpoint the next item. Best wishes! You are in the "not at all fun stage" of this.

hippo33 Apprentice
hippo33
Posted
  • Author
I've read that breakouts can be as far as 15 days after being "exposed". That's A LONG TIME to wait and wonder!! Be sure to journal and keep track of everything you eat so that you can gain a clue about how fast your system typically works, how much you may have been exposed to and how badly you were affected and simply what may have bothered you. If you are like alot of us, you may be bothered by multiple things. Once you KNOW you have one thing out of your diet and you are still being bothered, then you look at your journal and start deducing and eliminating things till you pinpoint the next item. Best wishes! You are in the "not at all fun stage" of this.
hippo33 Apprentice
hippo33
Posted
  • Author

i drink a lot of v8 low sodium juice i hope its not what keeps me flaring up

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      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

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      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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      Issues before diagnosis

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    • trents
      Dizziness after eating green beans?

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      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
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